These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

119 related articles for article (PubMed ID: 10404443)

  • 1. The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.
    Parker D; Maddocks I; Stern LM
    J Paediatr Child Health; 1999 Jun; 35(3):245-50. PubMed ID: 10404443
    [TBL] [Abstract][Full Text] [Related]  

  • 2. Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey.
    Beernaert K; Lövgren M; Jeppesen J; Werlauff U; Rahbek J; Sejersen T; Kreicbergs U
    J Child Neurol; 2019 Mar; 34(4):210-215. PubMed ID: 30642225
    [TBL] [Abstract][Full Text] [Related]  

  • 3. Parents' Experiences and Wishes at End of Life in Children with Spinal Muscular Atrophy Types I and II.
    Lövgren M; Sejersen T; Kreicbergs U
    J Pediatr; 2016 Aug; 175():201-5. PubMed ID: 27241662
    [TBL] [Abstract][Full Text] [Related]  

  • 4. Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.
    Hjorth E; Kreicbergs U; Sejersen T; Jeppesen J; Werlauff U; Rahbek J; Lövgren M
    J Child Neurol; 2019 Feb; 34(2):104-112. PubMed ID: 30518279
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Mapping the journey: family carers' perceptions of issues related to end-stage care of individuals with muscular dystrophy or motor neurone disease.
    Dawson S; Kristjanson LJ
    J Palliat Care; 2003; 19(1):36-42. PubMed ID: 12710113
    [TBL] [Abstract][Full Text] [Related]  

  • 6. The experiences of families living with the anticipatory loss of a school-age child with spinal muscular atrophy - the parents' perspectives.
    Yang BH; Mu PF; Wang WS
    J Clin Nurs; 2016 Sep; 25(17-18):2648-57. PubMed ID: 27477332
    [TBL] [Abstract][Full Text] [Related]  

  • 7. Family perspectives on the quality of pediatric palliative care.
    Contro N; Larson J; Scofield S; Sourkes B; Cohen H
    Arch Pediatr Adolesc Med; 2002 Jan; 156(1):14-9. PubMed ID: 11772185
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.
    Busolo D; Woodgate R
    JBI Database System Rev Implement Rep; 2015 Jan; 13(1):99-111. PubMed ID: 26447011
    [TBL] [Abstract][Full Text] [Related]  

  • 9. Experiences and needs of bereaved carers during palliative and end-of-life care for people with chronic obstructive pulmonary disease.
    Hasson F; Spence A; Waldron M; Kernohan G; McLaughlin D; Watson B; Cochrane B
    J Palliat Care; 2009; 25(3):157-63. PubMed ID: 19824276
    [TBL] [Abstract][Full Text] [Related]  

  • 10. [Indicators for an impending need of artificial respiration in patients with muscular dystrophy].
    Lyager S; Steffensen B; Juhl B
    Ugeskr Laeger; 1993 Jun; 155(25):1963-7. PubMed ID: 8317062
    [TBL] [Abstract][Full Text] [Related]  

  • 11. 'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1.
    Higgs EJ; McClaren BJ; Sahhar MA; Ryan MM; Forbes R
    J Paediatr Child Health; 2016 Jan; 52(1):40-6. PubMed ID: 26437687
    [TBL] [Abstract][Full Text] [Related]  

  • 12. The incompatibility of healthcare services and end-of-life needs in advanced liver disease: A qualitative interview study of patients and bereaved carers.
    Hudson B; Hunt V; Waylen A; McCune CA; Verne J; Forbes K
    Palliat Med; 2018 May; 32(5):908-918. PubMed ID: 29393806
    [TBL] [Abstract][Full Text] [Related]  

  • 13. Indicators of need for mechanical ventilation in Duchenne muscular dystrophy and spinal muscular atrophy.
    Lyager S; Steffensen B; Juhl B
    Chest; 1995 Sep; 108(3):779-85. PubMed ID: 7656633
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Ventilator use in progressive neuromuscular disease: impact on patients and their families.
    Miller JR; Colbert AP; Schock NC
    Dev Med Child Neurol; 1988 Apr; 30(2):200-7. PubMed ID: 3384199
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Which carers of family members at the end of life need more support from health services and why?
    McNamara B; Rosenwax L
    Soc Sci Med; 2010 Apr; 70(7):1035-41. PubMed ID: 20116158
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Bereavement support for family caregivers: The gap between guidelines and practice in palliative care.
    Aoun SM; Rumbold B; Howting D; Bolleter A; Breen LJ
    PLoS One; 2017; 12(10):e0184750. PubMed ID: 28977013
    [TBL] [Abstract][Full Text] [Related]  

  • 17. The meaning and experience of bereavement support: A qualitative interview study of bereaved family caregivers.
    Kirby E; Kenny K; Broom A; MacArtney J; Good P
    Palliat Support Care; 2018 Aug; 16(4):396-405. PubMed ID: 28635585
    [TBL] [Abstract][Full Text] [Related]  

  • 18. Financial, opportunity and psychosocial costs of spinal muscular atrophy: an exploratory qualitative analysis of Australian carer perspectives.
    Farrar MA; Carey KA; Paguinto SG; Chambers G; Kasparian NA
    BMJ Open; 2018 May; 8(5):e020907. PubMed ID: 29794098
    [TBL] [Abstract][Full Text] [Related]  

  • 19. The supportive and palliative care needs of Australian families of children who die from cancer.
    Monterosso L; Kristjanson LJ; Phillips MB
    Palliat Med; 2009 Sep; 23(6):526-36. PubMed ID: 19351793
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Supportive and palliative care needs of families of children with life-threatening illnesses in Western Australia: evidence to guide the development of a palliative care service.
    Monterosso L; Kristjanson LJ; Aoun S; Phillips MB
    Palliat Med; 2007 Dec; 21(8):689-96. PubMed ID: 18073255
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 6.