These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

180 related articles for article (PubMed ID: 18197056)

  • 1. DNA data sharing: research participants' perspectives.
    McGuire AL; Hamilton JA; Lunstroth R; McCullough LB; Goldman A
    Genet Med; 2008 Jan; 10(1):46-53. PubMed ID: 18197056
    [TBL] [Abstract][Full Text] [Related]  

  • 2. To share or not to share: a randomized trial of consent for data sharing in genome research.
    McGuire AL; Oliver JM; Slashinski MJ; Graves JL; Wang T; Kelly PA; Fisher W; Lau CC; Goss J; Okcu M; Treadwell-Deering D; Goldman AM; Noebels JL; Hilsenbeck SG
    Genet Med; 2011 Nov; 13(11):948-55. PubMed ID: 21785360
    [TBL] [Abstract][Full Text] [Related]  

  • 3. Balancing the risks and benefits of genomic data sharing: genome research participants' perspectives.
    Oliver JM; Slashinski MJ; Wang T; Kelly PA; Hilsenbeck SG; McGuire AL
    Public Health Genomics; 2012; 15(2):106-14. PubMed ID: 22213783
    [TBL] [Abstract][Full Text] [Related]  

  • 4. Participants' recall and understanding of genomic research and large-scale data sharing.
    Robinson JO; Slashinski MJ; Wang T; Hilsenbeck SG; McGuire AL
    J Empir Res Hum Res Ethics; 2013 Oct; 8(4):42-52. PubMed ID: 24169421
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.
    Spencer K; Sanders C; Whitley EA; Lund D; Kaye J; Dixon WG
    J Med Internet Res; 2016 Apr; 18(4):e66. PubMed ID: 27083521
    [TBL] [Abstract][Full Text] [Related]  

  • 6. Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand.
    Cheah PY; Jatupornpimol N; Hanboonkunupakarn B; Khirikoekkong N; Jittamala P; Pukrittayakamee S; Day NPJ; Parker M; Bull S
    BMC Med Ethics; 2018 Nov; 19(1):86. PubMed ID: 30404642
    [TBL] [Abstract][Full Text] [Related]  

  • 7. Ethical and legal implications of whole genome and whole exome sequencing in African populations.
    Wright GE; Koornhof PG; Adeyemo AA; Tiffin N
    BMC Med Ethics; 2013 May; 14():21. PubMed ID: 23714101
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Systematic review of participants' attitudes towards data sharing: a thematic synthesis.
    Howe N; Giles E; Newbury-Birch D; McColl E
    J Health Serv Res Policy; 2018 Apr; 23(2):123-133. PubMed ID: 29653503
    [TBL] [Abstract][Full Text] [Related]  

  • 9. Fair Shares and Sharing Fairly: A Survey of Public Views on Open Science, Informed Consent and Participatory Research in Biobanking.
    Joly Y; Dalpé G; So D; Birko S
    PLoS One; 2015; 10(7):e0129893. PubMed ID: 26154134
    [TBL] [Abstract][Full Text] [Related]  

  • 10. Sharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences.
    Manhas KP; Dodd SX; Page S; Letourneau N; Adair CE; Cui X; Tough SC
    BMC Med Inform Decis Mak; 2018 Nov; 18(1):97. PubMed ID: 30419910
    [TBL] [Abstract][Full Text] [Related]  

  • 11. Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement.
    Jao I; Kombe F; Mwalukore S; Bull S; Parker M; Kamuya D; Molyneux S; Marsh V
    J Empir Res Hum Res Ethics; 2015 Jul; 10(3):264-77. PubMed ID: 26297748
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Researcher and study participants' perspectives of consent in clinical studies in four referral hospitals in Vietnam.
    Van Nuil JI; Nguyen TTT; Le Nguyen TN; Nguyen VVC; Chambers M; Ta TDN; Merson L; Nguyen TPD; Hoang MTV; Parker M; Bull S; Kestelyn E
    BMC Med Ethics; 2020 Jan; 21(1):4. PubMed ID: 31924199
    [TBL] [Abstract][Full Text] [Related]  

  • 13. Patient reactions to confidentiality, liability, and financial aspects of informed consent in cardiology research.
    Fortune-Greeley AK; Hardy NC; Lin L; Friedman JY; Lawlor JS; Muhlbaier LH; Hall MA; Schulman KA; Sugarman J; Weinfurt KP
    Circ Cardiovasc Qual Outcomes; 2010 Mar; 3(2):151-8. PubMed ID: 20233979
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Consent Issues in Genetic Research: Views of Research Participants.
    Goodman D; Johnson CO; Wenzel L; Bowen D; Condit C; Edwards KL
    Public Health Genomics; 2016; 19(4):220-8. PubMed ID: 27376949
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Expanding the boundaries of previously obtained informed consent in research: Views from participants in the Personalised Risk-based Mammascreening study.
    Lutomski JE; Rainey L; de Jong M; Manders P; Broeders MJM
    Health Expect; 2023 Jun; 26(3):1308-1317. PubMed ID: 37016478
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Adolescent and Parental Attitudes About Return of Genomic Research Results: Focus Group Findings Regarding Decisional Preferences.
    McGowan ML; Prows CA; DeJonckheere M; Brinkman WB; Vaughn L; Myers MF
    J Empir Res Hum Res Ethics; 2018 Oct; 13(4):371-382. PubMed ID: 29806518
    [TBL] [Abstract][Full Text] [Related]  

  • 17. Research participants' attitudes towards the confidentiality of genomic sequence information.
    Jamal L; Sapp JC; Lewis K; Yanes T; Facio FM; Biesecker LG; Biesecker BB
    Eur J Hum Genet; 2014 Aug; 22(8):964-8. PubMed ID: 24281371
    [TBL] [Abstract][Full Text] [Related]  

  • 18. Pediatric data sharing in genomic research: attitudes and preferences of parents.
    Burstein MD; Robinson JO; Hilsenbeck SG; McGuire AL; Lau CC
    Pediatrics; 2014 Apr; 133(4):690-7. PubMed ID: 24616359
    [TBL] [Abstract][Full Text] [Related]  

  • 19. Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
    Sanderson SC; Brothers KB; Mercaldo ND; Clayton EW; Antommaria AHM; Aufox SA; Brilliant MH; Campos D; Carrell DS; Connolly J; Conway P; Fullerton SM; Garrison NA; Horowitz CR; Jarvik GP; Kaufman D; Kitchner TE; Li R; Ludman EJ; McCarty CA; McCormick JB; McManus VD; Myers MF; Scrol A; Williams JL; Shrubsole MJ; Schildcrout JS; Smith ME; Holm IA
    Am J Hum Genet; 2017 Mar; 100(3):414-427. PubMed ID: 28190457
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study.
    Tekola F; Bull S; Farsides B; Newport MJ; Adeyemo A; Rotimi CN; Davey G
    BMC Med Ethics; 2009 Aug; 10():13. PubMed ID: 19698115
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 9.