172 related articles for article (PubMed ID: 21290186)
1. Parenting a child with phenylketonuria or galactosemia: implications for health-related quality of life.
ten Hoedt AE; Maurice-Stam H; Boelen CC; Rubio-Gozalbo ME; van Spronsen FJ; Wijburg FA; Bosch AM; Grootenhuis MA
J Inherit Metab Dis; 2011 Apr; 34(2):391-8. PubMed ID: 21290186
[TBL] [Abstract][Full Text] [Related]
2. Psychosocial functioning in children with phenylketonuria: Relationships between quality of life and parenting indicators.
Morawska A; Mitchell AE; Etel E; Kirby G; McGill J; Coman D; Inwood A
Child Care Health Dev; 2020 Jan; 46(1):56-65. PubMed ID: 31782540
[TBL] [Abstract][Full Text] [Related]
3. Health-related quality of life in children and adolescents with phenylketonuria: unimpaired HRQoL in patients but feared school failure in parents.
Thimm E; Schmidt LE; Heldt K; Spiekerkoetter U
J Inherit Metab Dis; 2013 Sep; 36(5):767-72. PubMed ID: 23296365
[TBL] [Abstract][Full Text] [Related]
4. Predicting health-related quality of life of parents of children with inherited metabolic diseases.
Hatzmann J; Valstar MJ; Bosch AM; Wijburg FA; Heymans HS; Grootenhuis MA
Acta Paediatr; 2009 Jul; 98(7):1205-10. PubMed ID: 19397532
[TBL] [Abstract][Full Text] [Related]
5. Quality of life and associated factors in parents of children with late diagnosed phenylketonuria. A cross sectional study in a developing country (Tunisia).
Ben Abdelaziz R; Ben Chehida A; Kachouri H; Ben Messaoud S; Ferchichi M; Ben Ameur Z; Sassi Y; Abdelmoula MS; Azzouz H; Tebib N
J Pediatr Endocrinol Metab; 2020 Jul; 33(7):901-913. PubMed ID: 32639944
[TBL] [Abstract][Full Text] [Related]
6. Evaluation of quality of life in PKU before and after introducing tetrahydrobiopterin (BH4); a prospective multi-center cohort study.
Demirdas S; Maurice-Stam H; Boelen CC; Hofstede FC; Janssen MC; Langendonk JG; Mulder MF; Rubio-Gozalbo ME; van Spronsen FJ; de Vries M; Grootenhuis MA; Bosch AM
Mol Genet Metab; 2013; 110 Suppl():S49-56. PubMed ID: 24100246
[TBL] [Abstract][Full Text] [Related]
7. Living situation, occupation and health-related quality of life in adult patients with classic galactosemia.
Hoffmann B; Dragano N; Schweitzer-Krantz S
J Inherit Metab Dis; 2012 Nov; 35(6):1051-8. PubMed ID: 22447152
[TBL] [Abstract][Full Text] [Related]
8. Development and psychometric validation of measures to assess the impact of phenylketonuria and its dietary treatment on patients' and parents' quality of life: the phenylketonuria - quality of life (PKU-QOL) questionnaires.
Regnault A; Burlina A; Cunningham A; Bettiol E; Moreau-Stucker F; Benmedjahed K; Bosch AM
Orphanet J Rare Dis; 2015 May; 10():59. PubMed ID: 25958326
[TBL] [Abstract][Full Text] [Related]
9. Assessment of the impact of phenylketonuria and its treatment on quality of life of patients and parents from seven European countries.
Bosch AM; Burlina A; Cunningham A; Bettiol E; Moreau-Stucker F; Koledova E; Benmedjahed K; Regnault A
Orphanet J Rare Dis; 2015 Jun; 10():80. PubMed ID: 26084935
[TBL] [Abstract][Full Text] [Related]
10. Psychological and psychosocial implications for parenting a child with phenylketonuria: a systematic review.
Borghi L; Salvatici E; Riva E; Giovannini M; Vegni EA
Minerva Pediatr; 2019 Apr; 71(2):181-195. PubMed ID: 28472877
[TBL] [Abstract][Full Text] [Related]
11. The impact of metabolic control and tetrahydrobiopterin treatment on health related quality of life of patients with early-treated phenylketonuria: A PKU-COBESO study.
Huijbregts SCJ; Bosch AM; Simons QA; Jahja R; Brouwers MCGJ; De Sonneville LMJ; De Vries MC; Hofstede FC; Hollak CEM; Janssen MCH; Langendonk JG; Rubio-Gozalbo ME; Van der Meere JJ; Van der Ploeg AT; Van Spronsen FJ
Mol Genet Metab; 2018 Sep; 125(1-2):96-103. PubMed ID: 30007854
[TBL] [Abstract][Full Text] [Related]
12. Remarkable differences: the course of life of young adults with galactosaemia and PKU.
Bosch AM; Maurice-Stam H; Wijburg FA; Grootenhuis MA
J Inherit Metab Dis; 2009 Dec; 32(6):706. PubMed ID: 19816786
[TBL] [Abstract][Full Text] [Related]
13. Parenting a Child with Phenylketonuria (PKU): an Interpretative Phenomenological Analysis (IPA) of the Experience of Parents.
Carpenter K; Wittkowski A; Hare DJ; Medford E; Rust S; Jones SA; Smith DM
J Genet Couns; 2018 Sep; 27(5):1074-1086. PubMed ID: 29468336
[TBL] [Abstract][Full Text] [Related]
14. Quality of life among parents of children with phenylketonuria (PKU).
Fidika A; Salewski C; Goldbeck L
Health Qual Life Outcomes; 2013 Mar; 11():54. PubMed ID: 23537423
[TBL] [Abstract][Full Text] [Related]
15. [Assessment of the life quality in children with phenylketonuria].
Bushueva TV; Vinyarskaya IV; Chernikov VV; Borovik TE; Kuzenkova LM
Vestn Ross Akad Med Nauk; 2014; (11-12):39-45. PubMed ID: 25971125
[TBL] [Abstract][Full Text] [Related]
16. Psychological wellbeing in parents of children with phenylketonuria and association with treatment adherence.
Borghi L; Salvatici E; Banderali G; Riva E; Giovannini M; Vegni E
Minerva Pediatr (Torino); 2021 Aug; 73(4):330-339. PubMed ID: 29651832
[TBL] [Abstract][Full Text] [Related]
17. A predictive model of Health Related Quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system.
Hatzmann J; Maurice-Stam H; Heymans HS; Grootenhuis MA
Health Qual Life Outcomes; 2009 Jul; 7():72. PubMed ID: 19638197
[TBL] [Abstract][Full Text] [Related]
18. Child and parental adaptation to pediatric stem cell transplantation.
Vrijmoet-Wiersma CM; Kolk AM; Grootenhuis MA; Spek EM; van Klink JM; Egeler RM; Bredius RG; Koopman HM
Support Care Cancer; 2009 Jun; 17(6):707-14. PubMed ID: 19050939
[TBL] [Abstract][Full Text] [Related]
19. The challenges of classical galactosemia: HRQoL in pediatric and adult patients.
Hermans ME; van Oers HA; Geurtsen GJ; Haverman L; Hollak CEM; Rubio-Gozalbo ME; Bosch AM
Orphanet J Rare Dis; 2023 Jun; 18(1):135. PubMed ID: 37268983
[TBL] [Abstract][Full Text] [Related]
20. [Psychological adjustment of children with phenylketonuria].
Jusiene R; Cimbalistiene L; Bieliauskaite R
Medicina (Kaunas); 2002; 38(4):424-30. PubMed ID: 12474792
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
