209 related articles for article (PubMed ID: 21463290)
1. Dravet syndrome and parent associations: the IDEA League experience with comorbid conditions, mortality, management, adaptation, and grief.
Skluzacek JV; Watts KP; Parsy O; Wical B; Camfield P
Epilepsia; 2011 Apr; 52 Suppl 2():95-101. PubMed ID: 21463290
[TBL] [Abstract][Full Text] [Related]
2. Family pediatrics: report of the Task Force on the Family.
Schor EL;
Pediatrics; 2003 Jun; 111(6 Pt 2):1541-71. PubMed ID: 12777595
[TBL] [Abstract][Full Text] [Related]
3. The impact of parent advocacy groups, the Internet, and social networking on rare diseases: the IDEA League and IDEA League United Kingdom example.
Black AP; Baker M
Epilepsia; 2011 Apr; 52 Suppl 2():102-4. PubMed ID: 21463291
[TBL] [Abstract][Full Text] [Related]
4. Overall management of patients with Dravet syndrome.
Ceulemans B
Dev Med Child Neurol; 2011 Apr; 53 Suppl 2():19-23. PubMed ID: 21504428
[TBL] [Abstract][Full Text] [Related]
5. Retrospective multiinstitutional study of the prevalence of early death in Dravet syndrome.
Sakauchi M; Oguni H; Kato I; Osawa M; Hirose S; Kaneko S; Takahashi Y; Takayama R; Fujiwara T
Epilepsia; 2011 Jun; 52(6):1144-9. PubMed ID: 21480880
[TBL] [Abstract][Full Text] [Related]
6. Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/hyperactivity disorder.
Klassen AF; Miller A; Fine S
Pediatrics; 2004 Nov; 114(5):e541-7. PubMed ID: 15520087
[TBL] [Abstract][Full Text] [Related]
7. Parents' assessment of quality of care and grief following a child's death.
Seecharan GA; Andresen EM; Norris K; Toce SS
Arch Pediatr Adolesc Med; 2004 Jun; 158(6):515-20. PubMed ID: 15184212
[TBL] [Abstract][Full Text] [Related]
8. Parental grief after losing a child to cancer: impact of professional and social support on long-term outcomes.
Kreicbergs UC; Lannen P; Onelov E; Wolfe J
J Clin Oncol; 2007 Aug; 25(22):3307-12. PubMed ID: 17664479
[TBL] [Abstract][Full Text] [Related]
9. Mortality in Dravet syndrome.
Cooper MS; Mcintosh A; Crompton DE; McMahon JM; Schneider A; Farrell K; Ganesan V; Gill D; Kivity S; Lerman-Sagie T; McLellan A; Pelekanos J; Ramesh V; Sadleir L; Wirrell E; Scheffer IE
Epilepsy Res; 2016 Dec; 128():43-47. PubMed ID: 27810515
[TBL] [Abstract][Full Text] [Related]
10. Coping with a child with Dravet syndrome: insights from families.
Nolan K; Camfield CS; Camfield PR
J Child Neurol; 2008 Jun; 23(6):690-4. PubMed ID: 18344453
[TBL] [Abstract][Full Text] [Related]
11. Coping with Dravet syndrome: parental experiences with a catastrophic epilepsy.
Nolan KJ; Camfield CS; Camfield PR
Dev Med Child Neurol; 2006 Sep; 48(9):761-5. PubMed ID: 16904024
[TBL] [Abstract][Full Text] [Related]
12. Mechanisms for variable expressivity of inherited SCN1A mutations causing Dravet syndrome.
Depienne C; Trouillard O; Gourfinkel-An I; Saint-Martin C; Bouteiller D; Graber D; Barthez-Carpentier MA; Gautier A; Villeneuve N; Dravet C; Livet MO; Rivier-Ringenbach C; Adam C; Dupont S; Baulac S; Héron D; Nabbout R; Leguern E
J Med Genet; 2010 Jun; 47(6):404-10. PubMed ID: 20522430
[TBL] [Abstract][Full Text] [Related]
13. A process for developing community consensus regarding the diagnosis and management of attention-deficit/hyperactivity disorder.
Foy JM; Earls MF
Pediatrics; 2005 Jan; 115(1):e97-104. PubMed ID: 15629972
[TBL] [Abstract][Full Text] [Related]
14. When a parent dies from cancer.
Buxbaum L; Brant JM
Clin J Oncol Nurs; 2001; 5(4):135-40. PubMed ID: 12690612
[TBL] [Abstract][Full Text] [Related]
15. Dravet syndrome: the long-term outcome.
Genton P; Velizarova R; Dravet C
Epilepsia; 2011 Apr; 52 Suppl 2():44-9. PubMed ID: 21463279
[TBL] [Abstract][Full Text] [Related]
16. After a child's death: factors related to parental bereavement.
Hazzard A; Weston J; Gutterres C
J Dev Behav Pediatr; 1992 Feb; 13(1):24-30. PubMed ID: 1556196
[TBL] [Abstract][Full Text] [Related]
17. Parental adjustment to intrapartum and delivery room loss. The role of a hospital-based support program.
Weiss L; Frischer L; Richman J
Clin Perinatol; 1989 Dec; 16(4):1009-19. PubMed ID: 2686885
[TBL] [Abstract][Full Text] [Related]
18. Electrical and autonomic cardiac function in patients with Dravet syndrome.
Delogu AB; Spinelli A; Battaglia D; Dravet C; De Nisco A; Saracino A; Romagnoli C; Lanza GA; Crea F
Epilepsia; 2011 Apr; 52 Suppl 2():55-8. PubMed ID: 21463281
[TBL] [Abstract][Full Text] [Related]
19. [The impact of a child's death on the family].
De Montigny F; Beaudet L; Dumas L
Can Nurse; 1996 Nov; 92(10):39-42. PubMed ID: 9095761
[TBL] [Abstract][Full Text] [Related]
20. Silenced voices: hearing the stories of parents bereaved through the suicide death of a young adult child.
Maple M; Edwards H; Plummer D; Minichiello V
Health Soc Care Community; 2010 May; 18(3):241-8. PubMed ID: 19793388
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
