161 related articles for article (PubMed ID: 23180262)
1. The use of newborn screening dried blood spots for research: the parental perspective.
Gong LM; Tu WJ; He J; Shi XD; Wang XY; Li Y
J Bioeth Inq; 2012 Jun; 9(2):189-93. PubMed ID: 23180262
[TBL] [Abstract][Full Text] [Related]
2. Not without my permission: parents' willingness to permit use of newborn screening samples for research.
Tarini BA; Goldenberg A; Singer D; Clark SJ; Butchart A; Davis MM
Public Health Genomics; 2010; 13(3):125-30. PubMed ID: 19602864
[TBL] [Abstract][Full Text] [Related]
3. Attitudes about the use of newborn dried blood spots for research: a survey of underrepresented parents.
Hendrix KS; Meslin EM; Carroll AE; Downs SM
Acad Pediatr; 2013; 13(5):451-7. PubMed ID: 24011748
[TBL] [Abstract][Full Text] [Related]
4. Using Newborn Screening Bloodspots for Research: Public Preferences for Policy Options.
Hayeems RZ; Miller FA; Barg CJ; Bombard Y; Cressman C; Painter-Main M; Wilson B; Little J; Allanson J; Avard D; Giguere Y; Chakraborty P; Carroll JC
Pediatrics; 2016 Jun; 137(6):. PubMed ID: 27244855
[TBL] [Abstract][Full Text] [Related]
5. Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.
Botkin JR; Rothwell E; Anderson RA; Rose NC; Dolan SM; Kuppermann M; Stark LA; Goldenberg A; Wong B
JAMA Pediatr; 2016 Jun; 170(6):543-9. PubMed ID: 27043416
[TBL] [Abstract][Full Text] [Related]
6. Research use of leftover newborn bloodspots: attitudes of Canadian geneticists regarding storage and informed consent requirements.
Richer J; Ghebremichael MS; Chudley AE; Robinson WM; Wilfond BS; Solomon MZ
Genet Med; 2011 Apr; 13(4):305-13. PubMed ID: 20921895
[TBL] [Abstract][Full Text] [Related]
7. From newborn screening to population health research: implementation of the Michigan BioTrust for health.
Langbo C; Bach J; Kleyn M; Downes FP
Public Health Rep; 2013; 128(5):377-84. PubMed ID: 23997284
[TBL] [Abstract][Full Text] [Related]
8. Information and consent for newborn screening: practices and attitudes of service providers.
Kerruish NJ; Webster D; Dickson N
J Med Ethics; 2008 Sep; 34(9):648-52. PubMed ID: 18757632
[TBL] [Abstract][Full Text] [Related]
9. Implementation of informed consent for a cystic fibrosis newborn screening program in France: low refusal rates for optional testing.
Dhondt JL
J Pediatr; 2005 Sep; 147(3 Suppl):S106-8. PubMed ID: 16202772
[TBL] [Abstract][Full Text] [Related]
10. Consent for newborn screening: the attitudes of health care providers.
Miller FA; Hayeems RZ; Carroll JC; Wilson B; Little J; Allanson J; Bytautas JP; Paynter M; Christensen R; Chaktraborty P
Public Health Genomics; 2010; 13(3):181-90. PubMed ID: 19776551
[TBL] [Abstract][Full Text] [Related]
11. An Assessment of a Shortened Consent Form for the Storage and Research Use of Residual Newborn Screening Blood Spots.
Rothwell E; Goldenberg A; Johnson E; Riches N; Tarini B; Botkin JR
J Empir Res Hum Res Ethics; 2017 Dec; 12(5):335-342. PubMed ID: 29073807
[TBL] [Abstract][Full Text] [Related]
12. Obtaining consent from both parents for pediatric research: what does "reasonably available" mean?
Nelson DK; Skinner D; Guarda S; Choudhury S; Sideris J; Barnum L; Ten Haagen K; Heyward Q; Bailey DB
Pediatrics; 2013 Jan; 131(1):e223-9. PubMed ID: 23266920
[TBL] [Abstract][Full Text] [Related]
13. The view of Hong Kong parents on secondary use of dried blood spots in newborn screening program.
Hui LL; Nelson EAS; Deng HB; Leung TY; Ho CH; Chong JSC; Fung GPG; Hui J; Lam HS
BMC Med Ethics; 2022 Nov; 23(1):105. PubMed ID: 36319979
[TBL] [Abstract][Full Text] [Related]
14. Public attitudes regarding the use of residual newborn screening specimens for research.
Botkin JR; Rothwell E; Anderson R; Stark L; Goldenberg A; Lewis M; Burbank M; Wong B
Pediatrics; 2012 Feb; 129(2):231-8. PubMed ID: 22250018
[TBL] [Abstract][Full Text] [Related]
15. Expanding the Australian Newborn Blood Spot Screening Program using genomic sequencing: do we want it and are we ready?
White S; Mossfield T; Fleming J; Barlow-Stewart K; Ghedia S; Dickson R; Richards F; Bombard Y; Wiley V
Eur J Hum Genet; 2023 Jun; 31(6):703-711. PubMed ID: 36935418
[TBL] [Abstract][Full Text] [Related]
16. The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots.
Rothwell E; Wong B; Anderson RA; Botkin JR
J Empir Res Hum Res Ethics; 2016 Jul; 11(3):231-6. PubMed ID: 27387457
[TBL] [Abstract][Full Text] [Related]
17. Storage and use of Newborn Screening Blood Specimens for Research: Assessing Public Opinion in Illinois.
Hart A; Petros M; Charrow J; Nash C; Wicklund C
J Genet Couns; 2015 Jun; 24(3):482-90. PubMed ID: 25410141
[TBL] [Abstract][Full Text] [Related]
18. Parental Consent for the Use of Residual Newborn Screening Bloodspots: Respecting Individual Liberty vs Ensuring Public Health.
Bayefsky MJ; Saylor KW; Berkman BE
JAMA; 2015 Jul; 314(1):21-2. PubMed ID: 26053685
[No Abstract] [Full Text] [Related]
19. Attitudes of parents of children with serious health conditions regarding residual bloodspot use.
Nagaraj CB; Rothwell E; Hart K; Latimer S; Schiffman JD; Botkin JR
Public Health Genomics; 2014; 17(3):141-8. PubMed ID: 24713606
[TBL] [Abstract][Full Text] [Related]
20. Parental Views on Expanded Newborn Screening Using Whole-Genome Sequencing.
Joseph G; Chen F; Harris-Wai J; Puck JM; Young C; Koenig BA
Pediatrics; 2016 Jan; 137 Suppl 1(Suppl 1):S36-46. PubMed ID: 26729702
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
