These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

167 related articles for article (PubMed ID: 23611924)

  • 21. Rare disease registries: potential applications towards impact on development of new drug treatments.
    Jansen-van der Weide MC; Gaasterland CMW; Roes KCB; Pontes C; Vives R; Sancho A; Nikolakopoulos S; Vermeulen E; van der Lee JH
    Orphanet J Rare Dis; 2018 Sep; 13(1):154. PubMed ID: 30185208
    [TBL] [Abstract][Full Text] [Related]  

  • 22. The project data sphere initiative: accelerating cancer research by sharing data.
    Green AK; Reeder-Hayes KE; Corty RW; Basch E; Milowsky MI; Dusetzina SB; Bennett AV; Wood WA
    Oncologist; 2015 May; 20(5):464-e20. PubMed ID: 25876994
    [TBL] [Abstract][Full Text] [Related]  

  • 23. A systematic overview of rare disease patient registries: challenges in design, quality management, and maintenance.
    Hageman IC; van Rooij IALM; de Blaauw I; Trajanovska M; King SK
    Orphanet J Rare Dis; 2023 May; 18(1):106. PubMed ID: 37147718
    [TBL] [Abstract][Full Text] [Related]  

  • 24. Data Quality in Rare Diseases Registries.
    Kodra Y; Posada de la Paz M; Coi A; Santoro M; Bianchi F; Ahmed F; Rubinstein YR; Weinbach J; Taruscio D
    Adv Exp Med Biol; 2017; 1031():149-164. PubMed ID: 29214570
    [TBL] [Abstract][Full Text] [Related]  

  • 25. Foundations of a metadata repository for databases of registers and trials.
    Stausberg J; Löbe M; Verplancke P; Drepper J; Herre H; Löffler M
    Stud Health Technol Inform; 2009; 150():409-13. PubMed ID: 19745342
    [TBL] [Abstract][Full Text] [Related]  

  • 26. [Patient registries for rare diseases in Germany: concept paper of the NAMSE strategy group].
    Storf H; Stausberg J; Kindle G; Quadder B; Schlangen M; Walter MC; Ückert F; Wagner TOF;
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2020 Jun; 63(6):761-770. PubMed ID: 32424556
    [TBL] [Abstract][Full Text] [Related]  

  • 27. The pooling of manpower and resources through the establishment of European reference networks and rare disease patient registries is a necessary area of collaboration for rare renal disorders.
    Parker S
    Nephrol Dial Transplant; 2014 Sep; 29 Suppl 4():iv9-14. PubMed ID: 25165190
    [TBL] [Abstract][Full Text] [Related]  

  • 28. How to design a registry for undiagnosed patients in the framework of rare disease diagnosis: suggestions on software, data set and coding system.
    Berger A; Rustemeier AK; Göbel J; Kadioglu D; Britz V; Schubert K; Mohnike K; Storf H; Wagner TOF
    Orphanet J Rare Dis; 2021 May; 16(1):198. PubMed ID: 33933089
    [TBL] [Abstract][Full Text] [Related]  

  • 29. The NCI All Ireland Cancer Conference.
    Johnston PG; Daly PA; Liu E
    Oncologist; 1999; 4(4):275-277. PubMed ID: 10545862
    [TBL] [Abstract][Full Text] [Related]  

  • 30. The effectiveness of internet-based e-learning on clinician behavior and patient outcomes: a systematic review protocol.
    Sinclair P; Kable A; Levett-Jones T
    JBI Database System Rev Implement Rep; 2015 Jan; 13(1):52-64. PubMed ID: 26447007
    [TBL] [Abstract][Full Text] [Related]  

  • 31. Design of a framework for the deployment of collaborative independent rare disease-centric registries: Gaucher disease registry model.
    Bellgard MI; Napier KR; Bittles AH; Szer J; Fletcher S; Zeps N; Hunter AA; Goldblatt J
    Blood Cells Mol Dis; 2018 Feb; 68():232-238. PubMed ID: 28190666
    [TBL] [Abstract][Full Text] [Related]  

  • 32. Implementing a Registry Federation for Materials Science Data Discovery.
    Plante RL; Becker CA; Medina-Smith A; Brady K; Dima A; Long B; Bartolo LM; Warren JA; Hanisch RJ
    Data Sci J; 2021; 20():. PubMed ID: 34795758
    [TBL] [Abstract][Full Text] [Related]  

  • 33. Patient registries: utility, validity and inference.
    Richesson R; Vehik K
    Adv Exp Med Biol; 2010; 686():87-104. PubMed ID: 20824441
    [TBL] [Abstract][Full Text] [Related]  

  • 34. Web resources for rare auto-inflammatory diseases: towards a common patient registry.
    Touitou I; Hentgen V; Koné-Paut I;
    Rheumatology (Oxford); 2009 Jun; 48(6):665-9. PubMed ID: 19321516
    [TBL] [Abstract][Full Text] [Related]  

  • 35. Establishing semantic interoperability of biomedical metadata registries using extended semantic relationships.
    Park YR; Yoon YJ; Kim HH; Kim JH
    Stud Health Technol Inform; 2013; 192():618-21. PubMed ID: 23920630
    [TBL] [Abstract][Full Text] [Related]  

  • 36. Determining the Suitability of Registries for Embedding Clinical Trials in the United States: A Project of the Clinical Trials Transformation Initiative.
    Mikita JS; Mitchel J; Gatto NM; Laschinger J; Tcheng JE; Zeitler EP; Swern AS; Flick ED; Dowd C; Lystig T; Calvert SB
    Ther Innov Regul Sci; 2021 Jan; 55(1):6-18. PubMed ID: 32572772
    [TBL] [Abstract][Full Text] [Related]  

  • 37. Integration of Cancer Registry Data into the Text Information Extraction System: Leveraging the Structured Data Import Tool.
    Linkov F; Silverstein JC; Davis M; Crocker B; Hao D; Schneider A; Schwenk M; Winters S; Zelnis J; Lee AV; Becich MJ
    J Pathol Inform; 2018; 9():47. PubMed ID: 30662793
    [TBL] [Abstract][Full Text] [Related]  

  • 38. Scoping review of the recommendations and guidance for improving the quality of rare disease registries.
    Tarride JE; Okoh A; Aryal K; Prada C; Milinkovic D; Keepanasseril A; Iorio A
    Orphanet J Rare Dis; 2024 May; 19(1):187. PubMed ID: 38711103
    [TBL] [Abstract][Full Text] [Related]  

  • 39. Unleashing the value of Common Data Elements through the CEDAR Workbench.
    O'Connor MJ; Warzel DB; Martínez-Romero M; Hardi J; Willrett D; Egyedi AL; Eftekhari A; Graybeal J; Musen MA
    AMIA Annu Symp Proc; 2019; 2019():681-690. PubMed ID: 32308863
    [No Abstract]   [Full Text] [Related]  

  • 40. A rare partnership: patient community and industry collaboration to shape the impact of real-world evidence on the rare disease ecosystem.
    Klein TL; Bender J; Bolton S; Collin-Histed T; Daher A; De Baere L; Dong D; Hopkin J; Johnson J; Lai T; Pavlou M; Schaller T; Žnidar I
    Orphanet J Rare Dis; 2024 Jul; 19(1):262. PubMed ID: 38987844
    [TBL] [Abstract][Full Text] [Related]  

    [Previous]   [Next]    [New Search]
    of 9.