74 related articles for article (PubMed ID: 24034967)
1. Managing misaligned paternity findings in research including sickle cell disease screening in Kenya: 'consulting communities' to inform policy.
Marsh V; Kombe F; Fitzpatrick R; Molyneux S; Parker M
Soc Sci Med; 2013 Nov; 96():192-9. PubMed ID: 24034967
[TBL] [Abstract][Full Text] [Related]
2. Consulting communities on feedback of genetic findings in international health research: sharing sickle cell disease and carrier information in coastal Kenya.
Marsh V; Kombe F; Fitzpatrick R; Williams TN; Parker M; Molyneux S
BMC Med Ethics; 2013 Oct; 14():41. PubMed ID: 24125465
[TBL] [Abstract][Full Text] [Related]
3. Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement.
Jao I; Kombe F; Mwalukore S; Bull S; Parker M; Kamuya D; Molyneux S; Marsh V
J Empir Res Hum Res Ethics; 2015 Jul; 10(3):264-77. PubMed ID: 26297748
[TBL] [Abstract][Full Text] [Related]
4. Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya.
Marsh VM; Kamuya DM; Mlamba AM; Williams TN; Molyneux SS
BMC Med Ethics; 2010 Jul; 11():13. PubMed ID: 20633282
[TBL] [Abstract][Full Text] [Related]
5. Beginning community engagement at a busy biomedical research programme: experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya.
Marsh V; Kamuya D; Rowa Y; Gikonyo C; Molyneux S
Soc Sci Med; 2008 Sep; 67(5):721-33. PubMed ID: 18375028
[TBL] [Abstract][Full Text] [Related]
6. Community involvement in developing policies for genetic testing: assessing the interests and experiences of individuals affected by genetic conditions.
Gollust SE; Apse K; Fuller BP; Miller PS; Biesecker BB
Am J Public Health; 2005 Jan; 95(1):35-41. PubMed ID: 15623855
[TBL] [Abstract][Full Text] [Related]
7. Questioning the consensus: managing carrier status results generated by newborn screening.
Miller FA; Robert JS; Hayeems RZ
Am J Public Health; 2009 Feb; 99(2):210-5. PubMed ID: 19059852
[TBL] [Abstract][Full Text] [Related]
8. When genomic medicine reveals misattributed genetic relationships-the debate about disclosure revisited.
Wright CF; Parker M; Lucassen AM
Genet Med; 2019 Jan; 21(1):97-101. PubMed ID: 29904162
[TBL] [Abstract][Full Text] [Related]
9. Working with Concepts: The Role of Community in International Collaborative Biomedical Research.
Marsh VM; Kamuya DK; Parker MJ; Molyneux CS
Public Health Ethics; 2011 Apr; 4(1):26-39. PubMed ID: 21416064
[TBL] [Abstract][Full Text] [Related]
10. A deliberative study of public attitudes towards sharing genomic data within NHS genomic medicine services in England.
Hassan L; Dalton A; Hammond C; Tully MP
Public Underst Sci; 2020 Oct; 29(7):702-717. PubMed ID: 32664786
[TBL] [Abstract][Full Text] [Related]
11. Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?
de Vries J; Jallow M; Williams TN; Kwiatkowski D; Parker M; Fitzpatrick R
Soc Sci Med; 2012 Oct; 75(8):1400-7. PubMed ID: 22749442
[TBL] [Abstract][Full Text] [Related]
12. Awareness, experiences and perceptions regarding genetic testing and the return of genetic and genomics results in a hypothetical research context among patients in Uganda: a qualitative study.
Ochieng J; Kwagala B; Barugahare J; Möller M; Moodley K
J Med Ethics; 2024 Jan; ():. PubMed ID: 38290855
[TBL] [Abstract][Full Text] [Related]
13. The ethics of unlinked anonymous testing of blood: views from in-depth interviews with key informants in four countries.
Kessel AS; Datta J; Wellings K; Perman S
BMJ Open; 2012; 2(6):. PubMed ID: 23263019
[TBL] [Abstract][Full Text] [Related]
14. Translational Research and Health Equity: Gene Therapies for Sickle Cell Disease as a Case Study.
Majumder MA; Fasipe T
Ethics Hum Res; 2024; 46(3):34-39. PubMed ID: 38629220
[TBL] [Abstract][Full Text] [Related]
15. Managing genetic information sharing at family and population level.
McNeill A
Eur J Hum Genet; 2024 Jan; 32(1):1-2. PubMed ID: 38185746
[No Abstract] [Full Text] [Related]
16. Research and Professional Literature to Inform Practice, November/December 2023.
Clark RRS; Burwell N; Louis MJ; Philips JA
J Midwifery Womens Health; 2023; 68(6):787-791. PubMed ID: 38087870
[No Abstract] [Full Text] [Related]
17. Feedback of individual genetic and genomics research results: A qualitative study involving grassroots communities in Uganda.
Ochieng J; Kwagala B; Barugahare J; Möller M; Moodley K
PLoS One; 2022; 17(11):e0267375. PubMed ID: 36399445
[TBL] [Abstract][Full Text] [Related]
18. Participants' Preferences and Reasons for Wanting Feedback of Individual Genetic Research Results From an HIV-TB Genomic Study: A Case Study From Botswana.
Ralefala D; Kasule M; Matshabane OP; Wonkam A; Matshaba M; de Vries J
J Empir Res Hum Res Ethics; 2021 Dec; 16(5):525-536. PubMed ID: 34662218
[TBL] [Abstract][Full Text] [Related]
19. Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research?
Ralefala D; Kasule M; Wonkam A; Matshaba M; de Vries J
BMC Med Ethics; 2020 Nov; 21(1):112. PubMed ID: 33148222
[TBL] [Abstract][Full Text] [Related]
20.
; ; . PubMed ID:
[No Abstract] [Full Text] [Related]
[Next] [New Search]