195 related articles for article (PubMed ID: 24306142)
1. Informing children of their newborn screening carrier result for sickle cell or cystic fibrosis: qualitative study of parents' intentions, views and support needs.
Ulph F; Cullinan T; Qureshi N; Kai J
J Genet Couns; 2014 Jun; 23(3):409-20. PubMed ID: 24306142
[TBL] [Abstract][Full Text] [Related]
2. Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice.
Kai J; Ulph F; Cullinan T; Qureshi N
Health Technol Assess; 2009 Nov; 13(57):1-82, iii. PubMed ID: 19948087
[TBL] [Abstract][Full Text] [Related]
3. Parents' responses to receiving sickle cell or cystic fibrosis carrier results for their child following newborn screening.
Ulph F; Cullinan T; Qureshi N; Kai J
Eur J Hum Genet; 2015 Apr; 23(4):459-65. PubMed ID: 25005733
[TBL] [Abstract][Full Text] [Related]
4. Parents' Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease.
Chudleigh J; Buckingham S; Dignan J; O'Driscoll S; Johnson K; Rees D; Wyatt H; Metcalfe A
J Genet Couns; 2016 Dec; 25(6):1215-1226. PubMed ID: 27098418
[TBL] [Abstract][Full Text] [Related]
5. Genetic counseling and neonatal screening for cystic fibrosis: an assessment of the communication process.
Ciske DJ; Haavisto A; Laxova A; Rock LZ; Farrell PM
Pediatrics; 2001 Apr; 107(4):699-705. PubMed ID: 11335747
[TBL] [Abstract][Full Text] [Related]
6. Imparting carrier status results detected by universal newborn screening for sickle cell and cystic fibrosis in England: a qualitative study of current practice and policy challenges.
Parker H; Qureshi N; Ulph F; Kai J
BMC Health Serv Res; 2007 Dec; 7():203. PubMed ID: 18078504
[TBL] [Abstract][Full Text] [Related]
7. Disclosing to parents newborn carrier status identified by routine blood spot screening.
Oliver S; Dezateux C; Kavanagh J; Lempert T; Stewart R
Cochrane Database Syst Rev; 2004 Oct; (4):CD003859. PubMed ID: 15495068
[TBL] [Abstract][Full Text] [Related]
8. Experience with Parent Follow-Up for Communication Outcomes after Newborn Screening Identifies Carrier Status.
Farrell MH; La Pean Kirschner A; Tluczek A; Farrell PM
J Pediatr; 2020 Sep; 224():37-43.e2. PubMed ID: 32386871
[TBL] [Abstract][Full Text] [Related]
9. Vulnerable Child Syndrome and Newborn Screening Carrier Results for Cystic Fibrosis or Sickle Cell.
Farrell MH; Sims AM; La Pean Kirschner A; Farrell PM; Tarini BA
J Pediatr; 2020 Sep; 224():44-50.e1. PubMed ID: 32826027
[TBL] [Abstract][Full Text] [Related]
10. Frequency of high-quality communication behaviors used by primary care providers of heterozygous infants after newborn screening.
Farrell MH; Christopher SA
Patient Educ Couns; 2013 Feb; 90(2):226-32. PubMed ID: 23194821
[TBL] [Abstract][Full Text] [Related]
11. Improving communication between doctors and parents after newborn screening.
Farrell MH; Christopher SA; Tluczek A; Kennedy-Parker K; La Pean A; Eskra K; Collins J; Hoffman G; Panepinto J; Farrell PM
WMJ; 2011 Oct; 110(5):221-7. PubMed ID: 22164579
[TBL] [Abstract][Full Text] [Related]
12. Improving the quality of physician communication with rapid-throughput analysis and report cards.
Farrell MH; Christopher SA; La Pean Kirschner A; Roedl SJ; O'Tool FO; Ahmad NY; Farrell PM
Patient Educ Couns; 2014 Nov; 97(2):248-55. PubMed ID: 25224315
[TBL] [Abstract][Full Text] [Related]
13. Provision of information about newborn screening antenatally: a sequential exploratory mixed-methods project.
Ulph F; Wright S; Dharni N; Payne K; Bennett R; Roberts S; Walshe K; Lavender T
Health Technol Assess; 2017 Oct; 21(55):1-240. PubMed ID: 28967862
[TBL] [Abstract][Full Text] [Related]
14. Communication with children about sickle cell disease: A qualitative study of parent experience.
Middleton J; Calam R; Ulph F
Br J Health Psychol; 2018 Sep; 23(3):685-700. PubMed ID: 29885041
[TBL] [Abstract][Full Text] [Related]
15. Primary care providers' experiences notifying parents of cystic fibrosis newborn screening results.
Finan C; Nasr SZ; Rothwell E; Tarini BA
Clin Pediatr (Phila); 2015 Jan; 54(1):67-75. PubMed ID: 25104730
[TBL] [Abstract][Full Text] [Related]
16. Breaking the diagnosis of cystic fibrosis to parents: A process not a one-off event.
Bryon M
Paediatr Respir Rev; 2020 Sep; 35():103-105. PubMed ID: 32409170
[TBL] [Abstract][Full Text] [Related]
17. Parental attitudes to the identification of their infants as carriers of cystic fibrosis by newborn screening.
Lewis S; Curnow L; Ross M; Massie J
J Paediatr Child Health; 2006 Sep; 42(9):533-7. PubMed ID: 16925540
[TBL] [Abstract][Full Text] [Related]
18. A systematic review of the effects of disclosing carrier results generated through newborn screening.
Hayeems RZ; Bytautas JP; Miller FA
J Genet Couns; 2008 Dec; 17(6):538-49. PubMed ID: 18956236
[TBL] [Abstract][Full Text] [Related]
19. To know or not to know, disclosure of a newborn carrier screening test result for cystic fibrosis.
Vernooij-van Langen AM; Reijntjens S; van der Pal SM; Loeber JG; Dompeling E; Dankert-Roelse JE
Eur J Med Genet; 2013 Apr; 56(4):192-6. PubMed ID: 23352994
[TBL] [Abstract][Full Text] [Related]
20. Parents' Experiences and Needs Regarding Infant Sickle Cell Trait Results.
Sims AM; Cromartie SJ; Gessner L; Campbell A; Coker T; Wang CJ; Tarini BA
Pediatrics; 2022 May; 149(5):. PubMed ID: 35441211
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
