170 related articles for article (PubMed ID: 24552652)
1. Legal agreements and the governance of research commons: lessons from materials sharing in mouse genomics.
Mishra A; Bubela T
OMICS; 2014 Apr; 18(4):254-73. PubMed ID: 24552652
[TBL] [Abstract][Full Text] [Related]
2. Sustaining large-scale infrastructure to promote pre-competitive biomedical research: lessons from mouse genomics.
Mishra A; Schofield PN; Bubela TM
N Biotechnol; 2016 Mar; 33(2):280-94. PubMed ID: 26563511
[TBL] [Abstract][Full Text] [Related]
3. Sharing with Strangers: Governance Models for Borderless Genomic Research in a Territorial World.
Juengst ET; Meslin EM
Kennedy Inst Ethics J; 2019; 29(1):67-95. PubMed ID: 31080178
[TBL] [Abstract][Full Text] [Related]
4. Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure.
Murtagh MJ; Blell MT; Butters OW; Cowley L; Dove ES; Goodman A; Griggs RL; Hall A; Hallowell N; Kumari M; Mangino M; Maughan B; Mills MC; Minion JT; Murphy T; Prior G; Suderman M; Ring SM; Rogers NT; Roberts SJ; Van der Straeten C; Viney W; Wiltshire D; Wong A; Walker N; Burton PR
Hum Genomics; 2018 Apr; 12(1):24. PubMed ID: 29695297
[TBL] [Abstract][Full Text] [Related]
5. Balancing the local and the universal in maintaining ethical access to a genomics biobank.
Heeney C; Kerr SM
BMC Med Ethics; 2017 Dec; 18(1):80. PubMed ID: 29282045
[TBL] [Abstract][Full Text] [Related]
6. Public variant databases: liability?
Thorogood A; Cook-Deegan R; Knoppers BM
Genet Med; 2017 Jul; 19(7):838-841. PubMed ID: 27977006
[TBL] [Abstract][Full Text] [Related]
7. Use and misuse of material transfer agreements: lessons in proportionality from research, repositories, and litigation.
Bubela T; Guebert J; Mishra A
PLoS Biol; 2015 Feb; 13(2):e1002060. PubMed ID: 25646804
[TBL] [Abstract][Full Text] [Related]
8. The tension between data sharing and the protection of privacy in genomics research.
Kaye J
Annu Rev Genomics Hum Genet; 2012; 13():415-31. PubMed ID: 22404490
[TBL] [Abstract][Full Text] [Related]
9. The IKMC web portal: a central point of entry to data and resources from the International Knockout Mouse Consortium.
Ringwald M; Iyer V; Mason JC; Stone KR; Tadepally HD; Kadin JA; Bult CJ; Eppig JT; Oakley DJ; Briois S; Stupka E; Maselli V; Smedley D; Liu S; Hansen J; Baldock R; Hicks GG; Skarnes WC
Nucleic Acids Res; 2011 Jan; 39(Database issue):D849-55. PubMed ID: 20929875
[TBL] [Abstract][Full Text] [Related]
10. Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).
Joly Y; Dove ES; Knoppers BM; Bobrow M; Chalmers D
PLoS Comput Biol; 2012; 8(7):e1002549. PubMed ID: 22807659
[No Abstract] [Full Text] [Related]
11. INFRAFRONTIER: a European resource for studying the functional basis of human disease.
Raess M; de Castro AA; Gailus-Durner V; Fessele S; Hrabě de Angelis M;
Mamm Genome; 2016 Aug; 27(7-8):445-50. PubMed ID: 27262858
[TBL] [Abstract][Full Text] [Related]
12. Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.
Kaye J; Briceño Moraia L; Mitchell C; Bell J; Bovenberg JA; Tassé AM; Knoppers BM
Biopreserv Biobank; 2016 Jun; 14(3):201-6. PubMed ID: 27183185
[TBL] [Abstract][Full Text] [Related]
13. The Bermuda Triangle: The Pragmatics, Policies, and Principles for Data Sharing in the History of the Human Genome Project.
Maxson Jones K; Ankeny RA; Cook-Deegan R
J Hist Biol; 2018 Dec; 51(4):693-805. PubMed ID: 30390178
[TBL] [Abstract][Full Text] [Related]
14. Benefit sharing: an exploration on the contextual discourse of a changing concept.
Dauda B; Dierickx K
BMC Med Ethics; 2013 Sep; 14():36. PubMed ID: 24028325
[TBL] [Abstract][Full Text] [Related]
15. Moving beyond Bermuda: sharing data to build a medical information commons.
Cook-Deegan R; McGuire AL
Genome Res; 2017 Jun; 27(6):897-901. PubMed ID: 28373484
[TBL] [Abstract][Full Text] [Related]
16. We need to think about data governance for dementia research in a digital era.
Milne R; Brayne C
Alzheimers Res Ther; 2020 Jan; 12(1):17. PubMed ID: 32005135
[TBL] [Abstract][Full Text] [Related]
17. Genomics education for the public: perspectives of genomic researchers and ELSI advisors.
Dressler LG; Jones SS; Markey JM; Byerly KW; Roberts MC
Genet Test Mol Biomarkers; 2014 Mar; 18(3):131-40. PubMed ID: 24495163
[TBL] [Abstract][Full Text] [Related]
18. The International Mouse Phenotyping Consortium Web Portal, a unified point of access for knockout mice and related phenotyping data.
Koscielny G; Yaikhom G; Iyer V; Meehan TF; Morgan H; Atienza-Herrero J; Blake A; Chen CK; Easty R; Di Fenza A; Fiegel T; Grifiths M; Horne A; Karp NA; Kurbatova N; Mason JC; Matthews P; Oakley DJ; Qazi A; Regnart J; Retha A; Santos LA; Sneddon DJ; Warren J; Westerberg H; Wilson RJ; Melvin DG; Smedley D; Brown SD; Flicek P; Skarnes WC; Mallon AM; Parkinson H
Nucleic Acids Res; 2014 Jan; 42(Database issue):D802-9. PubMed ID: 24194600
[TBL] [Abstract][Full Text] [Related]
19. Key Implications of Data Sharing in Pediatric Genomics.
Rahimzadeh V; Schickhardt C; Knoppers BM; Sénécal K; Vears DF; Fernandez CV; Pfister S; Plon S; Terry S; Williams J; Williams MS; Cornel M; Friedman JM
JAMA Pediatr; 2018 May; 172(5):476-481. PubMed ID: 29554172
[TBL] [Abstract][Full Text] [Related]
20. Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.
de Vries J; Munung SN; Matimba A; McCurdy S; Ouwe Missi Oukem-Boyer O; Staunton C; Yakubu A; Tindana P;
BMC Med Ethics; 2017 Feb; 18(1):8. PubMed ID: 28153006
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
