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7. The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry. Knapp EA; Fink AK; Goss CH; Sewall A; Ostrenga J; Dowd C; Elbert A; Petren KM; Marshall BC Ann Am Thorac Soc; 2016 Jul; 13(7):1173-9. PubMed ID: 27078236 [TBL] [Abstract][Full Text] [Related]
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12. Using disease registries for pharmacoepidemiological research: a case study of data from a cystic fibrosis registry. Strobl J; Enzer I; Bagust A; Haycox A; Smyth R; Ashby D; Walley T Pharmacoepidemiol Drug Saf; 2003 Sep; 12(6):467-73. PubMed ID: 14513660 [TBL] [Abstract][Full Text] [Related]
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14. Changing epidemiology of the respiratory bacteriology of patients with cystic fibrosis-data from the European cystic fibrosis society patient registry. Hatziagorou E; Orenti A; Drevinek P; Kashirskaya N; Mei-Zahav M; De Boeck K; ; J Cyst Fibros; 2020 May; 19(3):376-383. PubMed ID: 31492646 [TBL] [Abstract][Full Text] [Related]
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