These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.
183 related articles for article (PubMed ID: 25797358)
1. NIH/NCATS/GRDR® Common Data Elements: A leading force for standardized data collection. Rubinstein YR; McInnes P Contemp Clin Trials; 2015 May; 42():78-80. PubMed ID: 25797358 [TBL] [Abstract][Full Text] [Related]
2. FAIR data sharing: The roles of common data elements and harmonization. Kush RD; Warzel D; Kush MA; Sherman A; Navarro EA; Fitzmartin R; Pétavy F; Galvez J; Becnel LB; Zhou FL; Harmon N; Jauregui B; Jackson T; Hudson L J Biomed Inform; 2020 Jul; 107():103421. PubMed ID: 32407878 [TBL] [Abstract][Full Text] [Related]
3. Preparing Data at the Source to Foster Interoperability across Rare Disease Resources. Roos M; López Martin E; Wilkinson MD Adv Exp Med Biol; 2017; 1031():165-179. PubMed ID: 29214571 [TBL] [Abstract][Full Text] [Related]
4. Common data elements for clinical research in mitochondrial disease: a National Institute for Neurological Disorders and Stroke project. Karaa A; Rahman S; Lombès A; Yu-Wai-Man P; Sheikh MK; Alai-Hansen S; Cohen BH; Dimmock D; Emrick L; Falk MJ; McCormack S; Mirsky D; Moore T; Parikh S; Shoffner J; Taivassalo T; Tarnopolsky M; Tein I; Odenkirchen JC; Goldstein A; J Inherit Metab Dis; 2017 May; 40(3):403-414. PubMed ID: 28303425 [TBL] [Abstract][Full Text] [Related]
5. Common Data Elements for Concussion in Tertiary Care: Phase One in Ontario. Hunt C; Michalak A; Ouchterlony D; Marshall S; Masanic C; Vaidyanath C; Bhalerao S; Cusimano MD; Quon D; Fischer LK; Baker A Can J Neurol Sci; 2017 Nov; 44(6):676-683. PubMed ID: 29391082 [TBL] [Abstract][Full Text] [Related]
6. A common data language for clinical research studies: the National Institute of Neurological Disorders and Stroke and American Academy for Cerebral Palsy and Developmental Medicine Cerebral Palsy Common Data Elements Version 1.0 recommendations. Schiariti V; Fowler E; Brandenburg JE; Levey E; Mcintyre S; Sukal-Moulton T; Ramey SL; Rose J; Sienko S; Stashinko E; Vogtle L; Feldman RS; Koenig JI Dev Med Child Neurol; 2018 Oct; 60(10):976-986. PubMed ID: 29542813 [TBL] [Abstract][Full Text] [Related]
7. NINDS Common Data Elements for Congenital Muscular Dystrophy Clinical Research: A National Institute for Neurological Disorders and Stroke Project. Lawlor MW; Iannaccone ST; Mathews K; Muntoni F; Alai-Hansen S; Odenkirchen JC; S Feldman R; J Neuromuscul Dis; 2018; 5(1):75-84. PubMed ID: 29480213 [TBL] [Abstract][Full Text] [Related]
8. Data Quality in Rare Diseases Registries. Kodra Y; Posada de la Paz M; Coi A; Santoro M; Bianchi F; Ahmed F; Rubinstein YR; Weinbach J; Taruscio D Adv Exp Med Biol; 2017; 1031():149-164. PubMed ID: 29214570 [TBL] [Abstract][Full Text] [Related]
9. A methodology for a minimum data set for rare diseases to support national centers of excellence for healthcare and research. Choquet R; Maaroufi M; de Carrara A; Messiaen C; Luigi E; Landais P J Am Med Inform Assoc; 2015 Jan; 22(1):76-85. PubMed ID: 25038198 [TBL] [Abstract][Full Text] [Related]
10. Challenges to the Standardization of Trauma Data Collection in Burn, Traumatic Brain Injury, Spinal Cord Injury, and Other Trauma Populations: A Call for Common Data Elements for Acute and Longitudinal Trauma Databases. Simko LC; Chen L; Amtmann D; Gibran N; Herndon D; Kowalske K; Miller AC; Bulger E; Friedman R; Wolfe A; Chung KK; Mosier M; Jeng J; Giacino J; Zafonte R; Kazis LE; Schneider JC; Ryan CM Arch Phys Med Rehabil; 2019 May; 100(5):891-898. PubMed ID: 31030731 [TBL] [Abstract][Full Text] [Related]
11. Creating a global rare disease patient registry linked to a rare diseases biorepository database: Rare Disease-HUB (RD-HUB). Rubinstein YR; Groft SC; Bartek R; Brown K; Christensen RA; Collier E; Farber A; Farmer J; Ferguson JH; Forrest CB; Lockhart NC; McCurdy KR; Moore H; Pollen GB; Richesson R; Miller VR; Hull S; Vaught J Contemp Clin Trials; 2010 Sep; 31(5):394-404. PubMed ID: 20609392 [TBL] [Abstract][Full Text] [Related]
12. Unleashing the value of Common Data Elements through the CEDAR Workbench. O'Connor MJ; Warzel DB; Martínez-Romero M; Hardi J; Willrett D; Egyedi AL; Eftekhari A; Graybeal J; Musen MA AMIA Annu Symp Proc; 2019; 2019():681-690. PubMed ID: 32308863 [No Abstract] [Full Text] [Related]
13. Rare Disease Biospecimens and Patient Registries: Interoperability for Research Promotion, a European Example: EuroBioBank and SpainRDR-BioNER. Rubinstein YR; Posada de la Paz M; Mora M Adv Exp Med Biol; 2017; 1031():141-147. PubMed ID: 29214569 [TBL] [Abstract][Full Text] [Related]
14. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Grinnon ST; Miller K; Marler JR; Lu Y; Stout A; Odenkirchen J; Kunitz S Clin Trials; 2012 Jun; 9(3):322-9. PubMed ID: 22371630 [TBL] [Abstract][Full Text] [Related]
15. Feasibility of Combining Common Data Elements Across Studies to Test a Hypothesis. Corwin EJ; Moore SM; Plotsky A; Heitkemper MM; Dorsey SG; Waldrop-Valverde D; Bailey DE; Docherty SL; Whitney JD; Musil CM; Dougherty CM; McCloskey DJ; Austin JK; Grady PA J Nurs Scholarsh; 2017 May; 49(3):249-258. PubMed ID: 28231416 [TBL] [Abstract][Full Text] [Related]
16. Semantic modelling of common data elements for rare disease registries, and a prototype workflow for their deployment over registry data. Kaliyaperumal R; Wilkinson MD; Moreno PA; Benis N; Cornet R; Dos Santos Vieira B; Dumontier M; Bernabé CH; Jacobsen A; Le Cornec CMA; Godoy MP; Queralt-Rosinach N; Schultze Kool LJ; Swertz MA; van Damme P; van der Velde KJ; Lalout N; Zhang S; Roos M J Biomed Semantics; 2022 Mar; 13(1):9. PubMed ID: 35292119 [TBL] [Abstract][Full Text] [Related]
17. Common data elements for preclinical epilepsy research: Standards for data collection and reporting. A TASK3 report of the AES/ILAE Translational Task Force of the ILAE. Harte-Hargrove LC; French JA; Pitkänen A; Galanopoulou AS; Whittemore V; Scharfman HE Epilepsia; 2017 Nov; 58 Suppl 4(Suppl 4):78-86. PubMed ID: 29105074 [TBL] [Abstract][Full Text] [Related]
18. Standardizing, harmonizing, and protecting data collection to broaden the impact of COVID-19 research: the rapid acceleration of diagnostics-underserved populations (RADx-UP) initiative. Carrillo GA; Cohen-Wolkowiez M; D'Agostino EM; Marsolo K; Wruck LM; Johnson L; Topping J; Richmond A; Corbie G; Kibbe WA J Am Med Inform Assoc; 2022 Aug; 29(9):1480-1488. PubMed ID: 35678579 [TBL] [Abstract][Full Text] [Related]
19. Rare Diseases: Joining Mainstream Research and Treatment Based on Reliable Epidemiological Data. Groft SC; Posada de la Paz M Adv Exp Med Biol; 2017; 1031():3-21. PubMed ID: 29214563 [TBL] [Abstract][Full Text] [Related]