These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.
244 related articles for article (PubMed ID: 25959710)
1. The supportive care needs of parents caring for a child with a rare disease: A scoping review. Pelentsov LJ; Laws TA; Esterman AJ Disabil Health J; 2015 Oct; 8(4):475-91. PubMed ID: 25959710 [TBL] [Abstract][Full Text] [Related]
2. The supportive care needs of parents with a child with a rare disease: results of an online survey. Pelentsov LJ; Fielder AL; Laws TA; Esterman AJ BMC Fam Pract; 2016 Jul; 17():88. PubMed ID: 27439905 [TBL] [Abstract][Full Text] [Related]
3. Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions. Kirk S; Fallon D; Fraser C; Robinson G; Vassallo G Child Care Health Dev; 2015 Mar; 41(2):303-13. PubMed ID: 25039833 [TBL] [Abstract][Full Text] [Related]
4. The Supportive Care Needs of Parents With a Child With a Rare Disease: A Qualitative Descriptive Study. Pelentsov LJ; Fielder AL; Esterman AJ J Pediatr Nurs; 2016; 31(3):e207-18. PubMed ID: 26651231 [TBL] [Abstract][Full Text] [Related]
5. The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review. DeHoff BA; Staten LK; Rodgers RC; Denne SC J Med Internet Res; 2016 Dec; 18(12):e333. PubMed ID: 28007689 [TBL] [Abstract][Full Text] [Related]
6. Family-oriented services in pediatric rehabilitation: a scoping review and framework to promote parent and family wellness. King G; Williams L; Hahn Goldberg S Child Care Health Dev; 2017 May; 43(3):334-347. PubMed ID: 28083952 [TBL] [Abstract][Full Text] [Related]
7. Understanding the supportive care needs of parents of children with cancer: an approach to local needs assessment. Kerr LM; Harrison MB; Medves J; Tranmer JE; Fitch MI J Pediatr Oncol Nurs; 2007; 24(5):279-93. PubMed ID: 17827494 [TBL] [Abstract][Full Text] [Related]
8. Stress and well-being among parents of children with rare diseases: a prospective intervention study. Dellve L; Samuelsson L; Tallborn A; Fasth A; Hallberg LR J Adv Nurs; 2006 Feb; 53(4):392-402. PubMed ID: 16448482 [TBL] [Abstract][Full Text] [Related]
9. Assessing the supportive care needs of parents with a child with a bleeding disorder using the Parental Needs Scale for Rare Diseases (PNS-RD): A single-centre pilot study. Khair K; Pelentsov L Haemophilia; 2019 Sep; 25(5):831-837. PubMed ID: 31359552 [TBL] [Abstract][Full Text] [Related]
10. What do parents need to enhance participation of their school-aged child with a physical disability? A cross-sectional study in the Netherlands. Piškur B; Beurskens AJ; Jongmans MJ; Ketelaar M; Smeets RJ Child Care Health Dev; 2015 Jan; 41(1):84-92. PubMed ID: 24797584 [TBL] [Abstract][Full Text] [Related]
11. Quality of Life in Children With Chronic Health Conditions and Its Contribution to Unmet Supportive Care Needs of Families. Thomas S; Ryan NP; Byrne LK; Hendrieckx C; White V Child Care Health Dev; 2024 Nov; 50(6):e13336. PubMed ID: 39384552 [TBL] [Abstract][Full Text] [Related]
12. Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review. Oh J; Kim JA J Clin Nurs; 2017 Dec; 26(23-24):4129-4152. PubMed ID: 28681543 [TBL] [Abstract][Full Text] [Related]
13. The supportive care needs of individuals recovering from first episode psychosis: A scoping review. Davies EL; Gordon AL; Pelentsov LJ; Esterman AJ Perspect Psychiatr Care; 2019 Jan; 55(1):6-14. PubMed ID: 29427510 [TBL] [Abstract][Full Text] [Related]
15. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home. Carnevale FA; Alexander E; Davis M; Rennick J; Troini R Pediatrics; 2006 Jan; 117(1):e48-60. PubMed ID: 16396848 [TBL] [Abstract][Full Text] [Related]
16. Family pediatrics: report of the Task Force on the Family. Schor EL; Pediatrics; 2003 Jun; 111(6 Pt 2):1541-71. PubMed ID: 12777595 [TBL] [Abstract][Full Text] [Related]
17. Support requirements of parents caring for a child with disability and complex health needs. Whiting M Nurs Child Young People; 2014 May; 26(4):24-7. PubMed ID: 24805033 [TBL] [Abstract][Full Text] [Related]
18. "It is like a jungle gym, and everything is under construction": The parent's perspective of caring for a child with a rare disease. Currie G; Szabo J Child Care Health Dev; 2019 Jan; 45(1):96-103. PubMed ID: 30370696 [TBL] [Abstract][Full Text] [Related]
19. Social isolation and exclusion: the parents' experience of caring for children with rare neurodevelopmental disorders. Currie G; Szabo J Int J Qual Stud Health Well-being; 2020 Dec; 15(1):1725362. PubMed ID: 32048917 [No Abstract] [Full Text] [Related]
20. Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers. Rahi JS; Manaras I; Tuomainen H; Hundt GL Pediatrics; 2004 Oct; 114(4):e477-82. PubMed ID: 15466074 [TBL] [Abstract][Full Text] [Related] [Next] [New Search]