173 related articles for article (PubMed ID: 27001554)
1. The Role of Appearance in Adolescents' Experiences of Neurofibromatosis Type 1: A Survey of Young People and Parents.
Barke J; Coad J; Harcourt D
J Genet Couns; 2016 Oct; 25(5):1054-62. PubMed ID: 27001554
[TBL] [Abstract][Full Text] [Related]
2. 'It's like a bag of pick and mix--you don't know what you are going to get': young people's experience of neurofibromatosis Type 1.
Barke J; Harcourt D; Coad J
J Adv Nurs; 2014 Jul; 70(7):1594-603. PubMed ID: 24261571
[TBL] [Abstract][Full Text] [Related]
3. Appearance concerns among women with neurofibromatosis: examining sexual/bodily and social self-consciousness.
Smith KB; Wang DL; Plotkin SR; Park ER
Psychooncology; 2013 Dec; 22(12):2711-9. PubMed ID: 23873824
[TBL] [Abstract][Full Text] [Related]
4. Psychosocial functioning, self-image, and quality of life in children and adolescents with neurofibromatosis type 1.
Cipolletta S; Spina G; Spoto A
Child Care Health Dev; 2018 Mar; 44(2):260-268. PubMed ID: 28776749
[TBL] [Abstract][Full Text] [Related]
5. Children's at Home: Pilot Study Assessing Dedicated Social Media for Parents of Adolescents with Neurofibromatosis Type 1.
Akre C; Polvinen J; Ullrich NJ; Rich M
J Genet Couns; 2018 Apr; 27(2):505-517. PubMed ID: 29383545
[TBL] [Abstract][Full Text] [Related]
6. Perception of disease severity in adolescents diagnosed with neurofibromatosis type 1.
Sebold CD; Lovell A; Hopkin R; Noll R; Schorry E
J Adolesc Health; 2004 Oct; 35(4):297-302. PubMed ID: 15450543
[TBL] [Abstract][Full Text] [Related]
7. Attitudes about internet support groups among adolescents and young adults with neurofibromatosis type 1 and their parents.
Martin S; Wolters PL; Baldwin A; Roderick MC; Toledo-Tamula MA; Gillespie A; Widemann B
J Genet Couns; 2014 Oct; 23(5):796-804. PubMed ID: 24469442
[TBL] [Abstract][Full Text] [Related]
8. Knowledge and Self-Esteem of Individuals with Neurofibromatosis Type 1 (NF1).
Rosnau K; Hashmi SS; Northrup H; Slopis J; Noblin S; Ashfaq M
J Genet Couns; 2017 Jun; 26(3):620-627. PubMed ID: 27815662
[TBL] [Abstract][Full Text] [Related]
9. The self-concept of children and adolescents with neurofibromatosis type 1.
Barton B; North K
Child Care Health Dev; 2007 Jul; 33(4):401-8. PubMed ID: 17584395
[TBL] [Abstract][Full Text] [Related]
10. Health-related quality of life in children with neurofibromatosis type 1: contribution of demographic factors, disease-related factors, and behavior.
Krab LC; Oostenbrink R; de Goede-Bolder A; Aarsen FK; Elgersma Y; Moll HA
J Pediatr; 2009 Mar; 154(3):420-5, 425.e1. PubMed ID: 18950800
[TBL] [Abstract][Full Text] [Related]
11. Factors associated with parental knowledge of neurofibromatosis type 1 (NF1): Parental affected status and genetic counseling.
Solem EP; Primiano M; McQuillen MP; Zak Goelz M
J Genet Couns; 2020 Dec; 29(6):1151-1158. PubMed ID: 32196829
[TBL] [Abstract][Full Text] [Related]
12. Parents' experiences of caring for a young person with neurofibromatosis type 1 (NF1): a qualitative study.
Barke J; Coad J; Harcourt D
J Community Genet; 2016 Jan; 7(1):33-9. PubMed ID: 26201467
[TBL] [Abstract][Full Text] [Related]
13. Neurofibromatosis type 1 (NF1): knowledge, experience, and reproductive decisions of affected patients and families.
Benjamin CM; Colley A; Donnai D; Kingston H; Harris R; Kerzin-Storrar L
J Med Genet; 1993 Jul; 30(7):567-74. PubMed ID: 8411029
[TBL] [Abstract][Full Text] [Related]
14. The health-related quality of life of children, adolescents, and young adults with neurofibromatosis type 1 and their families: Analysis of narratives.
Draucker CB; Nutakki K; Varni JW; Swigonski NL
J Spec Pediatr Nurs; 2017 Apr; 22(2):. PubMed ID: 28198162
[TBL] [Abstract][Full Text] [Related]
15. Young adults' experience of living with neurofibromatosis type 1.
Hummelvoll G; Antonsen KM
J Genet Couns; 2013 Apr; 22(2):188-99. PubMed ID: 22815101
[TBL] [Abstract][Full Text] [Related]
16. Quality of Life in Adults with Neurofibromatosis 1 in Brazil.
Bicudo NP; de Menezes Neto BF; da Silva de Avó LR; Germano CM; Melo DG
J Genet Couns; 2016 Oct; 25(5):1063-74. PubMed ID: 26944915
[TBL] [Abstract][Full Text] [Related]
17. Teenagers and young adults with neurofibromatosis type 1 are more likely to experience loneliness than siblings without the illness.
Ejerskov C; Lasgaard M; Østergaard JR
Acta Paediatr; 2015 Jun; 104(6):604-9. PubMed ID: 25625197
[TBL] [Abstract][Full Text] [Related]
18. Characterization of health concerns in people with neurofibromatosis type 1.
Fleming J; Morgan O; Wong C; Schlub TE; Berman Y
Mol Genet Genomic Med; 2023 Jan; 11(1):e2077. PubMed ID: 36444392
[TBL] [Abstract][Full Text] [Related]
19. Parental reports of health-related quality of life in young children with neurofibromatosis type 1: influence of condition specific determinants.
Oostenbrink R; Spong K; de Goede-Bolder A; Landgraf JM; Raat H; Moll HA
J Pediatr; 2007 Aug; 151(2):182-6, 186.e1-2. PubMed ID: 17643775
[TBL] [Abstract][Full Text] [Related]
20. Psychosocial Features of Neurofibromatosis Type 1 in Children and Adolescents.
Domon-Archambault V; Gagnon L; Benoît A; Perreault S
J Child Neurol; 2018 Mar; 33(3):225-232. PubMed ID: 29318935
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]