237 related articles for article (PubMed ID: 27090393)
1. Assessing the feasibility of a web-based registry for multiple orphan lung diseases: the Australasian Registry Network for Orphan Lung Disease (ARNOLD) experience.
Casamento K; Laverty A; Wilsher M; Twiss J; Gabbay E; Glaspole I; Jaffe A;
Orphanet J Rare Dis; 2016 Apr; 11():42. PubMed ID: 27090393
[TBL] [Abstract][Full Text] [Related]
2. Establishment of a web-based registry for rare (orphan) pediatric lung diseases in the United Kingdom: the BPOLD registry.
Laverty A; Jaffé A; Cunningham S
Pediatr Pulmonol; 2008 May; 43(5):451-6. PubMed ID: 18383113
[TBL] [Abstract][Full Text] [Related]
3. Paediatric orphan lung diseases in Asia.
Aryan Z; Modaresi M
Lancet Respir Med; 2016 Mar; 4(3):174-5. PubMed ID: 26973158
[No Abstract] [Full Text] [Related]
4. Epidemiology of epidermolysis bullosa in the antipodes: the Australasian Epidermolysis Bullosa Registry with a focus on Herlitz junctional epidermolysis bullosa.
Kho YC; Rhodes LM; Robertson SJ; Su J; Varigos G; Robertson I; Hogan P; Orchard D; Murrell DF
Arch Dermatol; 2010 Jun; 146(6):635-40. PubMed ID: 20566927
[TBL] [Abstract][Full Text] [Related]
5. Haemopoietic stem cell transplantation in Australia and New Zealand, 1992-2001: progress report from the Australasian Bone Marrow Transplant Recipient Registry.
Nivison-Smith I; Bradstock KF; Dodds AJ; Hawkins PA; Szer J
Intern Med J; 2005 Jan; 35(1):18-27. PubMed ID: 15667464
[TBL] [Abstract][Full Text] [Related]
6. Standardising trauma monitoring: the development of a minimum dataset for trauma registries in Australia and New Zealand.
Palmer CS; Davey TM; Mok MT; McClure RJ; Farrow NC; Gruen RL; Pollard CW
Injury; 2013 Jun; 44(6):834-41. PubMed ID: 23265787
[TBL] [Abstract][Full Text] [Related]
7. ESRD in Australia and New Zealand at the end of the millennium: a report from the ANZDATA registry.
McDonald SP; Russ GR; Kerr PG; Collins JF;
Am J Kidney Dis; 2002 Dec; 40(6):1122-31. PubMed ID: 12460029
[TBL] [Abstract][Full Text] [Related]
8. Primary immunodeficiency diseases in Australia and New Zealand.
Kirkpatrick P; Riminton S
J Clin Immunol; 2007 Sep; 27(5):517-24. PubMed ID: 17588141
[TBL] [Abstract][Full Text] [Related]
9. Informing a national rare disease registry strategy in Australia: a mixed methods study.
Ruseckaite R; Caruso M; Mudunna C; Helwani F; Millis N; Ahern S
BMC Health Serv Res; 2023 Oct; 23(1):1187. PubMed ID: 37907945
[TBL] [Abstract][Full Text] [Related]
10. Establishing the Aus-ROC Australian and New Zealand out-of-hospital cardiac arrest Epistry.
Beck B; Bray J; Smith K; Walker T; Grantham H; Hein C; Thorrowgood M; Smith A; Smith T; Dicker B; Swain A; Bailey M; Bosley E; Pemberton K; Cameron P; Nichol G; Finn J;
BMJ Open; 2016 Apr; 6(4):e011027. PubMed ID: 27048638
[TBL] [Abstract][Full Text] [Related]
11. Design of a framework for the deployment of collaborative independent rare disease-centric registries: Gaucher disease registry model.
Bellgard MI; Napier KR; Bittles AH; Szer J; Fletcher S; Zeps N; Hunter AA; Goldblatt J
Blood Cells Mol Dis; 2018 Feb; 68():232-238. PubMed ID: 28190666
[TBL] [Abstract][Full Text] [Related]
12. The Australia and New Zealand Fontan Registry: description and initial results from the first population-based Fontan registry.
Iyengar AJ; Winlaw DS; Galati JC; Gentles TL; Weintraub RG; Justo RN; Wheaton GR; Bullock A; Celermajer DS; d'Udekem Y
Intern Med J; 2014 Feb; 44(2):148-55. PubMed ID: 24393144
[TBL] [Abstract][Full Text] [Related]
13. [Rare pulmonary diseases: from the adoption of orphan diseases to structured healthcare networks].
Cottin V; Cordier JF
Rev Mal Respir; 2014 Dec; 31(10):889-92. PubMed ID: 25465349
[No Abstract] [Full Text] [Related]
14. Development of an Australia and New Zealand Lung Cancer Clinical Quality Registry: a protocol paper.
Smith S; Brand M; Harden S; Briggs L; Leigh L; Brims F; Brooke M; Brunelli VN; Chia C; Dawkins P; Lawrenson R; Duffy M; Evans S; Leong T; Marshall H; Patel D; Pavlakis N; Philip J; Rankin N; Singhal N; Stone E; Tay R; Vinod S; Windsor M; Wright GM; Leong D; Zalcberg J; Stirling RG
BMJ Open; 2022 Aug; 12(8):e060907. PubMed ID: 36038161
[TBL] [Abstract][Full Text] [Related]
15. A first description of the Colombian national registry for rare diseases.
Mateus HE; Pérez AM; Mesa ML; Escobar G; Gálvez JM; Montaño JI; Ospina ML; Laissue P
BMC Res Notes; 2017 Oct; 10(1):514. PubMed ID: 29073918
[TBL] [Abstract][Full Text] [Related]
16. Variation in documented inhalation injury rates following burn injury in Australia and New Zealand.
Tracy LM; Dyson K; Mercier LL; Cleland H; McInnes JA; Cameron PA; Singer Y; Edgar DW; Darton A; Gabbe BJ
Injury; 2020 May; 51(5):1152-1157. PubMed ID: 31806382
[TBL] [Abstract][Full Text] [Related]
17. Are Australian and New Zealand trauma service resources reflective of the Australasian Trauma Verification Model Resource Criteria?
Leonard E; Curtis K
ANZ J Surg; 2014; 84(7-8):523-7. PubMed ID: 24517358
[TBL] [Abstract][Full Text] [Related]
18. Rare disease registries: a call to action.
Lacaze P; Millis N; Fookes M; Zurynski Y; Jaffe A; Bellgard M; Winship I; McNeil J; Bittles AH
Intern Med J; 2017 Sep; 47(9):1075-1079. PubMed ID: 28891182
[TBL] [Abstract][Full Text] [Related]
19. Clostridium difficile laboratory testing in Australia and New Zealand: national survey results and Australasian Society for Infectious Diseases recommendations for best practice.
Ferguson JK; Cheng AC; Gilbert GL; Gottlieb T; Korman T; McGregor A; Richards M; Roberts S; Robson J; Van Gessel H; Riley TV
Pathology; 2011 Aug; 43(5):482-7. PubMed ID: 21716158
[TBL] [Abstract][Full Text] [Related]
20. Recombinant activated factor VII in obstetric hemorrhage: experiences from the Australian and New Zealand Haemostasis Registry.
Phillips LE; McLintock C; Pollock W; Gatt S; Popham P; Jankelowitz G; Ogle R; Cameron PA;
Anesth Analg; 2009 Dec; 109(6):1908-15. PubMed ID: 19923520
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
