These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

157 related articles for article (PubMed ID: 27601065)

  • 1. Information and treatment decisions in severe spinal muscular atrophy: A parental follow-up.
    Lövgren M; Sejersen T; Kreicbergs U
    Eur J Paediatr Neurol; 2016 Nov; 20(6):830-838. PubMed ID: 27601065
    [TBL] [Abstract][Full Text] [Related]  

  • 2. Parents' Experiences and Wishes at End of Life in Children with Spinal Muscular Atrophy Types I and II.
    Lövgren M; Sejersen T; Kreicbergs U
    J Pediatr; 2016 Aug; 175():201-5. PubMed ID: 27241662
    [TBL] [Abstract][Full Text] [Related]  

  • 3. Parents' advice to healthcare professionals working with children who have spinal muscular atrophy.
    Hjorth E; Kreicbergs U; Sejersen T; Lövgren M
    Eur J Paediatr Neurol; 2018 Jan; 22(1):128-134. PubMed ID: 29146237
    [TBL] [Abstract][Full Text] [Related]  

  • 4. Parents' Experiences of Information and Decision Making in the Care of Their Child With Severe Spinal Muscular Atrophy: A Population Survey.
    Beernaert K; Lövgren M; Jeppesen J; Werlauff U; Rahbek J; Sejersen T; Kreicbergs U
    J Child Neurol; 2019 Mar; 34(4):210-215. PubMed ID: 30642225
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Bereaved Parents More Satisfied With the Care Given to Their Child With Severe Spinal Muscular Atrophy Than Nonbereaved.
    Hjorth E; Kreicbergs U; Sejersen T; Jeppesen J; Werlauff U; Rahbek J; Lövgren M
    J Child Neurol; 2019 Feb; 34(2):104-112. PubMed ID: 30518279
    [TBL] [Abstract][Full Text] [Related]  

  • 6. Barriers and facilitators to clinical trial participation among parents of children with pediatric neuromuscular disorders.
    Peay HL; Biesecker BB; Wilfond BS; Jarecki J; Umstead KL; Escolar DM; Tibben A
    Clin Trials; 2018 Apr; 15(2):139-148. PubMed ID: 29475375
    [TBL] [Abstract][Full Text] [Related]  

  • 7. 'A short time but a lovely little short time': Bereaved parents' experiences of having a child with spinal muscular atrophy type 1.
    Higgs EJ; McClaren BJ; Sahhar MA; Ryan MM; Forbes R
    J Paediatr Child Health; 2016 Jan; 52(1):40-6. PubMed ID: 26437687
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Advance care planning for children with special health care needs: a survey of parental attitudes.
    Wharton RH; Levine KR; Buka S; Emanuel L
    Pediatrics; 1996 May; 97(5):682-7. PubMed ID: 8628607
    [TBL] [Abstract][Full Text] [Related]  

  • 9. Parents' advice to other parents of children with spinal muscular atrophy: Two nationwide follow-ups.
    Hjorth E; Kreicbergs U; Sejersen T; Werlauff U; Rahbek J; Lövgren M
    J Child Health Care; 2022 Sep; 26(3):407-421. PubMed ID: 33998314
    [TBL] [Abstract][Full Text] [Related]  

  • 10. Identifying Opportunities to Provide Family-centered Care for Families With Children With Type 1 Spinal Muscular Atrophy.
    Murrell DV; Crawford CA; Jackson CT; Lotze TE; Wiemann CM
    J Pediatr Nurs; 2018; 43():111-119. PubMed ID: 30266528
    [TBL] [Abstract][Full Text] [Related]  

  • 11. Spinal muscular atrophy type I: do the benefits of ventilation compensate for its burdens?
    Gray K; Isaacs D; Kilham HA; Tobin B
    J Paediatr Child Health; 2013 Oct; 49(10):807-12. PubMed ID: 24131113
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.
    Hechler T; Blankenburg M; Friedrichsdorf SJ; Garske D; Hübner B; Menke A; Wamsler C; Wolfe J; Zernikow B
    Klin Padiatr; 2008; 220(3):166-74. PubMed ID: 18478489
    [TBL] [Abstract][Full Text] [Related]  

  • 13. [Spinal muscular atrophy and respiratory failure. How do primary care pediatricians act in a simulated scenario?].
    Agra Tuñas MC; Sánchez Santos L; Busto Cuiñas M; Rodríguez Núñez A
    An Pediatr (Barc); 2015 Nov; 83(5):336-40. PubMed ID: 25804552
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Decision-Making Regarding Ventilator Support in Children with SMA Type 1-A Cross-Sectional Survey among Physicians.
    Pechmann A; Langer T; Kirschner J
    Neuropediatrics; 2019 Dec; 50(6):359-366. PubMed ID: 31408889
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Respiratory support in spinal muscular atrophy type I: a survey of physician practices and attitudes.
    Hardart MK; Burns JP; Truog RD
    Pediatrics; 2002 Aug; 110(2 Pt 1):e24. PubMed ID: 12165623
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Decision making by parents and healthcare professionals when considering continued care for pediatric patients with cancer.
    Hinds PS; Oakes L; Furman W; Foppiano P; Olson MS; Quargnenti A; Gattuso J; Powell B; Srivastava DK; Jayawardene D; Sandlund JT; Strong C
    Oncol Nurs Forum; 1997 Oct; 24(9):1523-8. PubMed ID: 9348593
    [TBL] [Abstract][Full Text] [Related]  

  • 17. Spinal muscular atrophy type 1: what are the ethics and practicality of respiratory support?
    Mitchell I
    Paediatr Respir Rev; 2006; 7 Suppl 1():S210-1. PubMed ID: 16798568
    [TBL] [Abstract][Full Text] [Related]  

  • 18. Parental decision making involvement and decisional conflict: a descriptive study.
    Boland L; Kryworuchko J; Saarimaki A; Lawson ML
    BMC Pediatr; 2017 Jun; 17(1):146. PubMed ID: 28610580
    [TBL] [Abstract][Full Text] [Related]  

  • 19. Ethical aspects in the care of a child with infantile spinal muscular atrophy (SMA).
    Chabrol B; Desguerre I
    Arch Pediatr; 2020 Dec; 27(7S):7S50-7S53. PubMed ID: 33357599
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Tracheotomy and children with spinal muscular atrophy type 1: ethical considerations in the French context.
    Rul B; Carnevale F; Estournet B; Rudler M; Hervé C
    Nurs Ethics; 2012 May; 19(3):408-18. PubMed ID: 22323397
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 8.