200 related articles for article (PubMed ID: 27760875)
1. Spinal Muscular Atrophy Type I: Is It Ethical to Standardize Supportive Care Intervention in Clinical Trials?
Finkel RS; Bishop KM; Nelson RM
J Child Neurol; 2017 Feb; 32(2):155-160. PubMed ID: 27760875
[TBL] [Abstract][Full Text] [Related]
2. Ethical aspects in the care of a child with infantile spinal muscular atrophy (SMA).
Chabrol B; Desguerre I
Arch Pediatr; 2020 Dec; 27(7S):7S50-7S53. PubMed ID: 33357599
[TBL] [Abstract][Full Text] [Related]
3. [Is the refusal of invasive or noninvasive ventilation in a child with spinal muscular atrophy ethically justified?].
Radner M; Henry A
Wien Med Wochenschr; 2018 May; 168(7-8):189-192. PubMed ID: 29450782
[TBL] [Abstract][Full Text] [Related]
4. Perspectives on clinical trials in spinal muscular atrophy.
Swoboda KJ; Kissel JT; Crawford TO; Bromberg MB; Acsadi G; D'Anjou G; Krosschell KJ; Reyna SP; Schroth MK; Scott CB; Simard LR
J Child Neurol; 2007 Aug; 22(8):957-66. PubMed ID: 17761650
[TBL] [Abstract][Full Text] [Related]
5. Spinal muscular atrophy (SMA) type I (Werdnig-Hoffmann disease).
Audic F; Barnerias C
Arch Pediatr; 2020 Dec; 27(7S):7S15-7S17. PubMed ID: 33357591
[TBL] [Abstract][Full Text] [Related]
6. Nutritional practices at a glance: spinal muscular atrophy type I nutrition survey findings.
Davis RH; Godshall BJ; Seffrood E; Marcus M; LaSalle BA; Wong B; Schroth MK; Swoboda KJ
J Child Neurol; 2014 Nov; 29(11):1467-72. PubMed ID: 24097849
[TBL] [Abstract][Full Text] [Related]
7. Spinal muscular atrophy type I: do the benefits of ventilation compensate for its burdens?
Gray K; Isaacs D; Kilham HA; Tobin B
J Paediatr Child Health; 2013 Oct; 49(10):807-12. PubMed ID: 24131113
[TBL] [Abstract][Full Text] [Related]
8. Tracheotomy and children with spinal muscular atrophy type 1: ethical considerations in the French context.
Rul B; Carnevale F; Estournet B; Rudler M; Hervé C
Nurs Ethics; 2012 May; 19(3):408-18. PubMed ID: 22323397
[TBL] [Abstract][Full Text] [Related]
9. [Spinal muscular atrophy in young infants].
Smit LM; Hageman EG
Tijdschr Kindergeneeskd; 1989 Jun; 57(3):102-6. PubMed ID: 2799798
[TBL] [Abstract][Full Text] [Related]
10. Natural history of Type 1 spinal muscular atrophy: a retrospective, global, multicenter study.
Cances C; Vlodavets D; Comi GP; Masson R; Mazurkiewicz-Bełdzińska M; Saito K; Zanoteli E; Dodman A; El-Khairi M; Gorni K; Gravestock I; Hoffart J; Scalco RS; Darras BT;
Orphanet J Rare Dis; 2022 Jul; 17(1):300. PubMed ID: 35906608
[TBL] [Abstract][Full Text] [Related]
11. Spinal muscular atrophy.
Iannaccone ST
Semin Neurol; 1998; 18(1):19-26. PubMed ID: 9562664
[TBL] [Abstract][Full Text] [Related]
12. Implementation of "the consensus statement for the standard of care in spinal muscular atrophy" when applied to infants with severe type 1 SMA in the UK.
Roper H; Quinlivan R;
Arch Dis Child; 2010 Oct; 95(10):845-9. PubMed ID: 19819869
[TBL] [Abstract][Full Text] [Related]
13. The use of invasive ventilation is appropriate in children with genetically proven spinal muscular atrophy type 1: the motion against.
Ryan MM
Paediatr Respir Rev; 2008 Mar; 9(1):51-4; discussion 55-6. PubMed ID: 18280980
[TBL] [Abstract][Full Text] [Related]
14. Prevalence of type I spinal muscular atrophy in North Dakota.
Burd L; Short SK; Martsolf JT; Nelson RA
Am J Med Genet; 1991 Nov; 41(2):212-5. PubMed ID: 1785637
[TBL] [Abstract][Full Text] [Related]
15. Respiratory support in spinal muscular atrophy type I: a survey of physician practices and attitudes.
Hardart MK; Burns JP; Truog RD
Pediatrics; 2002 Aug; 110(2 Pt 1):e24. PubMed ID: 12165623
[TBL] [Abstract][Full Text] [Related]
16. Diagnosis and management of spinal muscular atrophy: Part 1: Recommendations for diagnosis, rehabilitation, orthopedic and nutritional care.
Mercuri E; Finkel RS; Muntoni F; Wirth B; Montes J; Main M; Mazzone ES; Vitale M; Snyder B; Quijano-Roy S; Bertini E; Davis RH; Meyer OH; Simonds AK; Schroth MK; Graham RJ; Kirschner J; Iannaccone ST; Crawford TO; Woods S; Qian Y; Sejersen T;
Neuromuscul Disord; 2018 Feb; 28(2):103-115. PubMed ID: 29290580
[TBL] [Abstract][Full Text] [Related]
17. Spinal muscular atrophy with respiratory distress type 1 (SMARD1).
Kaindl AM; Guenther UP; Rudnik-Schöneborn S; Varon R; Zerres K; Schuelke M; Hübner C; von Au K
J Child Neurol; 2008 Feb; 23(2):199-204. PubMed ID: 18263757
[TBL] [Abstract][Full Text] [Related]
18. [Ethical attitudes of intensive care paediatricians as regards patients with spinal muscular atrophy type 1].
Agra Tuñas MC; Hernández Rastrollo R; Hernández González A; Ramil Fraga C; Cambra Lasaosa FJ; Quintero Otero S; Ruiz Extremera A; Rodríguez Núñez A
An Pediatr (Barc); 2017 Mar; 86(3):151-157. PubMed ID: 26944790
[TBL] [Abstract][Full Text] [Related]
19. Laparoscopic Nissen fundoplication during gastrostomy tube placement and noninvasive ventilation may improve survival in type I and severe type II spinal muscular atrophy.
Yuan N; Wang CH; Trela A; Albanese CT
J Child Neurol; 2007 Jun; 22(6):727-31. PubMed ID: 17641258
[TBL] [Abstract][Full Text] [Related]
20. Werdnig-Hoffmann disease and chronic distal spinal muscular atrophy with apparent autosomal dominant inheritance.
Boylan KB; Cornblath DR
Ann Neurol; 1992 Sep; 32(3):404-7. PubMed ID: 1416812
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]