These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

129 related articles for article (PubMed ID: 28644838)

  • 1. Characterization and utilization of an international neurofibromatosis web-based, patient-entered registry: An observational study.
    Seidlin M; Holzman R; Knight P; Korf B; Rangel Miller V; Viskochil D; Bakker A;
    PLoS One; 2017; 12(6):e0178639. PubMed ID: 28644838
    [TBL] [Abstract][Full Text] [Related]  

  • 2. Increasing access to specialty care for rare diseases: a case study using a foundation sponsored clinic network for patients with neurofibromatosis 1, neurofibromatosis 2, and schwannomatosis.
    Merker VL; Dai A; Radtke HB; Knight P; Jordan JT; Plotkin SR
    BMC Health Serv Res; 2018 Aug; 18(1):668. PubMed ID: 30157837
    [TBL] [Abstract][Full Text] [Related]  

  • 3. Development of an international internet-based neurofibromatosis Type 1 patient registry.
    Johnson KJ; Hussain I; Williams K; Santens R; Mueller NL; Gutmann DH
    Contemp Clin Trials; 2013 Mar; 34(2):305-11. PubMed ID: 23246715
    [TBL] [Abstract][Full Text] [Related]  

  • 4. An international pilot study of an Internet-based platform to facilitate clinical research in epilepsy: the EpiNet project.
    Bergin P; Sadleir L; Legros B; Mogal Z; Tripathi M; Dang N; Beretta S; Zanchi C; Burneo J; Borkowski T; Cho YJ; Ossemann M; Striano P; Srivastava K; Tan HJ; Wanigasinghe J; D'Souza W;
    Epilepsia; 2012 Oct; 53(10):1829-35. PubMed ID: 22958055
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Creation of an international registry to support discovery in schwannomatosis.
    Ostrow KL; Bergner AL; Blakeley J; Evans DG; Ferner R; Friedman JM; Harris GJ; Jordan JT; Korf B; Langmead S; Leschziner G; Mautner V; Merker VL; Papi L; Plotkin SR; Slopis JM; Smith MJ; Stemmer-Rachamimov A; Yohay K; Belzberg AJ
    Am J Med Genet A; 2017 Feb; 173(2):407-413. PubMed ID: 27759912
    [TBL] [Abstract][Full Text] [Related]  

  • 6. Evaluation of participant recruitment methods to a rare disease online registry.
    Johnson KJ; Mueller NL; Williams K; Gutmann DH
    Am J Med Genet A; 2014 Jul; 164A(7):1686-94. PubMed ID: 24700441
    [TBL] [Abstract][Full Text] [Related]  

  • 7. Constructing a Local Potential Participant Registry to Improve Alzheimer's Disease Clinical Research Recruitment.
    Grill JD; Hoang D; Gillen DL; Cox CG; Gombosev A; Klein K; O'Leary S; Witbracht M; Pierce A
    J Alzheimers Dis; 2018; 63(3):1055-1063. PubMed ID: 29710723
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Adding value to clinical trial registries: insights from Australian Cancer Trials Online, a website for consumers.
    Dear R; Barratt A; Askie L; McGeechan K; Arora S; Crossing S; Currow D; Tattersall M
    Clin Trials; 2011 Feb; 8(1):70-6. PubMed ID: 21335591
    [TBL] [Abstract][Full Text] [Related]  

  • 9. Wisconsin Spine Outcome Study-Pilot: preliminary data.
    Agrawal BM; Brooks NP; Resnick DK
    Neurosurg Focus; 2012 Jul; 33(1):E15. PubMed ID: 22746232
    [TBL] [Abstract][Full Text] [Related]  

  • 10. An automated communication system in a contact registry for persons with rare diseases: scalable tools for identifying and recruiting clinical research participants.
    Richesson RL; Lee HS; Cuthbertson D; Lloyd J; Young K; Krischer JP
    Contemp Clin Trials; 2009 Jan; 30(1):55-62. PubMed ID: 18804556
    [TBL] [Abstract][Full Text] [Related]  

  • 11. Using the Internet to recruit patients for epilepsy trials: results of a New Zealand pilot study.
    Bergin PS; Ip T; Sheehan R; Frith RW; Sadleir LG; McGrath N; Ranta A; Walker EB
    Epilepsia; 2010 May; 51(5):868-73. PubMed ID: 19889017
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Effect of different recruitment sources on the composition of a bipolar disorder case registry.
    Scholle SH; Peele PB; Kelleher KJ; Frank E; Jansen-McWilliams L; Kupfer D
    Soc Psychiatry Psychiatr Epidemiol; 2000 May; 35(5):220-7. PubMed ID: 10941997
    [TBL] [Abstract][Full Text] [Related]  

  • 13. Research protocol: The initiation, design and establishment of the Global Angelman Syndrome Registry.
    Tones M; Cross M; Simons C; Napier KR; Hunter A; Bellgard MI; Heussler H
    J Intellect Disabil Res; 2018 May; 62(5):431-443. PubMed ID: 29633452
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Achieving consensus for clinical trials: the REiNS International Collaboration.
    Plotkin SR; Blakeley JO; Dombi E; Fisher MJ; Hanemann CO; Walsh KS; Wolters PL; Widemann BC
    Neurology; 2013 Nov; 81(21 Suppl 1):S1-5. PubMed ID: 24249801
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Delivering clinical trials and observational studies in child eye health: a nationwide survey in the United Kingdom.
    Banteka M; Tailor V; Dahlmann-Noor A
    J Pediatr Ophthalmol Strabismus; 2015; 52(2):106-12. PubMed ID: 25608279
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Multicenter study of wound healing in neurofibromatosis and neurofibroma.
    Miyawaki T; Billings B; Har-Shai Y; Agbenorku P; Kokuba E; Moreira-Gonzalez A; Tsukuno M; Kurihara K; Jackson IT
    J Craniofac Surg; 2007 Sep; 18(5):1008-11. PubMed ID: 17912073
    [TBL] [Abstract][Full Text] [Related]  

  • 17. Reducing selection bias in case-control studies from rare disease registries.
    Cole JA; Taylor JS; Hangartner TN; Weinreb NJ; Mistry PK; Khan A
    Orphanet J Rare Dis; 2011 Sep; 6():61. PubMed ID: 21910867
    [TBL] [Abstract][Full Text] [Related]  

  • 18. Neurofibromatosis as a gateway to better treatment for a variety of malignancies.
    Bakker AC; La Rosa S; Sherman LS; Knight P; Lee H; Pancza P; Nievo M
    Prog Neurobiol; 2017 May; 152():149-165. PubMed ID: 26854064
    [TBL] [Abstract][Full Text] [Related]  

  • 19. [Organization of the National Neurofibromatosis Register and areas of application].
    Horváth A; Farkas V; Langmár Z; Bach R
    Ideggyogy Sz; 2014 May; 67(5-6):187-92. PubMed ID: 25087378
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Web-enabled registry of inherited bleeding disorders in Portugal: conditions and perception of the patients.
    Teixeira L; Ferreira C; Santos BS; Saavedra V
    Haemophilia; 2012 Jan; 18(1):56-62. PubMed ID: 21651675
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 7.