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2. Communicating with biobank participants: preferences for receiving and providing updates to researchers. Mester JL; Mercer M; Goldenberg A; Moore RA; Eng C; Sharp RR Cancer Epidemiol Biomarkers Prev; 2015 Apr; 24(4):708-12. PubMed ID: 25597748 [TBL] [Abstract][Full Text] [Related]
3. Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research. Holm IA; Iles BR; Ziniel SI; Bacon PL; Savage SK; Christensen KD; Weitzman ER; Green RC; Huntington NL J Empir Res Hum Res Ethics; 2015 Oct; 10(4):414-26. PubMed ID: 26376753 [TBL] [Abstract][Full Text] [Related]
4. Biobank participants' preferences for disclosure of genetic research results: perspectives from the OurGenes, OurHealth, OurCommunity project. Allen NL; Karlson EW; Malspeis S; Lu B; Seidman CE; Lehmann LS Mayo Clin Proc; 2014 Jun; 89(6):738-46. PubMed ID: 24943692 [TBL] [Abstract][Full Text] [Related]
5. The Tohoku Medical Megabank Project: Design and Mission. Kuriyama S; Yaegashi N; Nagami F; Arai T; Kawaguchi Y; Osumi N; Sakaida M; Suzuki Y; Nakayama K; Hashizume H; Tamiya G; Kawame H; Suzuki K; Hozawa A; Nakaya N; Kikuya M; Metoki H; Tsuji I; Fuse N; Kiyomoto H; Sugawara J; Tsuboi A; Egawa S; Ito K; Chida K; Ishii T; Tomita H; Taki Y; Minegishi N; Ishii N; Yasuda J; Igarashi K; Shimizu R; Nagasaki M; Koshiba S; Kinoshita K; Ogishima S; Takai-Igarashi T; Tominaga T; Tanabe O; Ohuchi N; Shimosegawa T; Kure S; Tanaka H; Ito S; Hitomi J; Tanno K; Nakamura M; Ogasawara K; Kobayashi S; Sakata K; Satoh M; Shimizu A; Sasaki M; Endo R; Sobue K; Tohoku Medical Megabank Project Study Group T; Yamamoto M J Epidemiol; 2016 Sep; 26(9):493-511. PubMed ID: 27374138 [TBL] [Abstract][Full Text] [Related]
6. Societal preferences for the return of incidental findings from clinical genomic sequencing: a discrete-choice experiment. Regier DA; Peacock SJ; Pataky R; van der Hoek K; Jarvik GP; Hoch J; Veenstra D CMAJ; 2015 Apr; 187(6):E190-E197. PubMed ID: 25754703 [TBL] [Abstract][Full Text] [Related]
7. Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences. Gordon DR; Radecki Breitkopf C; Robinson M; Petersen WO; Egginton JS; Chaffee KG; Petersen GM; Wolf SM; Koenig BA AJOB Empir Bioeth; 2019; 10(1):1-22. PubMed ID: 30596322 [TBL] [Abstract][Full Text] [Related]
8. The return of unexpected research results in a biobank study and referral to health care for heritable long QT syndrome. Haukkala A; Kujala E; Alha P; Salomaa V; Koskinen S; Swan H; Kääriäinen H Public Health Genomics; 2013; 16(5):241-50. PubMed ID: 24029681 [TBL] [Abstract][Full Text] [Related]
9. Preferences for the Return of Individual Results From Research on Pediatric Biobank Samples. Christensen KD; Savage SK; Huntington NL; Weitzman ER; Ziniel SI; Bacon PL; Cacioppo CN; Green RC; Holm IA J Empir Res Hum Res Ethics; 2017 Apr; 12(2):97-106. PubMed ID: 28421887 [TBL] [Abstract][Full Text] [Related]
10. Attitudes of the general public towards the disclosure of individual research results and incidental findings from biobank genomic research in Australia. Fleming J; Critchley C; Otlowski M; Stewart C; Kerridge I Intern Med J; 2015 Dec; 45(12):1274-9. PubMed ID: 26390363 [TBL] [Abstract][Full Text] [Related]
11. Biobank Establishment and Sample Management in the Tohoku Medical Megabank Project. Minegishi N; Nishijima I; Nobukuni T; Kudo H; Ishida N; Terakawa T; Kumada K; Yamashita R; Katsuoka F; Ogishima S; Suzuki K; Sasaki M; Satoh M; Tohoku Medical Megabank Project Study Group ; Yamamoto M Tohoku J Exp Med; 2019 May; 248(1):45-55. PubMed ID: 31130587 [TBL] [Abstract][Full Text] [Related]
12. Disclosure of Individual Research Results and Incidental Findings in Biobank Research: Why We Need an Evidence-based Approach. Fleming J; Otlowski M; Stewart C; Critchley C; Kerridge I J Law Med; 2016; 24(1):89-95. PubMed ID: 30136776 [TBL] [Abstract][Full Text] [Related]
13. Allocation of Resources to Communication of Research Result Summaries. Richards JE; Bane E; Fullerton SM; Ludman EJ; Jarvik G J Empir Res Hum Res Ethics; 2016 Oct; 11(4):364-369. PubMed ID: 27613778 [TBL] [Abstract][Full Text] [Related]
14. Incidental findings: the time is not yet ripe for a policy for biobanks. Viberg J; Hansson MG; Langenskiöld S; Segerdahl P Eur J Hum Genet; 2014 Apr; 22(4):437-41. PubMed ID: 24065111 [TBL] [Abstract][Full Text] [Related]
15. Health research participants' preferences for receiving research results. Long CR; Stewart MK; Cunningham TV; Warmack TS; McElfish PA Clin Trials; 2016 Dec; 13(6):582-591. PubMed ID: 27562368 [TBL] [Abstract][Full Text] [Related]
16. Mapping the inputs, analyses, and outputs of biobank research systems to identify sources of incidental findings and individual research results for potential return to participants. Bemmels HR; Wolf SM; Van Ness B Genet Med; 2012 Apr; 14(4):385-92. PubMed ID: 22382801 [TBL] [Abstract][Full Text] [Related]
17. Preferences Regarding Return of Genomic Results to Relatives of Research Participants, Including after Participant Death: Empirical Results from a Cancer Biobank. Breitkopf CR; Petersen GM; Wolf SM; Chaffee KG; Robinson ME; Gordon DR; Lindor NM; Koenig BA J Law Med Ethics; 2015; 43(3):464-75. PubMed ID: 26479556 [TBL] [Abstract][Full Text] [Related]
18. Patients' Attitudes Towards the Return of Incidental Findings After Research with Residual Tissue: A Mixed Methods Study. Vermeulen E; Rebers S; Aaronson NK; Brandenburg AP; van Leeuwen FE; Schmidt MK Genet Test Mol Biomarkers; 2018 Mar; 22(3):178-186. PubMed ID: 29461872 [TBL] [Abstract][Full Text] [Related]
19. Cross-sectional analysis of BioBank Japan clinical data: A large cohort of 200,000 patients with 47 common diseases. Hirata M; Kamatani Y; Nagai A; Kiyohara Y; Ninomiya T; Tamakoshi A; Yamagata Z; Kubo M; Muto K; Mushiroda T; Murakami Y; Yuji K; Furukawa Y; Zembutsu H; Tanaka T; Ohnishi Y; Nakamura Y; ; Matsuda K J Epidemiol; 2017 Mar; 27(3S):S9-S21. PubMed ID: 28190657 [TBL] [Abstract][Full Text] [Related]
20. Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners. Radecki Breitkopf C; Wolf SM; Chaffee KG; Robinson ME; Lindor NM; Gordon DR; Koenig BA; Petersen GM J Empir Res Hum Res Ethics; 2018 Jul; 13(3):295-304. PubMed ID: 29701109 [TBL] [Abstract][Full Text] [Related] [Next] [New Search]