287 related articles for article (PubMed ID: 29108913)
1. Development and content validation of a preliminary core set of patient- and caregiver-relevant outcomes for inclusion in a potential composite endpoint for Dravet Syndrome.
Nabbout R; Auvin S; Chiron C; Irwin J; Mistry A; Bonner N; Williamson N; Bennett B
Epilepsy Behav; 2018 Jan; 78():232-242. PubMed ID: 29108913
[TBL] [Abstract][Full Text] [Related]
2. Perception of impact of Dravet syndrome on children and caregivers in multiple countries: looking beyond seizures.
Nabbout R; Auvin S; Chiron C; Thiele E; Cross H; Scheffer IE; Schneider AL; Guerrini R; Williamson N;
Dev Med Child Neurol; 2019 Oct; 61(10):1229-1236. PubMed ID: 30828793
[TBL] [Abstract][Full Text] [Related]
3. DRAVET ENGAGE. Parent caregivers of children with Dravet syndrome: Perspectives, needs, and opportunities for clinical research.
Juandó-Prats C; James E; Bilder DA; McNair L; Kenneally N; Helfer J; Huang N; Vila MC; Sullivan J; Wirrell E; Rico S
Epilepsy Behav; 2021 Sep; 122():108198. PubMed ID: 34284219
[TBL] [Abstract][Full Text] [Related]
4. Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative study.
Soto Jansson J; Bjurulf B; Dellenmark Blom M; Hallböök T; Reilly C
Epilepsy Behav; 2024 Jul; 156():109790. PubMed ID: 38692022
[TBL] [Abstract][Full Text] [Related]
5. The direct and indirect costs of Dravet Syndrome.
Whittington MD; Knupp KG; Vanderveen G; Kim C; Gammaitoni A; Campbell JD
Epilepsy Behav; 2018 Mar; 80():109-113. PubMed ID: 29414539
[TBL] [Abstract][Full Text] [Related]
6. Behavior problems and health-related quality of life in Dravet syndrome.
Sinoo C; de Lange IM; Westers P; Gunning WB; Jongmans MJ; Brilstra EH
Epilepsy Behav; 2019 Jan; 90():217-227. PubMed ID: 30578097
[TBL] [Abstract][Full Text] [Related]
7. Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers.
Nabbout R; Dirani M; Teng T; Bianic F; Martin M; Holland R; Chemaly N; Coque N
Epilepsy Behav; 2020 Jul; 108():107094. PubMed ID: 32375095
[TBL] [Abstract][Full Text] [Related]
8. Patient and Caregiver Health State Utilities in Lennox-Gastaut Syndrome and Dravet Syndrome.
Lo SH; Lloyd A; Marshall J; Vyas K
Clin Ther; 2021 Nov; 43(11):1861-1876.e16. PubMed ID: 34774333
[TBL] [Abstract][Full Text] [Related]
9. Caregiver impact and health service use in high and low severity Dravet syndrome: A multinational cohort study.
Lagae L; Irwin J; Gibson E; Battersby A
Seizure; 2019 Feb; 65():72-79. PubMed ID: 30616222
[TBL] [Abstract][Full Text] [Related]
10. Dravet syndrome: Characteristics, comorbidities, and caregiver concerns.
Villas N; Meskis MA; Goodliffe S
Epilepsy Behav; 2017 Sep; 74():81-86. PubMed ID: 28732259
[TBL] [Abstract][Full Text] [Related]
11. A quantitative cross-sectional study of the burden of caring for patients with Lennox-Gastaut syndrome, Dravet syndrome, and tuberous sclerosis complex-associated epilepsy in Japan.
LoPresti M; Igarashi A; Sonohara Y; Bowditch S
Epilepsy Behav; 2024 May; 154():109741. PubMed ID: 38555725
[TBL] [Abstract][Full Text] [Related]
12. Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey.
Campbell JD; Whittington MD; Kim CH; VanderVeen GR; Knupp KG; Gammaitoni A
Epilepsy Behav; 2018 Mar; 80():152-156. PubMed ID: 29414545
[TBL] [Abstract][Full Text] [Related]
13. Fenfluramine treatment for dravet syndrome: Real-world benefits on quality of life from the caregiver perspective.
Jensen MP; Gammaitoni AR; Galer BS; Salem R; Wilkie D; Amtmann D
Epilepsy Res; 2022 Sep; 185():106976. PubMed ID: 35843016
[TBL] [Abstract][Full Text] [Related]
14. International consensus on diagnosis and management of Dravet syndrome.
Wirrell EC; Hood V; Knupp KG; Meskis MA; Nabbout R; Scheffer IE; Wilmshurst J; Sullivan J
Epilepsia; 2022 Jul; 63(7):1761-1777. PubMed ID: 35490361
[TBL] [Abstract][Full Text] [Related]
15. Diagnosis, epilepsy treatment and supports for neurodevelopment in children with Dravet Syndrome: Caregiver reported experiences and needs.
Soto Jansson J; Bjurulf B; Dellenmark Blom M; Hallböök T; Reilly C
Epilepsy Behav; 2024 Feb; 151():109603. PubMed ID: 38168600
[TBL] [Abstract][Full Text] [Related]
16. Sleep quality, anxiety, symptoms of depression, and caregiver burden among those caring for patients with Dravet syndrome: a prospective multicenter study in Germany.
Maltseva M; Schubert-Bast S; Zöllner JP; Bast T; Mayer T; von Spiczak S; Ruf S; Trollmann R; Wolff M; Hornemann F; Klotz KA; Jacobs J; Kurlemann G; Neubauer BA; Polster T; Syrbe S; Bertsche A; Bettendorf U; Kluger G; Flege S; Rosenow F; Kay L; Strzelczyk A
Orphanet J Rare Dis; 2023 Apr; 18(1):98. PubMed ID: 37120555
[TBL] [Abstract][Full Text] [Related]
17. The clinical, economic, and humanistic burden of Dravet syndrome - A systematic literature review.
Sullivan J; Deighton AM; Vila MC; Szabo SM; Maru B; Gofshteyn JS; James ES; Rico S; Zuberi SM
Epilepsy Behav; 2022 May; 130():108661. PubMed ID: 35334258
[TBL] [Abstract][Full Text] [Related]
18. Emotional experiences of family caregivers of children with Dravet syndrome.
Domaradzki J; Walkowiak D
Epilepsy Behav; 2023 May; 142():109193. PubMed ID: 37028149
[TBL] [Abstract][Full Text] [Related]
19. Barriers to transition from pediatric to adult care for patients with Dravet syndrome: A focus group study of caregivers.
Boyce DM; Devinsky O; Meskis MA
Epilepsy Behav; 2020 Aug; 109():107096. PubMed ID: 32422576
[TBL] [Abstract][Full Text] [Related]
20. Improved everyday executive functioning following profound reduction in seizure frequency with fenfluramine: Analysis from a phase 3 long-term extension study in children/young adults with Dravet syndrome.
Bishop KI; Isquith PK; Gioia GA; Gammaitoni AR; Farfel G; Galer BS; Nabbout R; Wirrell EC; Polster T; Sullivan J
Epilepsy Behav; 2021 Aug; 121(Pt A):108024. PubMed ID: 34023810
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
