228 related articles for article (PubMed ID: 30409176)
21. Emergency management in epidermolysis bullosa: consensus clinical recommendations from the European reference network for rare skin diseases.
Mellerio JE; El Hachem M; Bellon N; Zambruno G; Buckova H; Autrata R; Salavastru C; Caldaro T; Greco C; Has C; Bodemer C
Orphanet J Rare Dis; 2020 Jun; 15(1):142. PubMed ID: 32505191
[TBL] [Abstract][Full Text] [Related]
22. Occupational therapy for epidermolysis bullosa: clinical practice guidelines.
Chan JM; Weisman A; King A; Maksomski S; Shotwell C; Bailie C; Weaver H; Bodan R; Guerrero E; Zmazek M; Khuu P
Orphanet J Rare Dis; 2019 Jun; 14(1):129. PubMed ID: 31174559
[TBL] [Abstract][Full Text] [Related]
23. Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa.
Popenhagen MP; Genovese P; Blishen M; Rajapakse D; Diem A; King A; Chan J; Pellicer Arasa E; Baird S; Ferreira da Rocha AC; Stitt G; Badger K; Zmazek V; Ambreen F; Mackenzie C; Price H; Roberts T; Moore Z; Patton D; Murphy P; Mayre-Chilton K
Orphanet J Rare Dis; 2023 Sep; 18(1):268. PubMed ID: 37667330
[TBL] [Abstract][Full Text] [Related]
24. The classification of inherited epidermolysis bullosa (EB): Report of the Third International Consensus Meeting on Diagnosis and Classification of EB.
Fine JD; Eady RA; Bauer EA; Bauer JW; Bruckner-Tuderman L; Heagerty A; Hintner H; Hovnanian A; Jonkman MF; Leigh I; McGrath JA; Mellerio JE; Murrell DF; Shimizu H; Uitto J; Vahlquist A; Woodley D; Zambruno G
J Am Acad Dermatol; 2008 Jun; 58(6):931-50. PubMed ID: 18374450
[TBL] [Abstract][Full Text] [Related]
25. Instrument for scoring clinical outcome of research for epidermolysis bullosa: a consensus-generated clinical research tool.
Schwieger-Briel A; Chakkittakandiyil A; Lara-Corrales I; Aujla N; Lane AT; Lucky AW; Bruckner AL; Pope E
Pediatr Dermatol; 2015; 32(1):41-52. PubMed ID: 24650374
[TBL] [Abstract][Full Text] [Related]
26. Epidermolysis bullosa care in Austria and the Epidermolysis Bullosa House Austria.
Pohla-Gubo G; Hintner H
Dermatol Clin; 2010 Apr; 28(2):415-20, xv. PubMed ID: 20447517
[TBL] [Abstract][Full Text] [Related]
27. Tracheolaryngeal complications of inherited epidermolysis bullosa: cumulative experience of the national epidermolysis bullosa registry.
Fine JD; Johnson LB; Weiner M; Suchindran C
Laryngoscope; 2007 Sep; 117(9):1652-60. PubMed ID: 17762793
[TBL] [Abstract][Full Text] [Related]
28. Epidermolysis bullosa care in Hungary.
Medvecz M; Kárpáti S
Dermatol Clin; 2010 Apr; 28(2):421-3, xv. PubMed ID: 20447518
[TBL] [Abstract][Full Text] [Related]
29. Evaluation and treatment of the newborn with epidermolysis bullosa.
Gonzalez ME
Semin Perinatol; 2013 Feb; 37(1):32-9. PubMed ID: 23419761
[TBL] [Abstract][Full Text] [Related]
30. Inherited epidermolysis bullosa and squamous cell carcinoma: a systematic review of 117 cases.
Montaudié H; Chiaverini C; Sbidian E; Charlesworth A; Lacour JP
Orphanet J Rare Dis; 2016 Aug; 11(1):117. PubMed ID: 27544590
[TBL] [Abstract][Full Text] [Related]
31. The management of general and disease specific ENT problems in children with Epidermolysis Bullosa--a retrospective case note review.
Hore I; Bajaj Y; Denyer J; Martinez AE; Mellerio JE; Bibas T; Albert D
Int J Pediatr Otorhinolaryngol; 2007 Mar; 71(3):385-91. PubMed ID: 17145082
[TBL] [Abstract][Full Text] [Related]
32. Psychosocial recommendations for the care of children and adults with epidermolysis bullosa and their family: evidence based guidelines.
Martin K; Geuens S; Asche JK; Bodan R; Browne F; Downe A; García García N; Jaega G; Kennedy B; Mauritz PJ; Pérez F; Soon K; Zmazek V; Mayre-Chilton KM
Orphanet J Rare Dis; 2019 Jun; 14(1):133. PubMed ID: 31186066
[TBL] [Abstract][Full Text] [Related]
33. Inherited epidermolysis bullosa.
El Hachem M; Giancristoforo S; Diociaiuti A
G Ital Dermatol Venereol; 2014 Dec; 149(6):651-62. PubMed ID: 25279494
[TBL] [Abstract][Full Text] [Related]
34. [Anaesthesia for children with epidermolysis bullosa].
Knab J; Schumann H; Kaltofen H; Steinmann D
Anasthesiol Intensivmed Notfallmed Schmerzther; 2010 Oct; 45(10):618-24. PubMed ID: 20960366
[TBL] [Abstract][Full Text] [Related]
35. The Frequency of Signs of Meibomian Gland Dysfunction in Children with Epidermolysis Bullosa.
Jones SM; Smith KA; Jain M; Mellerio JE; Martinez A; Nischal KK
Ophthalmology; 2016 May; 123(5):991-9. PubMed ID: 26876697
[TBL] [Abstract][Full Text] [Related]
36. Epidermolysis bullosa care in the United States.
Arbuckle HA
Dermatol Clin; 2010 Apr; 28(2):387-9, xiii. PubMed ID: 20447508
[TBL] [Abstract][Full Text] [Related]
37. Epidermolysis bullosa in animals: a review.
Medeiros GX; Riet-Correa F
Vet Dermatol; 2015 Feb; 26(1):3-13, e1-2. PubMed ID: 25354580
[TBL] [Abstract][Full Text] [Related]
38. The needs of parents with children suffering from lethal epidermolysis bullosa.
Yuen WY; Duipmans JC; Jonkman MF
Br J Dermatol; 2012 Sep; 167(3):613-8. PubMed ID: 22512671
[TBL] [Abstract][Full Text] [Related]
39. Age and etiology of childhood epidermolysis bullosa mortality.
Hon KL; Li JJ; Cheng BL; Luk DC; Murrell DF; Choi PC; Leung AK
J Dermatolog Treat; 2015 Apr; 26(2):178-82. PubMed ID: 24724596
[TBL] [Abstract][Full Text] [Related]
40. Adopting a Sustainable Community of Practice Model when Developing a Service to Support Patients with Epidermolysis Bullosa (EB): A Stakeholder-Centered Approach.
Gowran RJ; Kennan A; Marshall S; Mulcahy I; Ní Mhaille S; Beasley S; Devlin M
Patient; 2015 Feb; 8(1):51-63. PubMed ID: 25430517
[TBL] [Abstract][Full Text] [Related]
[Previous] [Next] [New Search]