125 related articles for article (PubMed ID: 30503854)
1. Fostering trust in healthcare: Participants' experiences, views, and concerns about the 100,000 genomes project.
Dheensa S; Lucassen A; Fenwick A
Eur J Med Genet; 2019 May; 62(5):335-341. PubMed ID: 30503854
[TBL] [Abstract][Full Text] [Related]
2. Towards a national genomics medicine service: the challenges facing clinical-research hybrid practices and the case of the 100 000 genomes project.
Dheensa S; Samuel G; Lucassen AM; Farsides B
J Med Ethics; 2018 Jun; 44(6):397-403. PubMed ID: 29496751
[TBL] [Abstract][Full Text] [Related]
3. Exploring broad consent in the context of the 100,000 Genomes Project: a mixed methods study.
Ballard LM; Horton RH; Dheensa S; Fenwick A; Lucassen AM
Eur J Hum Genet; 2020 Jun; 28(6):732-741. PubMed ID: 31919452
[TBL] [Abstract][Full Text] [Related]
4. Parents' motivations, concerns and understanding of genome sequencing: a qualitative interview study.
Lewis C; Sanderson S; Hill M; Patch C; Searle B; Hunter A; Chitty LS
Eur J Hum Genet; 2020 Jul; 28(7):874-884. PubMed ID: 32001839
[TBL] [Abstract][Full Text] [Related]
5. Young people's understanding, attitudes and involvement in decision-making about genome sequencing for rare diseases: A qualitative study with participants in the UK 100, 000 Genomes Project.
Lewis C; Hammond J; Hill M; Searle B; Hunter A; Patch C; Chitty LS; Sanderson SC
Eur J Med Genet; 2020 Nov; 63(11):104043. PubMed ID: 32835846
[TBL] [Abstract][Full Text] [Related]
6. Parents of a child with epilepsy: Views and expectations on receiving genetic results from Whole Genome Sequencing.
Jaitovich Groisman I; Hurlimann T; Godard B
Epilepsy Behav; 2019 Jan; 90():178-190. PubMed ID: 30583270
[TBL] [Abstract][Full Text] [Related]
7. Views of rare disease participants in a UK whole-genome sequencing study towards secondary findings: a qualitative study.
Mackley MP; Blair E; Parker M; Taylor JC; Watkins H; Ormondroyd E
Eur J Hum Genet; 2018 May; 26(5):652-659. PubMed ID: 29440777
[TBL] [Abstract][Full Text] [Related]
8. Parents perspectives on whole genome sequencing for their children: qualified enthusiasm?
Anderson JA; Meyn MS; Shuman C; Zlotnik Shaul R; Mantella LE; Szego MJ; Bowdin S; Monfared N; Hayeems RZ
J Med Ethics; 2017 Aug; 43(8):535-539. PubMed ID: 27888232
[TBL] [Abstract][Full Text] [Related]
9. "Not pathogenic until proven otherwise": perspectives of UK clinical genomics professionals toward secondary findings in context of a Genomic Medicine Multidisciplinary Team and the 100,000 Genomes Project.
Ormondroyd E; Mackley MP; Blair E; Craft J; Knight JC; Taylor JC; Taylor J; Watkins H
Genet Med; 2018 Mar; 20(3):320-328. PubMed ID: 29261176
[TBL] [Abstract][Full Text] [Related]
10. The new genomic medicine service and implications for patients .
Barwell J; Snape K; Wedderburn S
Clin Med (Lond); 2019 Jul; 19(4):273-277. PubMed ID: 31308102
[TBL] [Abstract][Full Text] [Related]
11. The 100 000 Genomes Project: bringing whole genome sequencing to the NHS.
Turnbull C; Scott RH; Thomas E; Jones L; Murugaesu N; Pretty FB; Halai D; Baple E; Craig C; Hamblin A; Henderson S; Patch C; O'Neill A; Devereau A; Smith K; Martin AR; Sosinsky A; McDonagh EM; Sultana R; Mueller M; Smedley D; Toms A; Dinh L; Fowler T; Bale M; Hubbard T; Rendon A; Hill S; Caulfield MJ;
BMJ; 2018 Apr; 361():k1687. PubMed ID: 29691228
[No Abstract] [Full Text] [Related]
12. Delivery of a national prenatal exome sequencing service in England: a mixed methods study exploring healthcare professionals' views and experiences.
Peter M; Mellis R; McInnes-Dean H; Daniel M; Walton H; Fisher J; Leeson-Beevers K; Allen S; Baple EL; Beleza-Meireles A; Bertoli M; Campbell J; Canham N; Cilliers D; Cobben J; Eason J; Harrison V; Holder-Espinasse M; Male A; Mansour S; McEwan A; Park SM; Smith A; Stewart A; Tapon D; Vasudevan P; Williams D; Wu WH; Chitty LS; Hill M
Front Genet; 2024; 15():1401705. PubMed ID: 38903755
[TBL] [Abstract][Full Text] [Related]
13. Germline whole genome sequencing in pediatric oncology in Denmark-Practitioner perspectives.
Byrjalsen A; Stoltze UK; Castor A; Wahlberg A
Mol Genet Genomic Med; 2020 Aug; 8(8):e1276. PubMed ID: 32500610
[TBL] [Abstract][Full Text] [Related]
14. A Formative Study of the Implementation of Whole Genome Sequencing in Northern Ireland.
Kerr K; McKenna C; Heggarty S; Bailie C; McMullan J; Crowe A; Kilner J; Donnelly M; Boyle S; Rea G; Flanagan C; McKee S; McKnight AJ
Genes (Basel); 2022 Jun; 13(7):. PubMed ID: 35885887
[TBL] [Abstract][Full Text] [Related]
15. The patient experience of patient-centered communication with nurses in the hospital setting: a qualitative systematic review protocol.
Newell S; Jordan Z
JBI Database System Rev Implement Rep; 2015 Jan; 13(1):76-87. PubMed ID: 26447009
[TBL] [Abstract][Full Text] [Related]
16. 'You should at least ask'. The expectations, hopes and fears of rare disease patients on large-scale data and biomaterial sharing for genomics research.
McCormack P; Kole A; Gainotti S; Mascalzoni D; Molster C; Lochmüller H; Woods S
Eur J Hum Genet; 2016 Oct; 24(10):1403-8. PubMed ID: 27049302
[TBL] [Abstract][Full Text] [Related]
17. Genomics England's implementation of its public engagement strategy: Blurred boundaries between engagement for the United Kingdom's 100,000 Genomes project and the need for public support.
Samuel GN; Farsides B
Public Underst Sci; 2018 Apr; 27(3):352-364. PubMed ID: 29241419
[TBL] [Abstract][Full Text] [Related]
18. The experience of parents of children with rare diseases when communicating with healthcare professionals: towards an integrative theory of trust.
Gómez-Zúñiga B; Pulido Moyano R; Pousada Fernández M; García Oliva A; Armayones Ruiz M
Orphanet J Rare Dis; 2019 Jun; 14(1):159. PubMed ID: 31253163
[TBL] [Abstract][Full Text] [Related]
19. Fathers and the well-child visit.
Garfield CF; Isacco A
Pediatrics; 2006 Apr; 117(4):e637-45. PubMed ID: 16585280
[TBL] [Abstract][Full Text] [Related]
20. Views from the clinic: Healthcare provider perspectives on whole genome sequencing in paediatrics.
Szego MJ; Meyn MS; Shuman C; Zlotnik Shaul R; Anderson JA; Bowdin S; Monfared N; Hayeems RZ
Eur J Med Genet; 2019 May; 62(5):350-356. PubMed ID: 30503855
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
