216 related articles for article (PubMed ID: 30621693)
1. Kenyan health stakeholder views on individual consent, general notification and governance processes for the re-use of hospital inpatient data to support learning on healthcare systems.
Mbuthia D; Molyneux S; Njue M; Mwalukore S; Marsh V
BMC Med Ethics; 2019 Jan; 20(1):3. PubMed ID: 30621693
[TBL] [Abstract][Full Text] [Related]
2. Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.
Spencer K; Sanders C; Whitley EA; Lund D; Kaye J; Dixon WG
J Med Internet Res; 2016 Apr; 18(4):e66. PubMed ID: 27083521
[TBL] [Abstract][Full Text] [Related]
3. Involving Research Stakeholders in Developing Policy on Sharing Public Health Research Data in Kenya: Views on Fair Process for Informed Consent, Access Oversight, and Community Engagement.
Jao I; Kombe F; Mwalukore S; Bull S; Parker M; Kamuya D; Molyneux S; Marsh V
J Empir Res Hum Res Ethics; 2015 Jul; 10(3):264-77. PubMed ID: 26297748
[TBL] [Abstract][Full Text] [Related]
4. Research Stakeholders' Views on Benefits and Challenges for Public Health Research Data Sharing in Kenya: The Importance of Trust and Social Relations.
Jao I; Kombe F; Mwalukore S; Bull S; Parker M; Kamuya D; Molyneux S; Marsh V
PLoS One; 2015; 10(9):e0135545. PubMed ID: 26331716
[TBL] [Abstract][Full Text] [Related]
5. Sharing longitudinal, non-biological birth cohort data: a cross-sectional analysis of parent consent preferences.
Manhas KP; Dodd SX; Page S; Letourneau N; Adair CE; Cui X; Tough SC
BMC Med Inform Decis Mak; 2018 Nov; 18(1):97. PubMed ID: 30419910
[TBL] [Abstract][Full Text] [Related]
6. Young people's views about consenting to data linkage: findings from the PEARL qualitative study.
Audrey S; Brown L; Campbell R; Boyd A; Macleod J
BMC Med Res Methodol; 2016 Mar; 16():34. PubMed ID: 27001504
[TBL] [Abstract][Full Text] [Related]
7. "A Question of Trust" and "a Leap of Faith"-Study Participants' Perspectives on Consent, Privacy, and Trust in Smart Home Research: Qualitative Study.
Kennedy MR; Huxtable R; Birchley G; Ives J; Craddock I
JMIR Mhealth Uhealth; 2021 Nov; 9(11):e25227. PubMed ID: 34842551
[TBL] [Abstract][Full Text] [Related]
8. Best Practices for Ethical Sharing of Individual-Level Health Research Data From Low- and Middle-Income Settings.
Bull S; Cheah PY; Denny S; Jao I; Marsh V; Merson L; Shah More N; Nhan le NT; Osrin D; Tangseefa D; Wassenaar D; Parker M
J Empir Res Hum Res Ethics; 2015 Jul; 10(3):302-13. PubMed ID: 26297751
[TBL] [Abstract][Full Text] [Related]
9. Research Use of Electronic Health Records: Patients' Views on Alternative Approaches to Permission.
Hammack-Aviran CM; Brelsford KM; McKenna KC; Graham RD; Lampron ZM; Beskow LM
AJOB Empir Bioeth; 2020; 11(3):172-186. PubMed ID: 32338567
[No Abstract] [Full Text] [Related]
10. "It's all about trust": reflections of researchers on the complexity and controversy surrounding biobanking in South Africa.
Moodley K; Singh S
BMC Med Ethics; 2016 Oct; 17(1):57. PubMed ID: 27724893
[TBL] [Abstract][Full Text] [Related]
11. Biobanks in the low- and middle-income countries of the Arab Middle East region: challenges, ethical issues, and governance arrangements-a qualitative study involving biobank managers.
Abdelhafiz AS; Ahram M; Ibrahim ME; Elgamri A; Gamel E; Labib R; Silverman H
BMC Med Ethics; 2022 Aug; 23(1):83. PubMed ID: 35965314
[TBL] [Abstract][Full Text] [Related]
12. Factors influencing effective data sharing between health care and social care regarding the care of older people: a qualitative evidence synthesis.
de Bell S; Zhelev Z; Bethel A; Coon JT; Anderson R
Health Soc Care Deliv Res; 2024 May; 12(12):1-87. PubMed ID: 38778710
[TBL] [Abstract][Full Text] [Related]
13. The future of Cochrane Neonatal.
Soll RF; Ovelman C; McGuire W
Early Hum Dev; 2020 Nov; 150():105191. PubMed ID: 33036834
[TBL] [Abstract][Full Text] [Related]
14. Views of Ethical Best Practices in Sharing Individual-Level Data From Medical and Public Health Research: A Systematic Scoping Review.
Bull S; Roberts N; Parker M
J Empir Res Hum Res Ethics; 2015 Jul; 10(3):225-38. PubMed ID: 26297745
[TBL] [Abstract][Full Text] [Related]
15. Factors affecting willingness to share electronic health data among California consumers.
Kim KK; Sankar P; Wilson MD; Haynes SC
BMC Med Ethics; 2017 Apr; 18(1):25. PubMed ID: 28376801
[TBL] [Abstract][Full Text] [Related]
16. Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.
Sanderson SC; Brothers KB; Mercaldo ND; Clayton EW; Antommaria AHM; Aufox SA; Brilliant MH; Campos D; Carrell DS; Connolly J; Conway P; Fullerton SM; Garrison NA; Horowitz CR; Jarvik GP; Kaufman D; Kitchner TE; Li R; Ludman EJ; McCarty CA; McCormick JB; McManus VD; Myers MF; Scrol A; Williams JL; Shrubsole MJ; Schildcrout JS; Smith ME; Holm IA
Am J Hum Genet; 2017 Mar; 100(3):414-427. PubMed ID: 28190457
[TBL] [Abstract][Full Text] [Related]
17. Setting up a Governance Framework for Secondary Use of Routine Health Data in Nursing Homes: Development Study Using Qualitative Interviews.
Wieland-Jorna Y; Verheij RA; Francke AL; Tomassen M; Houtzager M; Joling KJ; Oosterveld-Vlug MG
J Med Internet Res; 2023 Jan; 25():e38929. PubMed ID: 36696162
[TBL] [Abstract][Full Text] [Related]
18. Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand.
Cheah PY; Jatupornpimol N; Hanboonkunupakarn B; Khirikoekkong N; Jittamala P; Pukrittayakamee S; Day NPJ; Parker M; Bull S
BMC Med Ethics; 2018 Nov; 19(1):86. PubMed ID: 30404642
[TBL] [Abstract][Full Text] [Related]
19. Reporting of Ethical Considerations in Qualitative Research Utilizing Social Media Data on Public Health Care: Scoping Review.
Zhang Y; Fu J; Lai J; Deng S; Guo Z; Zhong C; Tang J; Cao W; Wu Y
J Med Internet Res; 2024 May; 26():e51496. PubMed ID: 38758590
[TBL] [Abstract][Full Text] [Related]
20. Parents' attitudes toward consent and data sharing in biobanks: A multisite experimental survey.
Antommaria AHM; Brothers KB; Myers JA; Feygin YB; Aufox SA; Brilliant MH; Conway P; Fullerton SM; Garrison NA; Horowitz CR; Jarvik GP; Li R; Ludman EJ; McCarty CA; McCormick JB; Mercaldo ND; Myers MF; Sanderson SC; Shrubsole MJ; Schildcrout JS; Williams JL; Smith ME; Clayton EW; Holm IA
AJOB Empir Bioeth; 2018; 9(3):128-142. PubMed ID: 30240342
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
