These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

173 related articles for article (PubMed ID: 30747463)

  • 1. Fragile X syndrome clinical trials: exploring parental decision-making.
    D'Amanda CS; Peay HL; Wheeler AC; Turbitt E; Biesecker BB
    J Intellect Disabil Res; 2019 Aug; 63(8):926-935. PubMed ID: 30747463
    [TBL] [Abstract][Full Text] [Related]  

  • 2. Parental decision making about clinical trial enrollment: A survey of parents of children with Fragile X syndrome.
    Turbitt E; Klein WMP; Rogers K; D'Amanda CS; Biesecker BB
    Health Psychol; 2020 Dec; 39(12):1070-1077. PubMed ID: 33252931
    [TBL] [Abstract][Full Text] [Related]  

  • 3. Parent ratings of ability to consent for clinical trials in fragile X syndrome.
    Bailey DB; Raspa M; Wheeler A; Edwards A; Bishop E; Bann C; Borasky D; Appelbaum PS
    J Empir Res Hum Res Ethics; 2014 Jul; 9(3):18-28. PubMed ID: 25422596
    [TBL] [Abstract][Full Text] [Related]  

  • 4. "Watching time tick by…": Decision making for Duchenne muscular dystrophy trials.
    Peay HL; Scharff H; Tibben A; Wilfond B; Bowie J; Johnson J; Nagaraju K; Escolar D; Piacentino J; Biesecker BB
    Contemp Clin Trials; 2016 Jan; 46():1-6. PubMed ID: 26546066
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Parent clinical trial priorities for fragile X syndrome: a best-worst scaling.
    Turbitt E; D'Amanda C; Hyman S; Weber JD; Bridges JFP; Peay HL; Biesecker BB
    Eur J Hum Genet; 2021 Aug; 29(8):1245-1251. PubMed ID: 34163011
    [TBL] [Abstract][Full Text] [Related]  

  • 6. Parental Perspectives on Pharmacological Clinical Trials: a Qualitative Study in Down Syndrome and Fragile X Syndrome.
    Reines V; Charen K; Rosser T; Eisen A; Sherman SL; Visootsak J
    J Genet Couns; 2017 Dec; 26(6):1333-1340. PubMed ID: 28536925
    [TBL] [Abstract][Full Text] [Related]  

  • 7. Parental decision making in pediatric otoplasty: The role of shared decision making in parental decisional conflict and decisional regret.
    Hong P; Gorodzinsky AY; Taylor BA; Chorney JM
    Laryngoscope; 2016 Jul; 126 Suppl 5():S5-S13. PubMed ID: 27233057
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Understanding the decisions of cancer clinical trial participants to enter research studies: factors associated with informed consent, patient satisfaction, and decisional regret.
    Stryker JE; Wray RJ; Emmons KM; Winer E; Demetri G
    Patient Educ Couns; 2006 Oct; 63(1-2):104-9. PubMed ID: 16242898
    [TBL] [Abstract][Full Text] [Related]  

  • 9. Motivations and Decision Making Processes of Men With X-linked Retinoschisis Considering Participation in an Ocular Gene Therapy Trial.
    Turriff A; Blain D; Similuk M; Biesecker B; Wiley H; Cukras C; Sieving PA
    Am J Ophthalmol; 2019 Aug; 204():90-96. PubMed ID: 30885710
    [TBL] [Abstract][Full Text] [Related]  

  • 10. A qualitative study of decision-making on Phase III randomized clinical trial participation in paediatric oncology: Adolescents' and parents' perspectives and preferences.
    Ingersgaard MV; Tulstrup M; Schmiegelow K; Larsen HB
    J Adv Nurs; 2018 Jan; 74(1):110-118. PubMed ID: 28771784
    [TBL] [Abstract][Full Text] [Related]  

  • 11. Decision-Making Quality in Parents Considering Adenotonsillectomy or Tympanostomy Tube Insertion for Their Children.
    Hong P; Maguire E; Purcell M; Ritchie KC; Chorney J
    JAMA Otolaryngol Head Neck Surg; 2017 Mar; 143(3):260-266. PubMed ID: 27930764
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Decisional Capacity for Informed Consent in Males and Females with Fragile X Syndrome.
    Wheeler AC; Wylie A; Raspa M; Villagomez A; Miller K; Edwards A; DeRamus M; Appelbaum PS; Bailey DB
    J Autism Dev Disord; 2020 May; 50(5):1725-1747. PubMed ID: 30825084
    [TBL] [Abstract][Full Text] [Related]  

  • 13. Parents' experiences in decision making with childhood cancer clinical trials.
    Woodgate RL; Yanofsky RA
    Cancer Nurs; 2010; 33(1):11-8. PubMed ID: 19926980
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Surrendering control, or nothing to lose: Parents' preferences about participation in a randomised trial of childhood strabismus surgery.
    Buck D; Hogan V; Powell CJ; Sloper JJ; Speed C; Taylor RH; Tiffin P; Clarke MP;
    Clin Trials; 2015 Aug; 12(4):384-93. PubMed ID: 25805203
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Parental Conflict, Regret, and Short-term Impact on Quality of Life in Tracheostomy Decision-Making.
    October TW; Jones AH; Greenlick Michals H; Hebert LM; Jiang J; Wang J
    Pediatr Crit Care Med; 2020 Feb; 21(2):136-142. PubMed ID: 31568244
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Pandemic influenza A (H1N1) vaccination in The Netherlands: parental reasoning underlying child vaccination choices.
    Bults M; Beaujean DJ; Richardus JH; van Steenbergen JE; Voeten HA
    Vaccine; 2011 Aug; 29(37):6226-35. PubMed ID: 21736915
    [TBL] [Abstract][Full Text] [Related]  

  • 17. Application of protection motivation theory to clinical trial enrolment for pediatric chronic conditions.
    Brooks SP; Bubela T
    BMC Pediatr; 2020 Mar; 20(1):123. PubMed ID: 32178652
    [TBL] [Abstract][Full Text] [Related]  

  • 18. Child and Parental Perspectives on Communication and Decision Making in Pediatric CKD: A Focus Group Study.
    Gutman T; Hanson CS; Bernays S; Craig JC; Sinha A; Dart A; Eddy AA; Gipson DS; Bockenhauer D; Yap HK; Groothoff J; Zappitelli M; Webb NJA; Alexander SI; Goldstein SL; Furth S; Samuel S; Blydt-Hansen T; Dionne J; Michael M; Wenderfer SE; Winkelmayer WC; Currier H; McTaggart S; Walker A; Ralph AF; Ju A; James LJ; Carter S; Tong A
    Am J Kidney Dis; 2018 Oct; 72(4):547-559. PubMed ID: 29980375
    [TBL] [Abstract][Full Text] [Related]  

  • 19. Parental decision making involvement and decisional conflict: a descriptive study.
    Boland L; Kryworuchko J; Saarimaki A; Lawson ML
    BMC Pediatr; 2017 Jun; 17(1):146. PubMed ID: 28610580
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Understanding parents' decision-making on participation in clinical trials in children's heart surgery: a qualitative study.
    Drury NE; Menzies JC; Taylor CJ; Jones TJ; Lavis AC
    BMJ Open; 2021 Feb; 11(2):e044896. PubMed ID: 33622954
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 9.