198 related articles for article (PubMed ID: 30852532)
1. Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy: a mixed-methods study protocol.
Powell PA; Carlton J; Rowen D; Brazier JE
BMJ Open; 2019 Mar; 9(3):e023685. PubMed ID: 30852532
[TBL] [Abstract][Full Text] [Related]
2. Deriving a Preference-Based Measure for People With Duchenne Muscular Dystrophy From the DMD-QoL.
Rowen D; Powell P; Mukuria C; Carlton J; Norman R; Brazier J
Value Health; 2021 Oct; 24(10):1499-1510. PubMed ID: 34593174
[TBL] [Abstract][Full Text] [Related]
3. A comprehensive qualitative framework for health-related quality of life in Duchenne muscular dystrophy.
Powell PA; Carlton J
Qual Life Res; 2023 Jan; 32(1):225-236. PubMed ID: 36050623
[TBL] [Abstract][Full Text] [Related]
4. Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods: The DMD-QoL.
Powell PA; Carlton J; Rowen D; Chandler F; Guglieri M; Brazier JE
Neurology; 2021 May; 96(19):e2438-e2450. PubMed ID: 33785551
[TBL] [Abstract][Full Text] [Related]
5. Reliability and validity of the Thai version of the Pediatric Quality of Life inventory™ 3.0 Duchenne Muscular Dystrophy module in Thai children with Duchenne Muscular Dystrophy.
Thongsing A; Likasitwattanakul S; Sanmaneechai O
Health Qual Life Outcomes; 2019 May; 17(1):76. PubMed ID: 31046775
[TBL] [Abstract][Full Text] [Related]
6. The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales.
Davis SE; Hynan LS; Limbers CA; Andersen CM; Greene MC; Varni JW; Iannaccone ST
J Clin Neuromuscul Dis; 2010 Mar; 11(3):97-109. PubMed ID: 20215981
[TBL] [Abstract][Full Text] [Related]
7. Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks.
Schwartz CE; Stark RB; Cella D; Borowiec K; Gooch KL; Audhya IF
Orphanet J Rare Dis; 2021 Nov; 16(1):487. PubMed ID: 34809687
[TBL] [Abstract][Full Text] [Related]
8. Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.
Cavazza M; Kodra Y; Armeni P; De Santis M; López-Bastida J; Linertová R; Oliva-Moreno J; Serrano-Aguilar P; Posada-de-la-Paz M; Taruscio D; Schieppati A; Iskrov G; Péntek M; von der Schulenburg JM; Kanavos P; Chevreul K; Persson U; Fattore G;
Eur J Health Econ; 2016 Apr; 17 Suppl 1():19-29. PubMed ID: 27038625
[TBL] [Abstract][Full Text] [Related]
9. Health related quality of life in young, steroid-naïve boys with Duchenne muscular dystrophy.
Campbell C; McColl E; McDermott MP; Martens WB; Guglieri M; Griggs RC;
Neuromuscul Disord; 2021 Nov; 31(11):1161-1168. PubMed ID: 34489153
[TBL] [Abstract][Full Text] [Related]
10. Psychometric properties of the Zarit Caregiver Burden Interview administered to caregivers to patients with Duchenne muscular dystrophy: a Rasch analysis.
Landfeldt E; Mayhew A; Straub V; Bushby K; Lochmüller H; Lindgren P
Disabil Rehabil; 2019 Apr; 41(8):966-973. PubMed ID: 29254382
[TBL] [Abstract][Full Text] [Related]
11. Developing a dementia-specific preference--based quality of life measure (AD-5D) in Australia: a valuation study protocol.
Comans TA; Nguyen KH; Mulhern B; Corlis M; Li L; Welch A; Kurrle SE; Rowen D; Moyle W; Kularatna S; Ratcliffe J
BMJ Open; 2018 Jan; 8(1):e018996. PubMed ID: 29358437
[TBL] [Abstract][Full Text] [Related]
12. The relationship between quality of life and health-related quality of life in young males with Duchenne muscular dystrophy.
Wei Y; Speechley KN; Zou G; Campbell C
Dev Med Child Neurol; 2017 Nov; 59(11):1152-1157. PubMed ID: 28963725
[TBL] [Abstract][Full Text] [Related]
13. Validation study of the prototype of a disease-specific index measure for health-related quality of life in dementia.
Schölzel-Dorenbos CJ; Arons AM; Wammes JJ; Rikkert MG; Krabbe PF
Health Qual Life Outcomes; 2012 Sep; 10():118. PubMed ID: 23009579
[TBL] [Abstract][Full Text] [Related]
14. Measuring quality of life in Duchenne muscular dystrophy: a systematic review of the content and structural validity of commonly used instruments.
Powell PA; Carlton J; Woods HB; Mazzone P
Health Qual Life Outcomes; 2020 Aug; 18(1):263. PubMed ID: 32746836
[TBL] [Abstract][Full Text] [Related]
15. Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy.
Propp R; McAdam L; Davis AM; Salbach NM; Weir S; Encisa C; Narayanan UG
Dev Med Child Neurol; 2019 Jan; 61(1):75-81. PubMed ID: 30058069
[TBL] [Abstract][Full Text] [Related]
16. Predictors of Health-Related Quality of Life in boys with Duchenne muscular dystrophy from six European countries.
Otto C; Steffensen BF; Højberg AL; Barkmann C; Rahbek J; Ravens-Sieberer U; Mahoney A; Vry J; Gramsch K; Thompson R; Rodger S; Bushby K; Lochmüller H; Kirschner J
J Neurol; 2017 Apr; 264(4):709-723. PubMed ID: 28175989
[TBL] [Abstract][Full Text] [Related]
17. International phase 1 study protocol to develop a health state classification system for a preference-based measure for women with breast cancer: the BREAST-Q Utility module.
Kaur M; Pusic AL; Cano SJ; Xie F; Bordeleau L; Zhong T; Klassen A
BMJ Open; 2020 Jan; 10(1):e034451. PubMed ID: 31915176
[TBL] [Abstract][Full Text] [Related]
18. Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study.
Schwartz CE; Jackson S; Valentine J; Miller N; Lowes L; Edwards D; McSherry C; Savva D; Lowe A; McSherry J; Engel P
Orphanet J Rare Dis; 2023 Apr; 18(1):90. PubMed ID: 37081508
[TBL] [Abstract][Full Text] [Related]
19. Characterizing health state utilities associated with Duchenne muscular dystrophy: a systematic review.
Szabo SM; Audhya IF; Malone DC; Feeny D; Gooch KL
Qual Life Res; 2020 Mar; 29(3):593-605. PubMed ID: 31811595
[TBL] [Abstract][Full Text] [Related]
20. Development of a Clinical Global Impression of Change (CGI-C) and a Caregiver Global Impression of Change (CaGI-C) measure for ambulant individuals with Duchenne muscular dystrophy.
Staunton H; Trennery C; Arbuckle R; Guridi M; Zhuravleva E; Furlong P; Fischer R; Hall R
Health Qual Life Outcomes; 2021 Jul; 19(1):184. PubMed ID: 34311756
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]