These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

150 related articles for article (PubMed ID: 31046390)

  • 1. Rare diseases in the year 2019 - the Czech and international context.
    Macek M
    Cas Lek Cesk; 2019; 158(1):33-37. PubMed ID: 31046390
    [TBL] [Abstract][Full Text] [Related]  

  • 2. Tackling rare diseases at European level: why do we need a harmonized framework?
    Taruscio D; Trama A; Stefanov R
    Folia Med (Plovdiv); 2007; 49(1-2):59-67. PubMed ID: 18018471
    [TBL] [Abstract][Full Text] [Related]  

  • 3. Transposition and implementation of EU rare disease policy in Eastern Europe.
    Pejcic AV; Iskrov G; Raycheva R; Stefanov R; Jakovljevic MM
    Expert Rev Pharmacoecon Outcomes Res; 2017 Dec; 17(6):557-566. PubMed ID: 28975845
    [TBL] [Abstract][Full Text] [Related]  

  • 4. A research roadmap for complementary and alternative medicine - what we need to know by 2020.
    Fischer F; Lewith G; Witt CM; Linde K; von Ammon K; Cardini F; Falkenberg T; Fønnebø V; Johannessen H; Reiter B; Uehleke B; Weidenhammer W; Brinkhaus B
    Forsch Komplementmed; 2014; 21(2):e1-16. PubMed ID: 24851850
    [TBL] [Abstract][Full Text] [Related]  

  • 5. [A proposal for reforming psychologists' training in France and in the European Union].
    Bouchard JP
    Encephale; 2009 Feb; 35(1):18-24. PubMed ID: 19250989
    [TBL] [Abstract][Full Text] [Related]  

  • 6. ORPHAcodes use for the coding of rare diseases: comparison of the accuracy and cross country comparability.
    Mazzucato M; Pozza LVD; Facchin P; Angin C; Agius F; Cavero-Carbonell C; Corrochano V; Hanusova K; Kirch K; Lambert D; Lucano C; Maiella S; Panzaru M; Rusu C; Weber S; Zurriaga O; Zvolsky M; Rath A
    Orphanet J Rare Dis; 2023 Sep; 18(1):267. PubMed ID: 37667299
    [TBL] [Abstract][Full Text] [Related]  

  • 7. National registries of rare diseases in Europe: an overview of the current situation and experiences.
    Taruscio D; Vittozzi L; Choquet R; Heimdal K; Iskrov G; Kodra Y; Landais P; Posada M; Stefanov R; Steinmueller C; Swinnen E; Van Oyen H
    Public Health Genomics; 2015; 18(1):20-5. PubMed ID: 25228300
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Policies and actions to tackle rare diseases at European level.
    Montserrat A; Taruscio D
    Ann Ist Super Sanita; 2019; 55(3):296-304. PubMed ID: 31553326
    [TBL] [Abstract][Full Text] [Related]  

  • 9. The Tuscany Regional Network for rare diseases: from European Reference Networks' experience to registry based organisation and management model for rare diseases.
    Pieroni F; Marrucci S; Di Pietro L; Berni C; Scaletti C
    Orphanet J Rare Dis; 2023 Oct; 18(1):324. PubMed ID: 37833795
    [TBL] [Abstract][Full Text] [Related]  

  • 10. National plans and strategies on rare diseases in Europe.
    Taruscio D; Vittozzi L; Stefanov R
    Adv Exp Med Biol; 2010; 686():475-91. PubMed ID: 20824461
    [TBL] [Abstract][Full Text] [Related]  

  • 11. How the EUCERD Joint Action supported initiatives on Rare Diseases.
    Lynn S; Hedley V; Atalaia A; Evangelista T; Bushby K;
    Eur J Med Genet; 2017 Mar; 60(3):185-189. PubMed ID: 28087401
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Coding undiagnosed rare disease patients in health information systems: recommendations from the RD-CODE project.
    Angin C; Mazzucato M; Weber S; Kirch K; Abdel Khalek W; Ali H; Maiella S; Olry A; Jannot AS; Rath A
    Orphanet J Rare Dis; 2024 Jan; 19(1):28. PubMed ID: 38280999
    [TBL] [Abstract][Full Text] [Related]  

  • 13. The European union policy in the field of rare diseases.
    Montserrat Moliner A; Waligóra J
    Public Health Genomics; 2013; 16(6):268-77. PubMed ID: 24503587
    [TBL] [Abstract][Full Text] [Related]  

  • 14. [European Reference Networks : Consequences for healthcare in Germany].
    Graessner H; Schäfer F; Scarpa M; Wagner TOF
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):537-541. PubMed ID: 28275837
    [TBL] [Abstract][Full Text] [Related]  

  • 15. The many faces of rare diseases (RD): meeting report on Rare Disease in South-Eastern Europe, 15-16 November 2013, Skopje, Republic of Macedonia.
    Gucev Z; Tasic V; Polenakovic M
    Pediatr Endocrinol Rev; 2014 Mar; 11(3):337-8. PubMed ID: 24716400
    [TBL] [Abstract][Full Text] [Related]  

  • 16. RaDiCo, the French national research program on rare disease cohorts.
    Amselem S; Gueguen S; Weinbach J; Clement A; Landais P;
    Orphanet J Rare Dis; 2021 Oct; 16(1):454. PubMed ID: 34715889
    [TBL] [Abstract][Full Text] [Related]  

  • 17. The pooling of manpower and resources through the establishment of European reference networks and rare disease patient registries is a necessary area of collaboration for rare renal disorders.
    Parker S
    Nephrol Dial Transplant; 2014 Sep; 29 Suppl 4():iv9-14. PubMed ID: 25165190
    [TBL] [Abstract][Full Text] [Related]  

  • 18. The European Union Policy in the Field of Rare Diseases.
    Moliner AM; Waligora J
    Adv Exp Med Biol; 2017; 1031():561-587. PubMed ID: 29214592
    [TBL] [Abstract][Full Text] [Related]  

  • 19. The EuRRECa Project as a Model for Data Access and Governance Policies for Rare Disease Registries That Collect Clinical Outcomes.
    Ali SR; Bryce J; Tan LE; Hiort O; Pereira AM; van den Akker ELT; Appelman-Dijkstra NM; Bertherat J; Cools M; Dekkers OM; Kodra Y; Persani L; Smyth A; Smythe C; Taruscio D; Ahmed SF
    Int J Environ Res Public Health; 2020 Nov; 17(23):. PubMed ID: 33255540
    [TBL] [Abstract][Full Text] [Related]  

  • 20. [Hungarian national plan and strategy for rare diseases].
    Kosztolányi G
    Orv Hetil; 2014 Mar; 155(9):325-8. PubMed ID: 24566695
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 8.