These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.
155 related articles for article (PubMed ID: 31649726)
1. Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations. Munung NS; Nembaware V; de Vries J; Bukini D; Tluway F; Treadwell M; Sangeda RZ; Mazandu G; Jonas M; Paintsil V; Nnodu OE; Balandya E; Makani J; Wonkam A Front Genet; 2019; 10():943. PubMed ID: 31649726 [TBL] [Abstract][Full Text] [Related]
2. Establishing a Sickle Cell Disease Registry in Africa: Experience From the Sickle Pan-African Research Consortium, Kumasi-Ghana. Paintsil V; Amuzu EX; Nyanor I; Asafo-Adjei E; Mohammed AR; Yawnumah SA; Oppong-Mensah YG; Nguah SB; Obeng P; Dogbe EE; Jonas M; Nembaware V; Mazandu G; Ohene-Frempong K; Wonkam A; Makani J; Ansong D; Osei-Akoto A; Front Genet; 2022; 13():802355. PubMed ID: 35281803 [TBL] [Abstract][Full Text] [Related]
3. Assent, parental consent and reconsent for health research in Africa: thematic analysis of national guidelines and lessons from the SickleInAfrica registry. Munung NS; Nembaware V; Osei-Tutu L; Treadwell M; Chide OE; Bukini D; Tutuba H; ; Wonkam A BMC Med Ethics; 2022 Dec; 23(1):130. PubMed ID: 36482457 [TBL] [Abstract][Full Text] [Related]
4. The Ugandan sickle Pan-African research consortium registry: design, development, and lessons. Nsubuga M; Mutegeki H; Jjingo D; Munube D; Namazzi R; Opoka R; Kasirye P; Ndeezi G; Hume H; Mupere E; Kebirungi G; Birungi I; Morrice J; Jonas M; Nembaware V; Wonkam A; Makani J; Kiguli S BMC Med Inform Decis Mak; 2024 Jul; 24(1):212. PubMed ID: 39075479 [TBL] [Abstract][Full Text] [Related]
5. Development of the sickle Pan-African research consortium registry in Tanzania: opportunity to harness data science for sickle cell disease. Kandonga D; Sangeda RZ; Masamu U; Kazumali E; Jonathan A; Msangawale M; Kaihula W; Rwegalulila J; Ondego J; Tutuba HJ; Ndunguru J; Ambrose EE; Kidenya BR; Yonazi M; Kyomugisha I; Mupfururirwa W; Jonas M; Nembaware V; Mazandu GK; Kengne AP; Wonkam A; Makani J; Balandya E Front Hematol; 2023; 2():. PubMed ID: 39247216 [TBL] [Abstract][Full Text] [Related]
6. Development of multi-level standards of care recommendations for sickle cell disease: Experience from SickleInAfrica. Paintsil V; Ally M; Isa H; Anie KA; Mgaya J; Nkanyemka M; Nembaware V; Oppong-Mensah YG; Ndobho F; Chirande L; Makubi A; Nnodu O; Wonkam A; Makani J; Ohene-Frempong K Front Genet; 2022; 13():1052179. PubMed ID: 36712852 [No Abstract] [Full Text] [Related]
7. Bridging the Access Gap for Comprehensive Sickle Cell Disease Management Across Sub-Saharan Africa: Learnings for Other Global Health Interventions? Hegemann L; Narasimhan V; Marfo K; Kuma-Aboagye P; Ofori-Acquah S; Odame I Ann Glob Health; 2023; 89(1):76. PubMed ID: 38025926 [TBL] [Abstract][Full Text] [Related]
8. Skills Capacity Building For Health Care Services and Research Through the Sickle Pan African Research Consortium. Nnodu OE; Osei-Akoto A; Nembaware V; Kent J; Nwegbu M; Minja I; Mazandu GK; Makani J; Wonkam A Front Genet; 2022; 13():805806. PubMed ID: 35783259 [TBL] [Abstract][Full Text] [Related]
9. The Sickle Cell Disease Ontology: Enabling Collaborative Research and Co-Designing of New Planetary Health Applications. Nembaware V; Mazandu GK; Hotchkiss J; Safari Serufuri JM; Kent J; Kengne AP; Anie K; Munung NS; Bukini D; Bitoungui VJN; Munube D; Chirwa U; Chunda-Liyoka C; Jonathan A; Flor-Park MV; Esoh KK; Jonas M; Mnika K; Oosterwyk C; Masamu U; Morrice J; Uwineza A; Nguweneza A; Banda K; Nyanor I; Adjei DN; Siebu NE; Nkanyemka M; Kuona P; Tayo BO; Campbell A; Oron AP; Nnodu OE; Painstil V; Makani J; Mulder N; Wonkam A OMICS; 2020 Oct; 24(10):559-567. PubMed ID: 33021900 [TBL] [Abstract][Full Text] [Related]
10. Establishing a database for sickle cell disease patient mapping and survival tracking: The sickle pan-african research consortium Nigeria example. Nnodu O; Madu A; Chianumba R; Isa HA; Olanrewaju I; Osagie S; Oyekanmi N; Sangeda RZ; Stewart A; Nembaware V; Morrice J; Jonas M; Mazandu G; Wonkam A; Owolabi O Front Genet; 2022; 13():1041462. PubMed ID: 36406113 [No Abstract] [Full Text] [Related]
11. Looking ahead: ethical and social challenges of somatic gene therapy for sickle cell disease in Africa. Munung NS; Nnodu OE; Moru PO; Kalu AA; Impouma B; Treadwell MJ; Wonkam A Gene Ther; 2024 May; 31(5-6):202-208. PubMed ID: 38012299 [TBL] [Abstract][Full Text] [Related]
12. Sickle Cell Disease Genomics of Africa (SickleGenAfrica) Network: ethical framework and initial qualitative findings from community engagement in Ghana, Nigeria and Tanzania. Anie KA; Olayemi E; Paintsil V; Owusu-Dabo E; Adeyemo TA; Sani MU; Galadanci NA; Nnodu O; Tluway F; Adjei DN; Mensah P; Sarfo-Antwi J; Nwokobia H; Gambo A; Benjamin A; Salim A; Osae-Larbi JA; Ofori-Acquah SF; BMJ Open; 2021 Jul; 11(7):e048208. PubMed ID: 34301659 [TBL] [Abstract][Full Text] [Related]
13. Curative options for sickle cell disease in Africa: Approach in Tanzania. Makani J; Hematol Oncol Stem Cell Ther; 2020 Jun; 13(2):66-70. PubMed ID: 32201150 [TBL] [Abstract][Full Text] [Related]
14. A contemporary evaluation of the frequency & factors associated with overt stroke across the lifespan: A Ghanaian sickle cell disease registry analysis. Sarfo FS; Paintsil V; Nyanor I; Asafo-Adjei EK; Ahmed EA; Nguah SB; Amuzu EX; Abubakar SY; Tutu LO; Mensah YGO; Nartey AK; Bediako AA; Osei L; Mantey AA; Acheampong E; Ansong D; Akoto AO J Neurol Sci; 2024 Nov; 466():123263. PubMed ID: 39368214 [TBL] [Abstract][Full Text] [Related]
16. Sickle cell disease in sub-Saharan Africa: stakes and strategies for control of the disease. Diallo DA; Guindo A Curr Opin Hematol; 2014 May; 21(3):210-4. PubMed ID: 24613937 [TBL] [Abstract][Full Text] [Related]
17. Impact of Sickle Cell Awareness Day on online health information seeking in Africa using Google Trends. Parry E; Ayinla-Jimoh I; Shepherd TA Health Promot Int; 2023 Dec; 38(6):. PubMed ID: 38041809 [TBL] [Abstract][Full Text] [Related]
18. Human Heredity and Health (H3) in Africa Kidney Disease Research Network: A Focus on Methods in Sub-Saharan Africa. Osafo C; Raji YR; Burke D; Tayo BO; Tiffin N; Moxey-Mims MM; Rasooly RS; Kimmel PL; Ojo A; Adu D; Parekh RS; Clin J Am Soc Nephrol; 2015 Dec; 10(12):2279-87. PubMed ID: 26138261 [TBL] [Abstract][Full Text] [Related]
19. The Ethics of Introducing GMOs into sub-Saharan Africa: Considerations from the sub-Saharan African Theory of Ubuntu. Komparic A Bioethics; 2015 Nov; 29(9):604-12. PubMed ID: 26481201 [TBL] [Abstract][Full Text] [Related]
20. Developing a global agenda for sickle cell disease: report of an international symposium and workshop in Cotonou, Republic of Benin. Odame I Am J Prev Med; 2010 Apr; 38(4 Suppl):S571-5. PubMed ID: 20331960 [TBL] [Abstract][Full Text] [Related] [Next] [New Search]