158 related articles for article (PubMed ID: 32228824)
1. State of knowledge about information sources and health care centres for rare diseases among affected people in Germany.
Hanisch M; Wiemann S; Bohner L; Jung S; Kleinheinz J
Cent Eur J Public Health; 2020 Mar; 28(1):82-84. PubMed ID: 32228824
[TBL] [Abstract][Full Text] [Related]
2. [Measures to improve the health situation of patients with rare diseases in Germany. A comparison with the National Action Plan].
Frank M; Eidt-Koch D; Aumann I; Reimann A; Wagner TO; Graf von der Schulenburg JM
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2014 Oct; 57(10):1216-23. PubMed ID: 25209683
[TBL] [Abstract][Full Text] [Related]
3. [Speak up for people with rare diseases: ACHSE : ACHSE, Rare Diseases Germany, and its network].
Mundlos C
Internist (Berl); 2018 Dec; 59(12):1327-1334. PubMed ID: 30377713
[TBL] [Abstract][Full Text] [Related]
4. [se-atlas - the health service information platform for people with rare diseases : Supporting research on medical care institutions and support groups].
Haase J; Wagner TOF; Storf H
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):503-509. PubMed ID: 28275836
[TBL] [Abstract][Full Text] [Related]
5. [Healthcare services for people in Lower Saxony (Germany) suffering from a rare disease: Findings from a survey among medical professionals].
Pauer F; Pflaum U; Lührs V; Frank M; Graf von der Schulenburg JM
Z Evid Fortbild Qual Gesundhwes; 2016; 113():36-44. PubMed ID: 27480187
[TBL] [Abstract][Full Text] [Related]
6. [Seven years of the National Action League for People with Rare Diseases : NAMSE - a success story?!].
Halbach A; Schnieders B; Knufmann-Happe K
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):479-486. PubMed ID: 28337510
[TBL] [Abstract][Full Text] [Related]
7. [Evaluation of a future scenario concerning the use of big data applications to improve the care of people with rare diseases].
Sedlmayr B; Knapp A; Kümmel M; Bathelt F; Sedlmayr M
Z Evid Fortbild Qual Gesundhwes; 2020 Dec; 158-159():81-91. PubMed ID: 33250393
[TBL] [Abstract][Full Text] [Related]
8. [Rare diseases, digitization, and the National Action League for People with Rare Diseases (NAMSE)].
Wessel T; Heuing K; Schlangen M; Schnieders B; Algermissen M
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2022 Nov; 65(11):1119-1125. PubMed ID: 36239769
[TBL] [Abstract][Full Text] [Related]
9. Potentials and current shortcomings in the cooperation between German centers for rare diseases and primary care physicians: results from the project TRANSLATE-NAMSE.
Druschke D; Krause F; Müller G; Scharfe J; Hoffmann GF; Schmitt J;
Orphanet J Rare Dis; 2021 Nov; 16(1):494. PubMed ID: 34819135
[TBL] [Abstract][Full Text] [Related]
10. [Reliable health information for patients with rare diseases : Quality demands defined by the National Action Plan and how they are put into practice].
Schaefer C; Brunsmann F; Siegert S
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):510-516. PubMed ID: 28289777
[TBL] [Abstract][Full Text] [Related]
11. Association between Oral Health-Related Quality of Life in People with Rare Diseases and Their Satisfaction with Dental Care in the Health System of the Federal Republic of Germany.
Hanisch M; Wiemann S; Bohner L; Kleinheinz J; Jung S
Int J Environ Res Public Health; 2018 Aug; 15(8):. PubMed ID: 30104509
[TBL] [Abstract][Full Text] [Related]
12. Vision and challenges of a cartographic representation of expert medical centres for rare diseases.
Storf H; Hartz T; Tegtbauer N; Pfeiffer W; Schmidtke J; Graessner H; Wagner T; Uckert F
Stud Health Technol Inform; 2014; 205():677-81. PubMed ID: 25160272
[TBL] [Abstract][Full Text] [Related]
13. [Orphanet and its consortium: where to find expert-validated information on rare diseases].
Maiella S; Rath A; Angin C; Mousson F; Kremp O
Rev Neurol (Paris); 2013 Feb; 169 Suppl 1():S3-8. PubMed ID: 23452769
[TBL] [Abstract][Full Text] [Related]
14. Interface management concepts in healthcare for rare diseases in Germany: a study protocol for a mixed-methods study to develop best practice recommendations.
Inhestern L; Zybarth D; Otto R; Brandt M; Härter M; Bergelt C
BMJ Open; 2020 Nov; 10(11):e040470. PubMed ID: 33257484
[TBL] [Abstract][Full Text] [Related]
15. [Rare diseases in dentistry and oral medicine : Report on the 2017 first national congress].
Hanisch M; Jung S; Kleinheinz J
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2018 Apr; 61(4):442-445. PubMed ID: 29445842
[TBL] [Abstract][Full Text] [Related]
16. Mapping of Health Care Providers for People with Rare Diseases - From Vision to Implementation.
Schaefer J; Tegtbauer N; Pfeiffer W; Wagner TOF; Storf H
Stud Health Technol Inform; 2018; 247():940-944. PubMed ID: 29678099
[TBL] [Abstract][Full Text] [Related]
17. [Does the healthcare for rare diseases benefit from the legislative reforms?].
Heyder R
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):487-493. PubMed ID: 28289779
[TBL] [Abstract][Full Text] [Related]
18. [Oral Health-Related Quality of Life in Rare Diseases with Oral Manifestations].
Hanisch M; Jung S; Kleinheinz J
Gesundheitswesen; 2019 Nov; 81(11):902-906. PubMed ID: 29653453
[TBL] [Abstract][Full Text] [Related]
19. [Oral health-related quality of life in rare diseases associated with oral symptoms, diagnostic delay, and sex].
Bohner L; Wiemann S; Jung S; Kleinheinz J; Hanisch M
Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2019 Nov; 62(11):1406-1411. PubMed ID: 31578619
[TBL] [Abstract][Full Text] [Related]
20. [se-atlas.de-Medical care atlas for people with rare diseases].
Neff M; Schaaf J; Tegtbauer N; Schäfer J; Till M; Wagner TOF; Graeßner H; Mundlos C; Storf H
Internist (Berl); 2021 Oct; 62(10):1115-1122. PubMed ID: 34283250
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
