214 related articles for article (PubMed ID: 32367663)
1. Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis.
Kruithof K; Willems D; van Etten-Jamaludin F; Olsman E
J Appl Res Intellect Disabil; 2020 Nov; 33(6):1141-1150. PubMed ID: 32367663
[TBL] [Abstract][Full Text] [Related]
2. Strategies that facilitate participation in family activities of children and adolescents with profound intellectual and multiple disabilities: parents' and personal assistants' experiences.
Axelsson AK; Imms C; Wilder J
Disabil Rehabil; 2014; 36(25):2169-77. PubMed ID: 24588070
[TBL] [Abstract][Full Text] [Related]
3. Parents' experiences of collaborating with professionals in the support of their child with profound intellectual and multiple disabilities.
Jansen SL; van der Putten AA; Vlaskamp C
J Intellect Disabil; 2017 Mar; 21(1):53-67. PubMed ID: 27056641
[TBL] [Abstract][Full Text] [Related]
4. Family-centredness of professionals who support people with profound intellectual and multiple disabilities: validation of the Dutch 'Measure of Processes of Care for Service Providers' (MPOC-SP-PIMD).
Jansen SL; van der Putten AA; Post WJ; Vlaskamp C
Res Dev Disabil; 2014 Jul; 35(7):1623-30. PubMed ID: 24770470
[TBL] [Abstract][Full Text] [Related]
5. Care and support for persons with profound intellectual and multiple disabilities without parents: A qualitative exploration.
Kruithof K; Willems D; Nieuwenhuijse A; Olsman E
Res Dev Disabil; 2022 Nov; 130():104334. PubMed ID: 36115069
[TBL] [Abstract][Full Text] [Related]
6. 'What if I'm no longer around?': An evaluative description of a structured group conversation about the care for persons with profound intellectual and multiple disabilities when they outlive their parents.
Kruithof K; Olsman E; Willems D; Volkers K; Kleijwegt B; Nieuwenhuijse A
J Appl Res Intellect Disabil; 2024 Mar; 37(2):e13185. PubMed ID: 38097399
[TBL] [Abstract][Full Text] [Related]
7. What parents find important in the support of a child with profound intellectual and multiple disabilities.
Jansen SL; van der Putten AA; Vlaskamp C
Child Care Health Dev; 2013 May; 39(3):432-41. PubMed ID: 22515566
[TBL] [Abstract][Full Text] [Related]
8. Parents' experiences of parenting a child with profound intellectual and multiple disabilities in France: A qualitative study.
Aim MA; Rousseau MC; Hamouda I; Anzola AB; de Villemeur TB; Milh M; Maincent K; Lind K; Auquier P; Baumstarck K; Dany L
Health Expect; 2023 Nov; 27(1):. PubMed ID: 37932892
[TBL] [Abstract][Full Text] [Related]
9. How parents and physicians experience end-of-life decision-making for children with profound intellectual and multiple disabilities.
Zaal-Schuller IH; Willems DL; Ewals FVPM; van Goudoever JB; de Vos MA
Res Dev Disabil; 2016 Dec; 59():283-293. PubMed ID: 27665411
[TBL] [Abstract][Full Text] [Related]
10. Parents' views on medical decisions related to life and death for their ageing child with profound intellectual and multiple disabilities: A qualitative study.
Kruithof K; Olsman E; Nieuwenhuijse A; Willems D
Res Dev Disabil; 2022 Feb; 121():104154. PubMed ID: 34954670
[TBL] [Abstract][Full Text] [Related]
11. Time use of parents raising children with severe or profound intellectual and multiple disabilities.
Luijkx J; van der Putten AAJ; Vlaskamp C
Child Care Health Dev; 2017 Jul; 43(4):518-526. PubMed ID: 28156014
[TBL] [Abstract][Full Text] [Related]
12. [Development of a New Resilience Scale for Parents of Children with Profound Intellectual and Multiple Disabilities].
Tanaka M; Hisata M; Miyasaka M; Kurata K; Takizawa K; Nishikata M; Tohyama J; Seki N
Nihon Eiseigaku Zasshi; 2019; 74(0):. PubMed ID: 30787256
[TBL] [Abstract][Full Text] [Related]
13. [Experiences and needs of parents of hospitalised children with disabilities and the health professionals responsible for the child’s health-care – A systematic review].
Seliner B; Wattinger A; Spirig R
Pflege; 2015 Oct; 28(5):263-76. PubMed ID: 26412679
[TBL] [Abstract][Full Text] [Related]
14. Parent perspectives on the assessment of quality of life of their children with profound intellectual and multiple disabilities in the Netherlands.
Nieuwenhuijse AM; Willems DL; van Goudoever JB; Olsman E
Res Dev Disabil; 2023 Aug; 139():104536. PubMed ID: 37269577
[TBL] [Abstract][Full Text] [Related]
15. Tacit knowledge in dyads of persons with profound intellectual and multiple disabilities and their caregivers: An interpretative literature study.
Hoogsteyns M; Zaal-Schuller I; Huisman S; Nieuwenhuijse AM; van Etten-Jamaludi F; Willems D; Kruithof K
J Appl Res Intellect Disabil; 2023 Sep; 36(5):966-977. PubMed ID: 37339925
[TBL] [Abstract][Full Text] [Related]
16. Parent training interventions for parents with intellectual disability.
Coren E; Ramsbotham K; Gschwandtner M
Cochrane Database Syst Rev; 2018 Jul; 7(7):CD007987. PubMed ID: 30004571
[TBL] [Abstract][Full Text] [Related]
17. Transition to adulthood of adolescents with profound intellectual and multiple disabilities: Content validation of the SGU-PIMD to support families.
Luitwieler N; Luijkx J; van der Stege HA; Grootoonk A; van der Schans CP; van der Putten AAJ; Waninge A
J Appl Res Intellect Disabil; 2024 Jan; 37(1):e13161. PubMed ID: 37793995
[TBL] [Abstract][Full Text] [Related]
18. Considering quality of life in end-of-life decisions for severely disabled children.
Zaal-Schuller IH; Willems DL; Ewals FVPM; van Goudoever JB; de Vos MA
Res Dev Disabil; 2018 Feb; 73():67-75. PubMed ID: 29268163
[TBL] [Abstract][Full Text] [Related]
19. When children with profound multiple disabilities are hospitalized: A cross-sectional survey of parental burden of care, quality of life of parents and their hospitalized children, and satisfaction with family-centered care.
Seliner B; Latal B; Spirig R
J Spec Pediatr Nurs; 2016 Jul; 21(3):147-57. PubMed ID: 27319801
[TBL] [Abstract][Full Text] [Related]
20. Transferring young people with profound intellectual and multiple disabilities from pediatric to adult medical care: parents' experiences and recommendations.
Bindels-de Heus KG; van Staa A; van Vliet I; Ewals FV; Hilberink SR
Intellect Dev Disabil; 2013 Jun; 51(3):176-89. PubMed ID: 23834214
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
