185 related articles for article (PubMed ID: 32375095)
1. Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers.
Nabbout R; Dirani M; Teng T; Bianic F; Martin M; Holland R; Chemaly N; Coque N
Epilepsy Behav; 2020 Jul; 108():107094. PubMed ID: 32375095
[TBL] [Abstract][Full Text] [Related]
2. Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey.
Campbell JD; Whittington MD; Kim CH; VanderVeen GR; Knupp KG; Gammaitoni A
Epilepsy Behav; 2018 Mar; 80():152-156. PubMed ID: 29414545
[TBL] [Abstract][Full Text] [Related]
3. Development and content validation of a preliminary core set of patient- and caregiver-relevant outcomes for inclusion in a potential composite endpoint for Dravet Syndrome.
Nabbout R; Auvin S; Chiron C; Irwin J; Mistry A; Bonner N; Williamson N; Bennett B
Epilepsy Behav; 2018 Jan; 78():232-242. PubMed ID: 29108913
[TBL] [Abstract][Full Text] [Related]
4. The direct and indirect costs of Dravet Syndrome.
Whittington MD; Knupp KG; Vanderveen G; Kim C; Gammaitoni A; Campbell JD
Epilepsy Behav; 2018 Mar; 80():109-113. PubMed ID: 29414539
[TBL] [Abstract][Full Text] [Related]
5. Burden-of-illness and cost-driving factors in Dravet syndrome patients and carers: A prospective, multicenter study from Germany.
Strzelczyk A; Kalski M; Bast T; Wiemer-Kruel A; Bettendorf U; Kay L; Kieslich M; Kluger G; Kurlemann G; Mayer T; Neubauer BA; Polster T; Herting A; von Spiczak S; Trollmann R; Wolff M; Irwin J; Carroll J; Macdonald D; Pritchard C; Klein KM; Rosenow F; Schubert-Bast S
Eur J Paediatr Neurol; 2019 May; 23(3):392-403. PubMed ID: 30871879
[TBL] [Abstract][Full Text] [Related]
6. A multicenter, matched case-control analysis comparing burden-of-illness in Dravet syndrome to refractory epilepsy and seizure remission in patients and caregivers in Germany.
Strzelczyk A; Schubert-Bast S; Bast T; Bettendorf U; Fiedler B; Hamer HM; Herting A; Kalski M; Kay L; Kieslich M; Klein KM; Kluger G; Kurlemann G; Mayer T; Neubauer BA; Polster T; von Spiczak S; Stephani U; Trollmann R; Wiemer-Kruel A; Wolff M; Irwin J; Carroll J; Pritchard C; Rosenow F
Epilepsia; 2019 Aug; 60(8):1697-1710. PubMed ID: 31247127
[TBL] [Abstract][Full Text] [Related]
7. Perception of impact of Dravet syndrome on children and caregivers in multiple countries: looking beyond seizures.
Nabbout R; Auvin S; Chiron C; Thiele E; Cross H; Scheffer IE; Schneider AL; Guerrini R; Williamson N;
Dev Med Child Neurol; 2019 Oct; 61(10):1229-1236. PubMed ID: 30828793
[TBL] [Abstract][Full Text] [Related]
8. Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative study.
Soto Jansson J; Bjurulf B; Dellenmark Blom M; Hallböök T; Reilly C
Epilepsy Behav; 2024 Jul; 156():109790. PubMed ID: 38692022
[TBL] [Abstract][Full Text] [Related]
9. Caregiver impact and health service use in high and low severity Dravet syndrome: A multinational cohort study.
Lagae L; Irwin J; Gibson E; Battersby A
Seizure; 2019 Feb; 65():72-79. PubMed ID: 30616222
[TBL] [Abstract][Full Text] [Related]
10. Sleep quality, anxiety, symptoms of depression, and caregiver burden among those caring for patients with Dravet syndrome: a prospective multicenter study in Germany.
Maltseva M; Schubert-Bast S; Zöllner JP; Bast T; Mayer T; von Spiczak S; Ruf S; Trollmann R; Wolff M; Hornemann F; Klotz KA; Jacobs J; Kurlemann G; Neubauer BA; Polster T; Syrbe S; Bertsche A; Bettendorf U; Kluger G; Flege S; Rosenow F; Kay L; Strzelczyk A
Orphanet J Rare Dis; 2023 Apr; 18(1):98. PubMed ID: 37120555
[TBL] [Abstract][Full Text] [Related]
11. Behavior problems and health-related quality of life in Dravet syndrome.
Sinoo C; de Lange IM; Westers P; Gunning WB; Jongmans MJ; Brilstra EH
Epilepsy Behav; 2019 Jan; 90():217-227. PubMed ID: 30578097
[TBL] [Abstract][Full Text] [Related]
12. Dravet syndrome: Characteristics, comorbidities, and caregiver concerns.
Villas N; Meskis MA; Goodliffe S
Epilepsy Behav; 2017 Sep; 74():81-86. PubMed ID: 28732259
[TBL] [Abstract][Full Text] [Related]
13. DRAVET ENGAGE. Parent caregivers of children with Dravet syndrome: Perspectives, needs, and opportunities for clinical research.
Juandó-Prats C; James E; Bilder DA; McNair L; Kenneally N; Helfer J; Huang N; Vila MC; Sullivan J; Wirrell E; Rico S
Epilepsy Behav; 2021 Sep; 122():108198. PubMed ID: 34284219
[TBL] [Abstract][Full Text] [Related]
14. Patient and Caregiver Health State Utilities in Lennox-Gastaut Syndrome and Dravet Syndrome.
Lo SH; Lloyd A; Marshall J; Vyas K
Clin Ther; 2021 Nov; 43(11):1861-1876.e16. PubMed ID: 34774333
[TBL] [Abstract][Full Text] [Related]
15. Barriers to transition from pediatric to adult care for patients with Dravet syndrome: A focus group study of caregivers.
Boyce DM; Devinsky O; Meskis MA
Epilepsy Behav; 2020 Aug; 109():107096. PubMed ID: 32422576
[TBL] [Abstract][Full Text] [Related]
16. Parental Perception of Comorbidities in Children With Dravet Syndrome.
Knupp KG; Scarbro S; Wilkening G; Juarez-Colunga E; Kempe A; Dempsey A
Pediatr Neurol; 2017 Nov; 76():60-65. PubMed ID: 28982531
[TBL] [Abstract][Full Text] [Related]
17. Use of social media to assess the effectiveness of vagal nerve stimulation in Dravet syndrome: A caregiver's perspective.
Ali R; Elsayed M; Kaur M; Air E; Mahmood N; Constantinou J; Schwalb J
J Neurol Sci; 2017 Apr; 375():146-149. PubMed ID: 28320117
[TBL] [Abstract][Full Text] [Related]
18. The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research.
Jensen MP; Brunklaus A; Dorris L; Zuberi SM; Knupp KG; Galer BS; Gammaitoni AR
Epilepsy Behav; 2017 May; 70(Pt A):104-109. PubMed ID: 28431364
[TBL] [Abstract][Full Text] [Related]
19. Emotional experiences of family caregivers of children with Dravet syndrome.
Domaradzki J; Walkowiak D
Epilepsy Behav; 2023 May; 142():109193. PubMed ID: 37028149
[TBL] [Abstract][Full Text] [Related]
20. Fenfluramine treatment for Dravet syndrome: Caregiver- and clinician-reported benefits on the quality of life of patients, caregivers, and families living in Germany, Spain, Italy, and the United Kingdom.
Jensen MP; Gammaitoni AR; Salem R; Wilkie D; Lothe A; Amtmann D
Epilepsy Res; 2023 Feb; 190():107091. PubMed ID: 36701932
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
