These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

255 related articles for article (PubMed ID: 32435251)

  • 1. Information and Emotional Support Needs of Families Whose Infant Was Diagnosed With SCID Through Newborn Screening.
    Raspa M; Lynch M; Squiers L; Gwaltney A; Porter K; Peay H; Huston A; Fitzek B; Boyle JG
    Front Immunol; 2020; 11():885. PubMed ID: 32435251
    [No Abstract]   [Full Text] [Related]  

  • 2. Uncertainties experienced by parents of children diagnosed with severe combined immunodeficiency through newborn screening.
    Raspa M; Kutsa O; Andrews SM; Gwaltney AY; Mallonee E; Creamer A; Han PKJ; Biesecker BB
    Eur J Hum Genet; 2024 Apr; 32(4):392-398. PubMed ID: 36973394
    [TBL] [Abstract][Full Text] [Related]  

  • 3. Parental coping with uncertainties along the severe combined immunodeficiency journey.
    Kutsa O; Andrews SM; Mallonee E; Gwaltney A; Creamer A; Han PKJ; Raspa M; Biesecker BB
    Orphanet J Rare Dis; 2022 Oct; 17(1):390. PubMed ID: 36303152
    [TBL] [Abstract][Full Text] [Related]  

  • 4. Severe Combined Immunodeficiency: Knowledge and Information Needs Among Healthcare Providers.
    Kutsa O; Gwaltney A; Creamer A; Raspa M
    Front Pediatr; 2022; 10():804709. PubMed ID: 35265562
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Dilemma of Reporting Incidental Findings in Newborn Screening Programs for SCID: Parents' Perspective on Ataxia Telangiectasia.
    Blom M; Schoenaker MHD; Hulst M; de Vries MC; Weemaes CMR; Willemsen MAAP; Henneman L; van der Burg M
    Front Immunol; 2019; 10():2438. PubMed ID: 31781088
    [No Abstract]   [Full Text] [Related]  

  • 6. Assessing the newborn screening education needs of families living in medically underserved areas.
    Evans A; Lynch M; Johnson M; Bonhomme N
    J Genet Couns; 2020 Aug; 29(4):658-667. PubMed ID: 32227550
    [TBL] [Abstract][Full Text] [Related]  

  • 7. Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers.
    Rahi JS; Manaras I; Tuomainen H; Hundt GL
    Pediatrics; 2004 Oct; 114(4):e477-82. PubMed ID: 15466074
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Parents' Perspectives and Societal Acceptance of Implementation of Newborn Screening for SCID in the Netherlands.
    Blom M; Bredius RGM; Jansen ME; Weijman G; Kemper EA; Vermont CL; Hollink IHIM; Dik WA; van Montfrans JM; van Gijn ME; Henriet SS; van Aerde KJ; Koole W; Lankester AC; Dekkers EHBM; Schielen PCJI; de Vries MC; Henneman L; van der Burg M;
    J Clin Immunol; 2021 Jan; 41(1):99-108. PubMed ID: 33070266
    [TBL] [Abstract][Full Text] [Related]  

  • 9. The Role of Online Social Support in Supporting and Educating Parents of Young Children With Special Health Care Needs in the United States: A Scoping Review.
    DeHoff BA; Staten LK; Rodgers RC; Denne SC
    J Med Internet Res; 2016 Dec; 18(12):e333. PubMed ID: 28007689
    [TBL] [Abstract][Full Text] [Related]  

  • 10. Family pediatrics: report of the Task Force on the Family.
    Schor EL;
    Pediatrics; 2003 Jun; 111(6 Pt 2):1541-71. PubMed ID: 12777595
    [TBL] [Abstract][Full Text] [Related]  

  • 11. A multi-method assessment of satisfaction with services in the medical home by parents of children and youth with special health care needs (CYSHCN).
    Wood DL; McCaskill QE; Winterbauer N; Jobli E; Hou T; Wludyka PS; Stowers K; Livingood W
    Matern Child Health J; 2009 Jan; 13(1):5-17. PubMed ID: 18274884
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Examination of the communication practices between state newborn screening programs and the medical home.
    Kim S; Lloyd-Puryear MA; Tonniges TF
    Pediatrics; 2003 Feb; 111(2):E120-6. PubMed ID: 12563084
    [TBL] [Abstract][Full Text] [Related]  

  • 13. Parental Engagement in Identifying Information Needs After Newborn Screening for Families of Infants with Suspected Athymia.
    Howley E; Soomann M; Kreins AY
    J Clin Immunol; 2024 Mar; 44(3):79. PubMed ID: 38457046
    [TBL] [Abstract][Full Text] [Related]  

  • 14. The best possible start: A qualitative study on the experiences of parents of young children with or at risk for fetal alcohol spectrum disorders.
    Pruner M; Jirikowic T; Yorkston KM; Olson HC
    Res Dev Disabil; 2020 Feb; 97():103558. PubMed ID: 31884315
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Early vs. delayed diagnosis of severe combined immunodeficiency: a family perspective survey.
    Chan A; Scalchunes C; Boyle M; Puck JM
    Clin Immunol; 2011 Jan; 138(1):3-8. PubMed ID: 21035402
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Parents of children with food allergy: A qualitative study describing needs and identifying solutions.
    Chooniedass R; Soller L; Hsu E; To S; Cameron SB; Chan ES
    Ann Allergy Asthma Immunol; 2020 Dec; 125(6):674-679. PubMed ID: 32454095
    [TBL] [Abstract][Full Text] [Related]  

  • 17. Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.
    Busolo D; Woodgate R
    JBI Database System Rev Implement Rep; 2015 Jan; 13(1):99-111. PubMed ID: 26447011
    [TBL] [Abstract][Full Text] [Related]  

  • 18. Provision of information about newborn screening antenatally: a sequential exploratory mixed-methods project.
    Ulph F; Wright S; Dharni N; Payne K; Bennett R; Roberts S; Walshe K; Lavender T
    Health Technol Assess; 2017 Oct; 21(55):1-240. PubMed ID: 28967862
    [TBL] [Abstract][Full Text] [Related]  

  • 19. The case for severe combined immunodeficiency (SCID) and T cell lymphopenia newborn screening: saving lives…one at a time.
    Quinn J; Orange JS; Modell V; Modell F
    Immunol Res; 2020 Feb; 68(1):48-53. PubMed ID: 32128663
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Experiences and needs of parents of critically injured children during the acute hospital phase: A qualitative investigation.
    Foster K; Young A; Mitchell R; Van C; Curtis K
    Injury; 2017 Jan; 48(1):114-120. PubMed ID: 27692666
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 13.