246 related articles for article (PubMed ID: 33268308)
1. Early disease surveillance in young children with cystic fibrosis: A qualitative analysis of parent experiences.
Douglas TA; Pooley JA; Shields L; Stick SM; Branch-Smith C;
J Cyst Fibros; 2021 May; 20(3):511-515. PubMed ID: 33268308
[TBL] [Abstract][Full Text] [Related]
2. Experiences and needs of parents of critically injured children during the acute hospital phase: A qualitative investigation.
Foster K; Young A; Mitchell R; Van C; Curtis K
Injury; 2017 Jan; 48(1):114-120. PubMed ID: 27692666
[TBL] [Abstract][Full Text] [Related]
3. Parents' Experiences of Receiving the Initial Positive Newborn Screening (NBS) Result for Cystic Fibrosis and Sickle Cell Disease.
Chudleigh J; Buckingham S; Dignan J; O'Driscoll S; Johnson K; Rees D; Wyatt H; Metcalfe A
J Genet Couns; 2016 Dec; 25(6):1215-1226. PubMed ID: 27098418
[TBL] [Abstract][Full Text] [Related]
4. Resilient, recovering, distressed: A longitudinal qualitative study of parent psychosocial trajectories following child critical injury.
Foster K; Mitchell R; Van C; Young A; McCloughen A; Curtis K
Injury; 2019 Oct; 50(10):1605-1611. PubMed ID: 31101410
[TBL] [Abstract][Full Text] [Related]
5. Psychosocial risk associated with newborn screening for cystic fibrosis: parents' experience while awaiting the sweat-test appointment.
Tluczek A; Koscik RL; Farrell PM; Rock MJ
Pediatrics; 2005 Jun; 115(6):1692-703. PubMed ID: 15930234
[TBL] [Abstract][Full Text] [Related]
6. Quality of life is poorly correlated to lung disease severity in school-aged children with cystic fibrosis.
Pattie P; Ranganathan S; Harrison J; Vidmar S; Hall GL; Foong RE; Harper A; Ramsey K; Wurzel D;
J Cyst Fibros; 2022 May; 21(3):e188-e203. PubMed ID: 34801433
[TBL] [Abstract][Full Text] [Related]
7. Psychosocial Distress and Knowledge Deficiencies in Parents of Children in Ireland Who Carry an Altered Cystic Fibrosis Gene.
Quigley SJ; Linnane B; Connellan S; Ward A; Ryan P
J Genet Couns; 2018 Jun; 27(3):589-596. PubMed ID: 28952009
[TBL] [Abstract][Full Text] [Related]
8. A qualitative exploration of parenthood experiences and needs among people with cystic fibrosis.
Om S; M P; M B; Jl TC; Tm K
J Cyst Fibros; 2024 May; 23(3):424-428. PubMed ID: 37596197
[TBL] [Abstract][Full Text] [Related]
9. Parent perspectives and psychosocial needs 2 years following child critical injury: A qualitative inquiry.
Foster K; Van C; McCloughen A; Mitchell R; Young A; Curtis K
Injury; 2020 May; 51(5):1203-1209. PubMed ID: 31983421
[TBL] [Abstract][Full Text] [Related]
10. Parent experiences and psychosocial support needs 6 months following paediatric critical injury: A qualitative study.
Foster K; Mitchell R; Young A; Van C; Curtis K
Injury; 2019 May; 50(5):1082-1088. PubMed ID: 30655002
[TBL] [Abstract][Full Text] [Related]
11. Family-centred care for families living with cystic fibrosis in a rural setting: A qualitative study.
Jessup M; Smyth W; Abernethy G; Shields L; Douglas T;
J Clin Nurs; 2018 Feb; 27(3-4):e590-e599. PubMed ID: 29048768
[TBL] [Abstract][Full Text] [Related]
12. The experience of men and women with cystic fibrosis who have become a parent: A qualitative study.
Jessup M; Li A; Fulbrook P; Bell SC
J Clin Nurs; 2018 Apr; 27(7-8):1702-1712. PubMed ID: 29266748
[TBL] [Abstract][Full Text] [Related]
13. Newborn screening for cystic fibrosis: parents' preferences regarding counseling at the time of infants' sweat test.
Tluczek A; Koscik RL; Modaff P; Pfeil D; Rock MJ; Farrell PM; Lifchez C; Freeman ME; Gershan W; Zaleski C; Sullivan B
J Genet Couns; 2006 Aug; 15(4):277-91. PubMed ID: 16865559
[TBL] [Abstract][Full Text] [Related]
14. Communication of carrier status information following universal newborn screening for sickle cell disorders and cystic fibrosis: qualitative study of experience and practice.
Kai J; Ulph F; Cullinan T; Qureshi N
Health Technol Assess; 2009 Nov; 13(57):1-82, iii. PubMed ID: 19948087
[TBL] [Abstract][Full Text] [Related]
15. Creating opportunities for parent empowerment: program effects on the mental health/coping outcomes of critically ill young children and their mothers.
Melnyk BM; Alpert-Gillis L; Feinstein NF; Crean HF; Johnson J; Fairbanks E; Small L; Rubenstein J; Slota M; Corbo-Richert B
Pediatrics; 2004 Jun; 113(6):e597-607. PubMed ID: 15173543
[TBL] [Abstract][Full Text] [Related]
16. The physiotherapy consultation: A qualitative study of the experience of parents of infants with cystic fibrosis in Australia.
Andrews K; Smith M; Cox NS
Physiother Theory Pract; 2023 Mar; 39(3):540-546. PubMed ID: 35042441
[TBL] [Abstract][Full Text] [Related]
17. Experiences and Perspectives of Individuals with Cystic Fibrosis and Their Families Related to Food Insecurity.
Corbera-Hincapie MA; Atteih SE; Stransky OM; Weiner DJ; Yann IM; Kazmerski TM
Nutrients; 2022 Jun; 14(13):. PubMed ID: 35807754
[TBL] [Abstract][Full Text] [Related]
18. Breaking bad news, the diagnosis of cystic fibrosis in childhood.
Havermans T; Tack J; Vertommen A; Proesmans M; de Boeck K
J Cyst Fibros; 2015 Jul; 14(4):540-6. PubMed ID: 25563520
[TBL] [Abstract][Full Text] [Related]
19. Caloric intake and eating behavior in infants and toddlers with cystic fibrosis.
Powers SW; Patton SR; Byars KC; Mitchell MJ; Jelalian E; Mulvihill MM; Hovell MF; Stark LJ
Pediatrics; 2002 May; 109(5):E75-5. PubMed ID: 11986481
[TBL] [Abstract][Full Text] [Related]
20. Long-term follow-up of cystic fibrosis newborn screening: psychosocial functioning of adolescents and young adults.
Tluczek A; Laxova A; Grieve A; Heun A; Brown RL; Rock MJ; Gershan WM; Farrell PM
J Cyst Fibros; 2014 Mar; 13(2):227-34. PubMed ID: 24157354
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
