173 related articles for article (PubMed ID: 33843487)
1. The Therapeutic Odyssey: Positioning Genomic Sequencing in the Search for a Child's Best Possible Life.
Childerhose JE; Rich C; East KM; Kelley WV; Simmons S; Finnila CR; Bowling K; Amaral M; Hiatt SM; Thompson M; Gray DE; Lawlor JMJ; Myers RM; Barsh GS; Lose EJ; Bebin ME; Cooper GM; Brothers KB
AJOB Empir Bioeth; 2021; 12(3):179-189. PubMed ID: 33843487
[No Abstract] [Full Text] [Related]
2. After genomic testing results: Parents' long-term views.
Liang NSY; Adam S; Elliott AM; Siemens A; du Souich C; ; ; Friedman JM; Birch P
J Genet Couns; 2022 Feb; 31(1):82-95. PubMed ID: 34165210
[TBL] [Abstract][Full Text] [Related]
3. Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders.
Rosell AM; Pena LD; Schoch K; Spillmann R; Sullivan J; Hooper SR; Jiang YH; Mathey-Andrews N; Goldstein DB; Shashi V
J Genet Couns; 2016 Oct; 25(5):1019-31. PubMed ID: 26868367
[TBL] [Abstract][Full Text] [Related]
4. Parents' Perspectives on the Utility of Genomic Sequencing in the Neonatal Intensive Care Unit.
Lemke AA; Thompson ML; Gimpel EC; McNamara KC; Rich CA; Finnila CR; Cochran ME; Lawlor JMJ; East KM; Bowling KM; Latner DR; Hiatt SM; Amaral MD; Kelley WV; Greve V; Gray DE; Felker SA; Meddaugh H; Cannon A; Luedecke A; Jackson KE; Hendon LG; Janani HM; Johnston M; Merin LA; Deans SL; Tuura C; Hughes T; Williams H; Laborde K; Neu MB; Patrick-Esteve J; Hurst ACE; Kirmse BM; Savich R; Spedale SB; Knight SJ; Barsh GS; Korf BR; Cooper GM; Brothers KB
J Pers Med; 2023 Jun; 13(7):. PubMed ID: 37511639
[TBL] [Abstract][Full Text] [Related]
5. The diagnostic odyssey: insights from parents of children living with an undiagnosed condition.
Bauskis A; Strange C; Molster C; Fisher C
Orphanet J Rare Dis; 2022 Jun; 17(1):233. PubMed ID: 35717227
[TBL] [Abstract][Full Text] [Related]
6. Genome sequencing among children with medical complexity: What constitutes value from parents' perspective?
Lee W; Luca S; Costain G; Snell M; Marano M; Curtis M; Dunsmore K; Veenma D; Walker S; Cohn RD; Marshall CR; Cohen E; Meyn MS; Orkin J; Hayeems RZ
J Genet Couns; 2022 Apr; 31(2):523-533. PubMed ID: 34674352
[TBL] [Abstract][Full Text] [Related]
7. "I Have Fought for so Many Things": Disadvantaged families' Efforts to Obtain Community-Based Services for Their Child after Genomic Sequencing.
Ackerman SL; Brown JEH; Zamora A; Outram S
AJOB Empir Bioeth; 2023; 14(4):208-217. PubMed ID: 37162201
[TBL] [Abstract][Full Text] [Related]
8. Evaluating the clinical utility of early exome sequencing in diverse pediatric outpatient populations in the North Carolina Clinical Genomic Evaluation of Next-generation Exome Sequencing (NCGENES) 2 study: a randomized controlled trial.
Staley BS; Milko LV; Waltz M; Griesemer I; Mollison L; Grant TL; Farnan L; Roche M; Navas A; Lightfoot A; Foreman AKM; O'Daniel JM; O'Neill SC; Lin FC; Roman TS; Brandt A; Powell BC; Rini C; Berg JS; Bensen JT
Trials; 2021 Jun; 22(1):395. PubMed ID: 34127041
[TBL] [Abstract][Full Text] [Related]
9. Body mass index and childhood symptoms of depression, anxiety, and attention-deficit hyperactivity disorder: A within-family Mendelian randomization study.
Hughes AM; Sanderson E; Morris T; Ayorech Z; Tesli M; Ask H; Reichborn-Kjennerud T; Andreassen OA; Magnus P; Helgeland Ø; Johansson S; Njølstad P; Davey Smith G; Havdahl A; Howe LD; Davies NM
Elife; 2022 Dec; 11():. PubMed ID: 36537070
[TBL] [Abstract][Full Text] [Related]
10. Hope versus reality: Parent expectations of genomic testing.
Donohue KE; Dolan SM; Watnick D; Gallagher KM; Odgis JA; Suckiel SA; Teitelman N; Gelb BD; Kenny EE; Wasserstein MP; Horowitz CR; Bauman LJ
Patient Educ Couns; 2021 Aug; 104(8):2073-2079. PubMed ID: 33640235
[TBL] [Abstract][Full Text] [Related]
11. Parents perspectives on whole genome sequencing for their children: qualified enthusiasm?
Anderson JA; Meyn MS; Shuman C; Zlotnik Shaul R; Mantella LE; Szego MJ; Bowdin S; Monfared N; Hayeems RZ
J Med Ethics; 2017 Aug; 43(8):535-539. PubMed ID: 27888232
[TBL] [Abstract][Full Text] [Related]
12. Understanding access to genomics in an ethnically diverse south Florida population: A comparison of demographics in odyssey and rapid whole genome sequencing programs.
Hussain SB; Quittner AL; Brown M; Li-Rosi AM
J Genet Couns; 2020 Aug; 29(4):553-561. PubMed ID: 32277851
[TBL] [Abstract][Full Text] [Related]
13. Parental experiences with their child's eating disorder treatment journey.
Coelho JS; Suen J; Marshall S; Burns A; Lam PY; Geller J
J Eat Disord; 2021 Jul; 9(1):92. PubMed ID: 34315529
[TBL] [Abstract][Full Text] [Related]
14. The social value of genomic sequencing for disadvantaged families facing rare disease.
Outram SM; Brown J; Ackerman SL
Soc Sci Med; 2022 Dec; 314():115465. PubMed ID: 36279794
[TBL] [Abstract][Full Text] [Related]
15. Parents of a child with epilepsy: Views and expectations on receiving genetic results from Whole Genome Sequencing.
Jaitovich Groisman I; Hurlimann T; Godard B
Epilepsy Behav; 2019 Jan; 90():178-190. PubMed ID: 30583270
[TBL] [Abstract][Full Text] [Related]
16. "Doctors can read about it, they can know about it, but they've never lived with it": How parents use social media throughout the diagnostic odyssey.
Deuitch NT; Beckman E; Halley MC; Young JL; Reuter CM; Kohler J; Bernstein JA; Wheeler MT; ; Ormond KE; Tabor HK
J Genet Couns; 2021 Dec; 30(6):1707-1718. PubMed ID: 34096130
[TBL] [Abstract][Full Text] [Related]
17. Parental experiences of educational supports offered during their child's cancer treatment.
Huang HM; Yeh TC; Liu HC; Lee TY
Child Care Health Dev; 2022 May; 48(3):486-493. PubMed ID: 34905229
[TBL] [Abstract][Full Text] [Related]
18. Perceived utility and disutility of genomic sequencing for pediatric patients: Perspectives from parents with diverse sociodemographic characteristics.
Halley MC; Young JL; Fernandez L; Kohler JN; ; Bernstein JA; Wheeler MT; Tabor HK
Am J Med Genet A; 2022 Apr; 188(4):1088-1101. PubMed ID: 34981646
[TBL] [Abstract][Full Text] [Related]
19. Parents' Perspectives on Secondary Genetic Ancestry Findings in Pediatric Genomic Medicine.
Richards JL; Knight SJ
Clin Ther; 2023 Aug; 45(8):719-728. PubMed ID: 37573223
[TBL] [Abstract][Full Text] [Related]
20. Parents' attitudes towards research involving genome sequencing of their healthy children: a qualitative study.
Di Carlo C; Mighton C; Clausen M; Joshi E; Casalino S; Kim THM; Kowal C; Birken C; Maguire J; Bombard Y
Eur J Hum Genet; 2024 Feb; 32(2):171-175. PubMed ID: 37864046
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
