202 related articles for article (PubMed ID: 34266787)
1. Living with osteogenesis imperfecta: A qualitative study exploring experiences and psychosocial impact from the perspective of patients, parents and professionals.
Hill M; Hammond J; Sharmin M; Lewis C; Heathfield M; Crowe B; Götherström C; Chitty LS; DeVile C
Disabil Health J; 2022 Jan; 15(1):101168. PubMed ID: 34266787
[TBL] [Abstract][Full Text] [Related]
2. The impact of severe osteogenesis imperfecta on the lives of young patients and their parents - a qualitative analysis.
Dogba MJ; Bedos C; Durigova M; Montpetit K; Wong T; Glorieux FH; Rauch F
BMC Pediatr; 2013 Sep; 13():153. PubMed ID: 24074180
[TBL] [Abstract][Full Text] [Related]
3. Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study.
Hill CL; Baird WO; Walters SJ
Health Qual Life Outcomes; 2014 Apr; 12():54. PubMed ID: 24742068
[TBL] [Abstract][Full Text] [Related]
4. Exploring the impact of Osteogenesis Imperfecta on families: A mixed-methods systematic review.
Hill M; Lewis C; Riddington M; Crowe B; DeVile C; Götherström C; Chitty L
Disabil Health J; 2019 Jul; 12(3):340-349. PubMed ID: 30638886
[TBL] [Abstract][Full Text] [Related]
5. The day-to-day experiences of caring for children with Osteogenesis Imperfecta: A qualitative descriptive study.
Castro AR; Marinello J; Chougui K; Morand M; Bilodeau C; Tsimicalis A
J Clin Nurs; 2020 Aug; 29(15-16):2999-3011. PubMed ID: 32350946
[TBL] [Abstract][Full Text] [Related]
6. Shaping and managing the course of a child's disease: parental experiences with osteogenesis imperfecta.
Dogba MJ; Rauch F; Tre G; Glorieux FH; Bedos C
Disabil Health J; 2014 Jul; 7(3):343-9. PubMed ID: 24947576
[TBL] [Abstract][Full Text] [Related]
7. The psychosocial experience of individuals living with osteogenesis imperfecta: a mixed-methods systematic review.
Tsimicalis A; Denis-Larocque G; Michalovic A; Lepage C; Williams K; Yao TR; Palomo T; Dahan-Oliel N; Le May S; Rauch F
Qual Life Res; 2016 Aug; 25(8):1877-96. PubMed ID: 26894269
[TBL] [Abstract][Full Text] [Related]
8. Family experience with osteogenesis imperfecta type 1: the most distressing situations.
Santos MCD; Pires AF; Soares K; Barros L
Disabil Rehabil; 2018 Sep; 40(19):2281-2287. PubMed ID: 28585474
[TBL] [Abstract][Full Text] [Related]
9. Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: Qualitative Descriptive Study.
Castro AR; Chougui K; Bilodeau C; Tsimicalis A
J Med Internet Res; 2019 Dec; 21(12):e15924. PubMed ID: 31850851
[TBL] [Abstract][Full Text] [Related]
10. Stakeholder views and attitudes towards prenatal and postnatal transplantation of fetal mesenchymal stem cells to treat Osteogenesis Imperfecta.
Hill M; Lewis C; Riddington M; Crowe B; DeVile C; David AL; Semler O; Westgren M; Götherström C; Chitty LS
Eur J Hum Genet; 2019 Aug; 27(8):1244-1253. PubMed ID: 30918362
[TBL] [Abstract][Full Text] [Related]
11. Quality of life in osteogenesis imperfecta: A mixed-methods systematic review.
Dahan-Oliel N; Oliel S; Tsimicalis A; Montpetit K; Rauch F; Dogba MJ
Am J Med Genet A; 2016 Jan; 170A(1):62-76. PubMed ID: 26365089
[TBL] [Abstract][Full Text] [Related]
12. The experiences of the families with children diagnosed with osteogenesis imperfecta: A Qualiative study in Turkey.
Uzsen H; Zengin D; Basbakkal Z
J Pediatr Nurs; 2023; 73():e172-e179. PubMed ID: 37591701
[TBL] [Abstract][Full Text] [Related]
13. Involving Families with Osteogenesis Imperfecta in Health Service Research: Joint Development of the OI/ECE Questionnaire.
Dogba MJ; Dahan-Oliel N; Snider L; Glorieux FH; Durigova M; Palomo T; Cordey M; Bédard MH; Bedos C; Rauch F
PLoS One; 2016; 11(1):e0147654. PubMed ID: 26799959
[TBL] [Abstract][Full Text] [Related]
14. The IMPACT survey: a mixed methods study to understand the experience of children, adolescents and adults with osteogenesis imperfecta and their caregivers.
Westerheim I; Hart T; van Welzenis T; Wekre LL; Semler O; Raggio C; Bober MB; Rapoport M; Prince S; Rauch F
Orphanet J Rare Dis; 2024 Mar; 19(1):128. PubMed ID: 38515144
[TBL] [Abstract][Full Text] [Related]
15. Pain and quality of life of children and adolescents with osteogenesis imperfecta over a bisphosphonate treatment cycle.
Tsimicalis A; Boitor M; Ferland CE; Rauch F; Le May S; Carrier JI; Ngheim T; Bilodeau C
Eur J Pediatr; 2018 Jun; 177(6):891-902. PubMed ID: 29637375
[TBL] [Abstract][Full Text] [Related]
16. Incorporating the patient perspective in the study of rare bone disease: insights from the osteogenesis imperfecta community.
Swezey T; Reeve BB; Hart TS; Floor MK; Dollar CM; Gillies AP; Tosi LL
Osteoporos Int; 2019 Feb; 30(2):507-511. PubMed ID: 30191258
[TBL] [Abstract][Full Text] [Related]
17. Bisphosphonate therapy and osteogenesis imperfecta: The lived experience of children and their mothers.
Wiggins S; Kreikemeier R
J Spec Pediatr Nurs; 2017 Oct; 22(4):. PubMed ID: 28876506
[TBL] [Abstract][Full Text] [Related]
18. The patient clinical journey and socioeconomic impact of osteogenesis imperfecta: a systematic scoping review.
Rapoport M; Bober MB; Raggio C; Wekre LL; Rauch F; Westerheim I; Hart T; van Welzenis T; Mistry A; Clancy J; Booth L; Prince S; Semler O
Orphanet J Rare Dis; 2023 Feb; 18(1):34. PubMed ID: 36814274
[TBL] [Abstract][Full Text] [Related]
19. Respiratory impairment impacts QOL in osteogenesis imperfecta independent of skeletal abnormalities.
Yonko EA; Emanuel JS; Carter EM; Sandhaus RA; Raggio CL
Arch Osteoporos; 2020 Oct; 15(1):153. PubMed ID: 33009598
[TBL] [Abstract][Full Text] [Related]
20. Health-related quality of life in children with osteogenesis imperfecta: a large-sample study.
Song Y; Zhao D; Li L; Lv F; Wang O; Jiang Y; Xia W; Xing X; Li M
Osteoporos Int; 2019 Feb; 30(2):461-468. PubMed ID: 30569229
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
