122 related articles for article (PubMed ID: 34342021)
1. Development and preliminary evaluation of the Neurofibromatosis Type 1 Adult Quality of Life (NF1-AdQoL) questionnaire.
Crawford H; North K; Wilson MJ; Berman Y; McKelvey-Martin V; Morrison PJ; Fleming J; Barton B
Clin Exp Dermatol; 2022 Feb; 47(2):271-281. PubMed ID: 34342021
[TBL] [Abstract][Full Text] [Related]
2. Quality of life in individuals with neurofibromatosis type 1 associated cutaneous neurofibromas: validation of the Dutch cNF-Skindex.
Dhaenens BAE; van Dijk SA; Fertitta L; Taal W; Wolkenstein P; Oostenbrink R
J Patient Rep Outcomes; 2024 May; 8(1):52. PubMed ID: 38811427
[TBL] [Abstract][Full Text] [Related]
3. Quality of life in neurofibromatosis 1: development and validation of a tool dedicated to cutaneous neurofibromas in adults.
Fertitta L; Bergqvist C; Armand ML; Moryousef S; Ferkal S; Jannic A; Ravaud P; Tran VT; Ezzedine K; Wolkenstein P
J Eur Acad Dermatol Venereol; 2022 Aug; 36(8):1359-1366. PubMed ID: 35412677
[TBL] [Abstract][Full Text] [Related]
4. Development of the adult PedsQL™ neurofibromatosis type 1 module: initial feasibility, reliability and validity.
Nutakki K; Hingtgen CM; Monahan P; Varni JW; Swigonski NL
Health Qual Life Outcomes; 2013 Feb; 11():21. PubMed ID: 23432799
[TBL] [Abstract][Full Text] [Related]
5. Evaluation of quality of life in adults with neurofibromatosis 1 (NF1) using the Impact of NF1 on Quality Of Life (INF1-QOL) questionnaire.
Ferner RE; Thomas M; Mercer G; Williams V; Leschziner GD; Afridi SK; Golding JF
Health Qual Life Outcomes; 2017 Feb; 15(1):34. PubMed ID: 28193237
[TBL] [Abstract][Full Text] [Related]
6. Impact of neurofibromatosis type 1 on quality of life using the Skindex-29 questionnaire quality of life in NF1.
Cieza Rivera AM; Lobato Fuertes C; Fernández-Villa T; Martín Sánchez V; Atallah I
Orphanet J Rare Dis; 2024 Feb; 19(1):85. PubMed ID: 38402381
[TBL] [Abstract][Full Text] [Related]
7. The reliability and validity of Chinese version of SF36 v2 in aging patients with chronic heart failure.
Dong A; Chen S; Zhu L; Shi L; Cai Y; Zeng J; Guo W
Aging Clin Exp Res; 2017 Aug; 29(4):685-693. PubMed ID: 27518815
[TBL] [Abstract][Full Text] [Related]
8. Development and psychometric validation of the Chinese version of Skindex-29 and Skindex-16.
He Z; Lu C; Chren MM; Zhang Z; Li Y; Ni X; Buchtel V HA; Ryan PF; Li GZ
Health Qual Life Outcomes; 2014 Dec; 12():190. PubMed ID: 25539748
[TBL] [Abstract][Full Text] [Related]
9. Health-related quality of life in young adults in education, employment, or training: development of the Japanese version of Pediatric Quality of Life Inventory (PedsQL) Generic Core Scales Young Adult Version.
Kaneko M; Sato I; Soejima T; Kamibeppu K
Qual Life Res; 2014 Sep; 23(7):2121-31. PubMed ID: 24526295
[TBL] [Abstract][Full Text] [Related]
10. [Survey on the applicability of SF-36 version-2 (SF-36v2) in assessment quality of life among urban residents in Chengdu city].
Zhao L; Liu Z; He Y; Li N; Liu D
Zhonghua Yu Fang Yi Xue Za Zhi; 2014 May; 48(5):370-4. PubMed ID: 24985375
[TBL] [Abstract][Full Text] [Related]
11. Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool.
Armand ML; Taieb C; Bourgeois A; Bourlier M; Bennani M; Bodemer C; Wolkenstein P;
Orphanet J Rare Dis; 2019 May; 14(1):94. PubMed ID: 31053133
[TBL] [Abstract][Full Text] [Related]
12. The PlexiQoL, a patient-reported outcome measure on quality of life in neurofibromatosis type 1-associated plexiform neurofibroma: translation, cultural adaptation and validation into the Dutch language for the Netherlands.
Dhaenens BAE; van Dijk SA; Taal W; Noordhoek DC; Coffey A; McKenna SP; Oostenbrink R
J Patient Rep Outcomes; 2024 Mar; 8(1):33. PubMed ID: 38499890
[TBL] [Abstract][Full Text] [Related]
13. Dysfunctional coping is related to impaired skin-related quality of life and psychological distress in patients with neurofibromatosis type 1 with major skin involvement.
Bottesi G; Spoto A; Trevisson E; Zuccarello D; Vidotto G; Cassina M; Clementi M
Br J Dermatol; 2020 Jun; 182(6):1449-1457. PubMed ID: 31329288
[TBL] [Abstract][Full Text] [Related]
14. Validity and reliability of the Italian version of the ECOS-16 questionnaire in postmenopausal women with prevalent vertebral fractures due to osteoporosis.
Salaffi F; Malavolta N; Cimmino MA; Di Matteo L; Scendoni P; Carotti M; Stancati A; Mulé R; Frigato M; Gutierrez M; Grassi W;
Clin Exp Rheumatol; 2007; 25(3):390-403. PubMed ID: 17631735
[TBL] [Abstract][Full Text] [Related]
15. [The French version of Skindex (Skindex-France). Adaptation and assessment of psychometric properties].
Leplège A; Ecosse E; Zeller J; Revuz J; Wolkenstein P
Ann Dermatol Venereol; 2003 Feb; 130(2 Pt 1):177-83. PubMed ID: 12671579
[TBL] [Abstract][Full Text] [Related]
16. A disease-specific measure of health-related quality of life for use in adults with immune thrombocytopenic purpura: its development and validation.
Mathias SD; Bussel JB; George JN; McMillan R; Okano GJ; Nichol JL
Health Qual Life Outcomes; 2007 Feb; 5():11. PubMed ID: 17316442
[TBL] [Abstract][Full Text] [Related]
17. Development and Validation of a Novel Generic Health-related Quality of Life Instrument With 20 Items (HINT-20).
Jo MW; Lee HJ; Kim SY; Kim SH; Chang H; Ahn J; Ock M
J Prev Med Public Health; 2017 Jan; 50(1):38-59. PubMed ID: 28173686
[TBL] [Abstract][Full Text] [Related]
18. Acromegaly Quality of Life Questionnaire (ACROQOL) a new health-related quality of life questionnaire for patients with acromegaly: development and psychometric properties.
Webb SM; Prieto L; Badia X; Albareda M; Catalá M; Gaztambide S; Lucas T; Páramo C; Picó A; Lucas A; Halperin I; Obiols G; Astorga R
Clin Endocrinol (Oxf); 2002 Aug; 57(2):251-8. PubMed ID: 12153605
[TBL] [Abstract][Full Text] [Related]
19. Characterization of health concerns in people with neurofibromatosis type 1.
Fleming J; Morgan O; Wong C; Schlub TE; Berman Y
Mol Genet Genomic Med; 2023 Jan; 11(1):e2077. PubMed ID: 36444392
[TBL] [Abstract][Full Text] [Related]
20. Measurement properties of Skindex-16: a brief quality-of-life measure for patients with skin diseases.
Chren MM; Lasek RJ; Sahay AP; Sands LP
J Cutan Med Surg; 2001; 5(2):105-10. PubMed ID: 11443481
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
