These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.
4. Understanding the impact of non-alcoholic steatohepatitis with metabolic comorbidities on adults: a real-world qualitative study. Shinde S; Taylor N; Chinthammit C; Wilson R; Burgess SM; Poon JL Curr Med Res Opin; 2024 Apr; 40(4):665-676. PubMed ID: 38363353 [TBL] [Abstract][Full Text] [Related]
5. Improving Sexual and Gender Minority Cancer Care: Patient and Caregiver Perspectives From a Multi-Methods Pilot Study. Kano M; Jaffe SA; Rieder S; Kosich M; Guest DD; Burgess E; Hurwitz A; Pankratz VS; Rutledge TL; Dayao Z; Myaskovsky L Front Oncol; 2022; 12():833195. PubMed ID: 35600396 [TBL] [Abstract][Full Text] [Related]
6. Understanding the Symptom Burden and Impact of Myasthenia Gravis from the Patient's Perspective: A Qualitative Study. Jackson K; Parthan A; Lauher-Charest M; Broderick L; Law N; Barnett C Neurol Ther; 2023 Feb; 12(1):107-128. PubMed ID: 36322146 [TBL] [Abstract][Full Text] [Related]
7. Development of the Patient- and Observer-Reported PRUCISION Instruments to Assess Pruritus and Sleep Disturbance in Pediatric Patients with Cholestatic Liver Diseases. Gwaltney C; Bean S; Venerus M; Karlsson L; Warholic N; Kjems L; Horn P Adv Ther; 2022 Nov; 39(11):5126-5143. PubMed ID: 36066744 [TBL] [Abstract][Full Text] [Related]
8. Patients' experience of recurrent/metastatic head and neck squamous cell carcinoma and their perspective on the EORTC QLQ-C30 and QLQ-H&N35 questionnaires: a qualitative study. Degboe A; Knight SL; Halling K; Trigg A; Al-Zubeidi T; Aldhouse N; Kitchen H; Wirth L; Rogers SN J Patient Rep Outcomes; 2017; 2():33. PubMed ID: 30148250 [TBL] [Abstract][Full Text] [Related]
9. A conceptual framework to develop a patient-reported experience questionnaire on the cystic fibrosis journey in France: the ExPaParM collaborative study. Pougheon Bertrand D; Fanchini A; Lombrail P; Rault G; Chansard A; Le Breton N; Frenod C; Milon F; Royer CH; Segretain D; Silber M; Therouanne S; Haesebaert J; Llerena C; Michel P; Reynaud Q Orphanet J Rare Dis; 2023 Feb; 18(1):31. PubMed ID: 36805739 [TBL] [Abstract][Full Text] [Related]
10. Qualitative interviews to improve patient-reported outcome measures in late-onset Pompe disease: the patient perspective. Hamed A; An Haack K; Gwaltney C; Baranowski E; Stewart A; Krupnick R; Tyler M; Sparks S; Paty J Orphanet J Rare Dis; 2021 Oct; 16(1):428. PubMed ID: 34641935 [TBL] [Abstract][Full Text] [Related]
12. The Cystic Fibrosis Impact Questionnaire: qualitative development and cognitive evaluation of a new patient-reported outcome instrument to assess the life impacts of cystic fibrosis. McCarrier KP; Hassan M; Hodgkins P; Suthoff E; McGarry LJ; Martin ML J Patient Rep Outcomes; 2020 May; 4(1):36. PubMed ID: 32405878 [TBL] [Abstract][Full Text] [Related]
13. Symptoms and Impacts in Metastatic Castration-Resistant Prostate Cancer: Qualitative Findings from Patient and Physician Interviews. Holmstrom S; Naidoo S; Turnbull J; Hawryluk E; Paty J; Morlock R Patient; 2019 Feb; 12(1):57-67. PubMed ID: 30519830 [TBL] [Abstract][Full Text] [Related]
14. Assessing asthma symptoms in children: qualitative research supporting the development of the Pediatric Asthma Diary-Child (PAD-C) and Pediatric Asthma Diary-Observer (PAD-O). Bradley H; Trennery C; Jones AM; Lydon A; White F; Williams-Hall R; Arbuckle R; Tomaszewski E; Shih VH; Haughney J; Eisen A; Winders T; Coons SJ; Eremenco S; J Patient Rep Outcomes; 2023 Oct; 7(1):104. PubMed ID: 37863864 [TBL] [Abstract][Full Text] [Related]
15. Qualitative Patient Interviews to Characterize the Human Burden of Advanced Basal Cell Carcinoma Following Hedgehog Pathway Inhibitor Treatment. Konidaris G; Rofail D; Randall J; LaFontaine PR; Chen CI; Bury D; Geiger A; Sasane M; Symonds T Dermatol Ther (Heidelb); 2023 Aug; 13(8):1747-1761. PubMed ID: 37330458 [TBL] [Abstract][Full Text] [Related]
16. The Patient Experience with Diabetic Retinopathy: Qualitative Analysis of Patients with Proliferative Diabetic Retinopathy. Sherman SA; Rofail D; Levine A; Hartford CR; Baldasaro J; Marquis P; Rao R; Do DV Ophthalmol Ther; 2023 Feb; 12(1):431-446. PubMed ID: 36460939 [TBL] [Abstract][Full Text] [Related]
17. Development of a Conceptual Model of the Patient Experience in Small Cell Lung Cancer: A Qualitative Interview Study. Altman DE; Zhang X; Fu AC; Rams AR; Baldasaro JA; Ahmad SA; Schlichting M; Marquis P; Benincasa E; Moulin C; Pawar V Oncol Ther; 2023 Jun; 11(2):231-244. PubMed ID: 36800099 [TBL] [Abstract][Full Text] [Related]
18. Patient and caregiver perspectives on burden of disease manifestations in late-onset Tay-Sachs and Sandhoff diseases. Lyn N; Pulikottil-Jacob R; Rochmann C; Krupnick R; Gwaltney C; Stephens N; Kissell J; Cox GF; Fischer T; Hamed A Orphanet J Rare Dis; 2020 Apr; 15(1):92. PubMed ID: 32295606 [TBL] [Abstract][Full Text] [Related]
19. Development of a Conceptual Model for the Patient Experience of Focal Segmental Glomerulosclerosis (FSGS): A Qualitative Targeted Literature Review. Aldhouse NVJ; Kitchen H; Al-Zubeidi T; Thursfield M; Winnette R; See Tai S; Zhu L; Garnier N; Baker CL Adv Ther; 2023 Dec; 40(12):5155-5167. PubMed ID: 37819555 [TBL] [Abstract][Full Text] [Related]
20. Development of Focal Segmental Glomerulosclerosis Patient-Reported Outcome Measures: Symptom Diary and Symptom Impact Questionnaire. Mathias SD; Vallow S; Gipson DS; Thorneloe KS; Sprecher D Am J Kidney Dis; 2017 Oct; 70(4):532-540. PubMed ID: 28663063 [TBL] [Abstract][Full Text] [Related] [Next] [New Search]