152 related articles for article (PubMed ID: 34618014)
1. Family Identity and Roles in the Context of Li-Fraumeni Syndrome: "No One's Like Us Mutants".
Wilsnack C; Young JL; Merrill SL; Groner V; Loud JT; Bremer RC; Greene MH; Khincha PP; Werner-Lin A
Health Soc Work; 2021 Nov; 46(4):299-307. PubMed ID: 34618014
[TBL] [Abstract][Full Text] [Related]
2. Embodied risk for families with Li-Fraumeni syndrome: Like electricity through my body.
Werner-Lin A; Forbes Shepherd R; Young JL; Wilsnack C; Merrill SL; Greene MH; Khincha PP
Soc Sci Med; 2022 May; 301():114905. PubMed ID: 35367908
[TBL] [Abstract][Full Text] [Related]
3. Waiting and "weighted down": the challenge of anticipatory loss for individuals and families with Li-Fraumeni Syndrome.
Werner-Lin A; Young JL; Wilsnack C; Merrill SL; Groner V; Greene MH; Khincha PP
Fam Cancer; 2020 Jul; 19(3):259-268. PubMed ID: 32222840
[TBL] [Abstract][Full Text] [Related]
4. Family communication challenges of adolescents and young adults with Li-Fraumeni syndrome: Implications for psychosocial care.
Rising CJ; Wilsnack C; Boyd P; Sleight AG; Hutson SP; Khincha PP; Werner-Lin A
Patient Educ Couns; 2022 Nov; 105(11):3259-3266. PubMed ID: 35918231
[TBL] [Abstract][Full Text] [Related]
5. Health professionals' practice for young people with, or at risk of, Li-Fraumeni syndrome: An Australasian survey.
Forbes Shepherd R; Keogh LA; Werner-Lin A; Delatycki MB; Forrest LE
J Genet Couns; 2020 Oct; 29(5):737-747. PubMed ID: 31872506
[TBL] [Abstract][Full Text] [Related]
6. Reproduction and Genetic Responsibility: An Interpretive Description of Reproductive Decision-Making for Young People With Li-Fraumeni Syndrome.
Forbes Shepherd R; Werner-Lin A; Keogh LA; Delatycki MB; Forrest LE
Qual Health Res; 2022 Jan; 32(1):168-181. PubMed ID: 34781775
[TBL] [Abstract][Full Text] [Related]
7. Pediatric cancer and Li-Fraumeni/Li-Fraumeni-like syndromes: a review for the pediatrician.
Giacomazzi CR; Giacomazzi J; Netto CB; Santos-Silva P; Selistre SG; Maia AL; Oliveira VZ; Camey SA; Goldim JR; Ashton-Prolla P
Rev Assoc Med Bras (1992); 2015; 61(3):282-9. PubMed ID: 26248253
[TBL] [Abstract][Full Text] [Related]
8. Family Health Leaders: Lessons on Living with Li-Fraumeni Syndrome across Generations.
Pantaleao A; Young JL; Epstein NB; Carlson M; Bremer RC; Khincha PP; Peters JA; Greene MH; Roy K; Achatz MI; Savage SA; Werner-Lin A
Fam Process; 2020 Dec; 59(4):1648-1663. PubMed ID: 31647118
[TBL] [Abstract][Full Text] [Related]
9. How do young people with a hereditary cancer predisposition syndrome understand and experience cancer survivorship? "With Li-Fraumeni syndrome, it's just an intermission".
Werner-Lin A; Forbes Shepherd R; Rising CJ; Thompson AS; Huelsnitz C; Wilsnack C; Boyd P; Sleight AG; Hutson S; Khincha PP
Psychooncology; 2023 Mar; 32(3):375-382. PubMed ID: 36514197
[TBL] [Abstract][Full Text] [Related]
10. Couples coping with screening burden and diagnostic uncertainty in Li-Fraumeni syndrome: Connection versus independence.
Young JL; Pantaleao A; Zaspel L; Bayer J; Peters JA; Khincha PP; Bremer RC; Loud JT; Greene MH; Achatz MI; Savage SA; Werner-Lin A
J Psychosoc Oncol; 2019; 37(2):178-193. PubMed ID: 30591002
[TBL] [Abstract][Full Text] [Related]
11. "I need to know if I'm going to die young": Adolescent and young adult experiences of genetic testing for Li-Fraumeni syndrome.
Forbes Shepherd R; Werner-Lin A; Keogh LA; Delatycki MB; Forrest LE
J Psychosoc Oncol; 2021; 39(1):54-73. PubMed ID: 32449501
[TBL] [Abstract][Full Text] [Related]
12. Germline TP53 mutations and the changing landscape of Li-Fraumeni syndrome.
Kamihara J; Rana HQ; Garber JE
Hum Mutat; 2014 Jun; 35(6):654-62. PubMed ID: 24706533
[TBL] [Abstract][Full Text] [Related]
13. Genetic testing in Li-Fraumeni syndrome: uptake and psychosocial consequences.
Lammens CR; Aaronson NK; Wagner A; Sijmons RH; Ausems MG; Vriends AH; Ruijs MW; van Os TA; Spruijt L; Gómez García EB; Kluijt I; Nagtegaal T; Verhoef S; Bleiker EM
J Clin Oncol; 2010 Jun; 28(18):3008-14. PubMed ID: 20479422
[TBL] [Abstract][Full Text] [Related]
14. Regular surveillance for Li-Fraumeni Syndrome: advice, adherence and perceived benefits.
Lammens CR; Bleiker EM; Aaronson NK; Wagner A; Sijmons RH; Ausems MG; Vriends AH; Ruijs MW; van Os TA; Spruijt L; Gómez García EB; Cats A; Nagtegaal T; Verhoef S
Fam Cancer; 2010 Dec; 9(4):647-54. PubMed ID: 20658357
[TBL] [Abstract][Full Text] [Related]
15. Analysis of Li-Fraumeni syndrome and Li-Fraumeni-like families for germline mutations in Bcl10.
Stone JG; Eeles RA; Sodha N; Murday V; Sheriden E; Houlston RS
Cancer Lett; 1999 Dec; 147(1-2):181-5. PubMed ID: 10660104
[TBL] [Abstract][Full Text] [Related]
16. Li-Fraumeni and Li-Fraumeni-like syndrome among children diagnosed with pediatric cancer in Southern Brazil.
Giacomazzi J; Selistre SG; Rossi C; Alemar B; Santos-Silva P; Pereira FS; Netto CB; Cossio SL; Roth DE; Brunetto AL; Zagonel-Oliveira M; Martel-Planche G; Goldim JR; Hainaut P; Camey SA; Ashton-Prolla P
Cancer; 2013 Dec; 119(24):4341-9. PubMed ID: 24122735
[TBL] [Abstract][Full Text] [Related]
17. TP53 germline mutation testing in 180 families suspected of Li-Fraumeni syndrome: mutation detection rate and relative frequency of cancers in different familial phenotypes.
Ruijs MW; Verhoef S; Rookus MA; Pruntel R; van der Hout AH; Hogervorst FB; Kluijt I; Sijmons RH; Aalfs CM; Wagner A; Ausems MG; Hoogerbrugge N; van Asperen CJ; Gomez Garcia EB; Meijers-Heijboer H; Ten Kate LP; Menko FH; van 't Veer LJ
J Med Genet; 2010 Jun; 47(6):421-8. PubMed ID: 20522432
[TBL] [Abstract][Full Text] [Related]
18. Benefits and burdens of risk management for young people with inherited cancer: A focus on Li-Fraumeni syndrome.
Forbes Shepherd R; Keogh LA; Werner-Lin A; Delatycki MB; Forrest LE
Aust J Gen Pract; 2021 Aug; 50(8):538-544. PubMed ID: 34333565
[TBL] [Abstract][Full Text] [Related]
19. The benefit and burden of cancer screening in Li-Fraumeni syndrome: a case report.
Jhaveri AP; Bale A; Lovick N; Zuckerman K; Deshpande H; Rath K; Schwartz P; Hofstatter EW
Yale J Biol Med; 2015 Jun; 88(2):181-5. PubMed ID: 26029016
[TBL] [Abstract][Full Text] [Related]
20. Easing the Burden: Describing the Role of Social, Emotional and Spiritual Support in Research Families with Li-Fraumeni Syndrome.
Peters JA; Kenen R; Bremer R; Givens S; Savage SA; Mai PL
J Genet Couns; 2016 Jun; 25(3):529-42. PubMed ID: 26621765
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]