BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

546 related articles for article (PubMed ID: 34809687)

  • 1. Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks.
    Schwartz CE; Stark RB; Cella D; Borowiec K; Gooch KL; Audhya IF
    Orphanet J Rare Dis; 2021 Nov; 16(1):487. PubMed ID: 34809687
    [TBL] [Abstract][Full Text] [Related]  

  • 2. Interplay of disability, caregiver impact, and out-of-pocket expenditures in Duchenne muscular dystrophy: a cohort study.
    Schwartz CE; Stark RB; Borowiec K; Audhya IF; Gooch KL
    J Patient Rep Outcomes; 2022 Mar; 6(1):21. PubMed ID: 35267108
    [TBL] [Abstract][Full Text] [Related]  

  • 3. The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic Core Scales.
    Davis SE; Hynan LS; Limbers CA; Andersen CM; Greene MC; Varni JW; Iannaccone ST
    J Clin Neuromuscul Dis; 2010 Mar; 11(3):97-109. PubMed ID: 20215981
    [TBL] [Abstract][Full Text] [Related]  

  • 4. Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment.
    Mack JW; McFatrich M; Withycombe JS; Maurer SH; Jacobs SS; Lin L; Lucas NR; Baker JN; Mann CM; Sung L; Tomlinson D; Hinds PS; Reeve BB
    JAMA Pediatr; 2020 Nov; 174(11):e202861. PubMed ID: 32832975
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Development of six PROMIS pediatrics proxy-report item banks.
    Irwin DE; Gross HE; Stucky BD; Thissen D; DeWitt EM; Lai JS; Amtmann D; Khastou L; Varni JW; DeWalt DA
    Health Qual Life Outcomes; 2012 Feb; 10():22. PubMed ID: 22357192
    [TBL] [Abstract][Full Text] [Related]  

  • 6. Reliability and validity of the Thai version of the Pediatric Quality of Life inventory™ 3.0 Duchenne Muscular Dystrophy module in Thai children with Duchenne Muscular Dystrophy.
    Thongsing A; Likasitwattanakul S; Sanmaneechai O
    Health Qual Life Outcomes; 2019 May; 17(1):76. PubMed ID: 31046775
    [TBL] [Abstract][Full Text] [Related]  

  • 7. Psychometric properties of the Zarit Caregiver Burden Interview administered to caregivers to patients with Duchenne muscular dystrophy: a Rasch analysis.
    Landfeldt E; Mayhew A; Straub V; Bushby K; Lochmüller H; Lindgren P
    Disabil Rehabil; 2019 Apr; 41(8):966-973. PubMed ID: 29254382
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Development and content validation of the Muscular Dystrophy Child Health Index of Life with Disabilities questionnaire for children with Duchenne muscular dystrophy.
    Propp R; McAdam L; Davis AM; Salbach NM; Weir S; Encisa C; Narayanan UG
    Dev Med Child Neurol; 2019 Jan; 61(1):75-81. PubMed ID: 30058069
    [TBL] [Abstract][Full Text] [Related]  

  • 9. Psychometric evaluation of the pediatric and parent-proxy Patient-Reported Outcomes Measurement Information System and the Neurology and Traumatic Brain Injury Quality of Life measurement item banks in pediatric traumatic brain injury.
    Bertisch H; Rivara FP; Kisala PA; Wang J; Yeates KO; Durbin D; Zonfrillo MR; Bell MJ; Temkin N; Tulsky DS
    Qual Life Res; 2017 Jul; 26(7):1887-1899. PubMed ID: 28271316
    [TBL] [Abstract][Full Text] [Related]  

  • 10. Assessing validity of the EQ-5D-5L proxy in children and adolescents with Duchenne muscular dystrophy or spinal muscular atrophy.
    Xu RH; Dai Y; Ng SSM; Tsang HWH; Zhang S; Dong D
    Eur J Health Econ; 2024 Feb; 25(1):103-115. PubMed ID: 36809586
    [TBL] [Abstract][Full Text] [Related]  

  • 11. Reliability and validity of the Chinese version of the Pediatric Quality Of Life InventoryTM (PedsQLTM) 3.0 neuromuscular module in children with Duchenne muscular dystrophy.
    Hu J; Jiang L; Hong S; Cheng L; Kong M; Ye Y
    Health Qual Life Outcomes; 2013 Mar; 11():47. PubMed ID: 23497421
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study.
    Schwartz CE; Jackson S; Valentine J; Miller N; Lowes L; Edwards D; McSherry C; Savva D; Lowe A; McSherry J; Engel P
    Orphanet J Rare Dis; 2023 Apr; 18(1):90. PubMed ID: 37081508
    [TBL] [Abstract][Full Text] [Related]  

  • 13. Health related quality of life in young, steroid-naïve boys with Duchenne muscular dystrophy.
    Campbell C; McColl E; McDermott MP; Martens WB; Guglieri M; Griggs RC;
    Neuromuscul Disord; 2021 Nov; 31(11):1161-1168. PubMed ID: 34489153
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Impact of Alzheimer's Disease on Caregiver Questionnaire: internal consistency, convergent validity, and test-retest reliability of a new measure for assessing caregiver burden.
    Cole JC; Ito D; Chen YJ; Cheng R; Bolognese J; Li-McLeod J
    Health Qual Life Outcomes; 2014 Sep; 12():114. PubMed ID: 25186634
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods: The DMD-QoL.
    Powell PA; Carlton J; Rowen D; Chandler F; Guglieri M; Brazier JE
    Neurology; 2021 May; 96(19):e2438-e2450. PubMed ID: 33785551
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Development and psychometric analysis of the Duchenne muscular dystrophy Functional Ability Self-Assessment Tool (DMDSAT).
    Landfeldt E; Mayhew A; Eagle M; Lindgren P; Bell CF; Guglieri M; Straub V; Lochmüller H; Bushby K
    Neuromuscul Disord; 2015 Dec; 25(12):937-44. PubMed ID: 26483273
    [TBL] [Abstract][Full Text] [Related]  

  • 17. Validation of the caregiver Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure.
    Reeve BB; McFatrich M; Lin L; Lucas NR; Mack JW; Jacobs SS; Withycombe JS; Baker JN; Freyer DR; Hinds PS
    Cancer; 2021 May; 127(9):1483-1494. PubMed ID: 33332590
    [TBL] [Abstract][Full Text] [Related]  

  • 18. Development and psychometric evaluation of the PROMIS Pediatric Life Satisfaction item banks, child-report, and parent-proxy editions.
    Forrest CB; Devine J; Bevans KB; Becker BD; Carle AC; Teneralli RE; Moon J; Tucker CA; Ravens-Sieberer U
    Qual Life Res; 2018 Jan; 27(1):217-234. PubMed ID: 28828568
    [TBL] [Abstract][Full Text] [Related]  

  • 19. A qualitative study to understand the Duchenne muscular dystrophy experience from the parent/patient perspective.
    Brown V; Merikle E; Johnston K; Gooch K; Audhya I; Lowes L
    J Patient Rep Outcomes; 2023 Dec; 7(1):129. PubMed ID: 38085412
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Development and validation of the University of Washington caregiver stress and benefit scales for caregivers of children with or without serious health conditions.
    Amtmann D; Liljenquist KS; Bamer A; Gammaitoni AR; Aron CR; Galer BS; Jensen MP
    Qual Life Res; 2020 May; 29(5):1361-1371. PubMed ID: 31902052
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 28.