These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.
164 related articles for article (PubMed ID: 35057695)
1. Patient-centered approaches for patients with systemic autoimmune rheumatic diseases: development and evolution. Vlachoyiannopoulos PG; Chatzis LG; Goules AV; Argyropoulou OD; Englezopoulou A; Stergiou I; Voulgarelis M; Tsanakas P; Exarchos T; Gorgoulis VV; Fotiadis DI; Tzioufas AG Expert Rev Clin Immunol; 2022 Feb; 18(2):125-133. PubMed ID: 35057695 [TBL] [Abstract][Full Text] [Related]
2. RarERN Path: a methodology towards the optimisation of patients' care pathways in rare and complex diseases developed within the European Reference Networks. Talarico R; Cannizzo S; Lorenzoni V; Marinello D; Palla I; Pirri S; Ticciati S; Trieste L; Triulzi I; Terol E; Bucher A; Turchetti G Orphanet J Rare Dis; 2020 Dec; 15(1):347. PubMed ID: 33317578 [TBL] [Abstract][Full Text] [Related]
3. The added value of a European Reference Network on rare and complex connective tissue and musculoskeletal diseases: insights after the first 5 years of the ERN ReCONNET. Talarico R; Aguilera S; Alexander T; Amoura Z; Andersen J; Arnaud L; Avcin T; Marsal Barril S; Beretta L; Bombardieri S; Bortoluzzi A; Bouillot C; Bulina I; Burmester GR; Cannizzo S; Cavagna L; Chaigne B; Cornet A; Corti P; Costedoat-Chalumeau N; Dāvidsone Z; Doria A; Fenech C; Ferraris A; Fischer-Betz R; Fonseca JE; Frank C; Gaglioti A; Galetti I; Guimarães V; Hachulla E; Holmner M; Houssiau F; Iaccarino L; Jacobsen S; Limper M; Malfait F; Mariette X; Marinello D; Martin T; Matthews L; Matucci-Cerinic M; Meyer A; Milas-Ahić J; Moinzadeh P; Montecucco C; Mouthon L; Müller-Ladner U; Nagy G; Patarata E; Pileckyte M; Pruunsild C; Rednic S; Romão VC; Schneider M; Scirè CA; Smith V; Sulli A; Tamirou F; Tani C; Taruscio D; Taulaigo AV; Tincani A; Ticciati S; Turchetti G; van Hagen PM; van Laar JM; Viera A; de Vries-Bouwstra JK; Zschocke J; Cutolo M; Mosca M Clin Exp Rheumatol; 2022 May; 40 Suppl 134(5):3-11. PubMed ID: 35349419 [TBL] [Abstract][Full Text] [Related]
4. [European Reference Network for Rare Hepatological Diseases (ERN RARE-LIVER)]. Schulz L; Sebode M; Schramm C; Lohse AW Internist (Berl); 2021 Apr; 62(4):441-448. PubMed ID: 33687527 [TBL] [Abstract][Full Text] [Related]
5. [Healthcare networks for people with rare diseases: integrating data and expertise]. Graessner H; Storf H; Schaefer F Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2022 Nov; 65(11):1164-1169. PubMed ID: 36167994 [TBL] [Abstract][Full Text] [Related]
6. Prevalence of systemic autoimmune rheumatic diseases and clinical significance of ANA profile: data from a tertiary hospital in Shanghai, China. Yang Z; Ren Y; Liu D; Lin F; Liang Y APMIS; 2016 Sep; 124(9):805-11. PubMed ID: 27328803 [TBL] [Abstract][Full Text] [Related]
7. Filling the gaps in SARDs research: collection and linkage of administrative health data and self-reported survey data for a general population-based cohort of individuals with and without diagnoses of systemic autoimmune rheumatic disease (SARDs) from British Columbia, Canada. McCormick N; Reimer K; Famouri A; Marra CA; Aviña-Zubieta JA BMJ Open; 2017 Jun; 7(6):e013977. PubMed ID: 28637725 [TBL] [Abstract][Full Text] [Related]
8. Telemedicine strategy of the European Reference Network ITHACA for the diagnosis and management of patients with rare developmental disorders. Smith M; Alexander E; Marcinkute R; Dan D; Rawson M; Banka S; Gavin J; Mina H; Hennessy C; Riccardi F; Radio FC; Havlovicova M; Cassina M; Emandi AC; Fradin M; Gompertz L; Nordgren A; Traberg R; Rossi M; Trimouille A; Sowmyalakshmi R; Dallapiccola B; Renieri A; Faivre L; Kerr B; Verloes A; Clayton-Smith J; Douzgou S; Orphanet J Rare Dis; 2020 Apr; 15(1):103. PubMed ID: 32334637 [TBL] [Abstract][Full Text] [Related]
9. ERN BOND: The key European network leveraging diagnosis, research, and treatment for rare bone conditions. Casareto L; Appelman-Dijkstra NM; Brandi ML; Chapurlat R; Cormier-Daire V; Hamdy NAT; Heath KE; Horn J; Mantovani G; Mohnike K; Sousa SB; Travessa A; Wekre LL; Zillikens MC; Sangiorgi L; Eur J Med Genet; 2024 Apr; 68():104916. PubMed ID: 38296035 [TBL] [Abstract][Full Text] [Related]
10. Identifying key health system components associated with improved outcomes to inform the re-configuration of services for adults with rare autoimmune rheumatic diseases: a mixed-methods study. Hollick RJ; James WRG; Nicoll A; Locock L; Black C; Dhaun N; Egan AC; Fluck N; Laidlaw L; Lanyon PC; Little MA; Luqmani RA; Moir L; McBain M; Basu N Lancet Rheumatol; 2024 Jun; 6(6):e361-e373. PubMed ID: 38782514 [TBL] [Abstract][Full Text] [Related]
11. Centres of Expertise and European Reference Networks: key issues in the field of rare diseases. The EUCERD Recommendations. Taruscio D; Gentile AE; Evangelista T; Frazzica RG; Bushby K; Montserrat AM Blood Transfus; 2014 Apr; 12 Suppl 3(Suppl 3):s621-5. PubMed ID: 24922304 [TBL] [Abstract][Full Text] [Related]
12. The pooling of manpower and resources through the establishment of European reference networks and rare disease patient registries is a necessary area of collaboration for rare renal disorders. Parker S Nephrol Dial Transplant; 2014 Sep; 29 Suppl 4():iv9-14. PubMed ID: 25165190 [TBL] [Abstract][Full Text] [Related]