191 related articles for article (PubMed ID: 35616549)
1. Assessing perspectives of disease burden and clinically meaningful changes using the Spinal Muscular Atrophy Health Index in adolescents and young adults.
Mazzella A; Cruz R; Belter L; Curry M; Dilek N; Zizzi C; Heatwole C; Jarecki J
Muscle Nerve; 2022 Sep; 66(3):276-281. PubMed ID: 35616549
[TBL] [Abstract][Full Text] [Related]
2. The Spinal Muscular Atrophy Health Index: A novel outcome for measuring how a patient feels and functions.
Zizzi CE; Luebbe E; Mongiovi P; Hunter M; Dilek N; Garland C; Ciafaloni E; Zaidman CM; Kissel JT; McDermott MP; Johnson N; Sansone V; Heatwole CR
Muscle Nerve; 2021 Jun; 63(6):837-844. PubMed ID: 33711174
[TBL] [Abstract][Full Text] [Related]
3. Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey.
Belter L; Cruz R; Jarecki J
Orphanet J Rare Dis; 2020 Aug; 15(1):217. PubMed ID: 32838797
[TBL] [Abstract][Full Text] [Related]
4. Burden of Spinal Muscular Atrophy (SMA) on Patients and Caregivers in Canada.
McMillan HJ; Gerber B; Cowling T; Khuu W; Mayer M; Wu JW; Maturi B; Klein-Panneton K; Cabalteja C; Lochmüller H
J Neuromuscul Dis; 2021; 8(4):553-568. PubMed ID: 33749617
[TBL] [Abstract][Full Text] [Related]
5. Assessing Bulbar Function in Spinal Muscular Atrophy Using Patient-Reported Outcomes.
Dunaway Young S; Pasternak A; Duong T; McGrattan KE; Stranberg S; Maczek E; Dias C; Tang W; Parker D; Levine A; Rohan A; Wolford C; Martens W; McDermott MP; Darras BT; Day JW
J Neuromuscul Dis; 2023; 10(2):199-209. PubMed ID: 36776075
[TBL] [Abstract][Full Text] [Related]
6. "I have SMA, SMA doesn't have me": a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA.
Mazzella A; Curry M; Belter L; Cruz R; Jarecki J
Orphanet J Rare Dis; 2021 Feb; 16(1):96. PubMed ID: 33618755
[TBL] [Abstract][Full Text] [Related]
7. Systematic Literature Review to Assess the Cost and Resource Use Associated with Spinal Muscular Atrophy Management.
Paracha N; Hudson P; Mitchell S; Sutherland CS
Pharmacoeconomics; 2022 Apr; 40(Suppl 1):11-38. PubMed ID: 34761360
[TBL] [Abstract][Full Text] [Related]
8. Responsiveness of the motor function measure in patients with spinal muscular atrophy.
Vuillerot C; Payan C; Iwaz J; Ecochard R; Bérard C;
Arch Phys Med Rehabil; 2013 Aug; 94(8):1555-61. PubMed ID: 23380348
[TBL] [Abstract][Full Text] [Related]
9. The Cure SMA Membership Surveys: Highlights of Key Demographic and Clinical Characteristics of Individuals with Spinal Muscular Atrophy.
Belter L; Jarecki J; Reyna SP; Cruz R; Jones CC; Schroth M; O'Toole CM; O'Brien S; Hall SA; Johnson NB; Paradis AD
J Neuromuscul Dis; 2021; 8(1):109-123. PubMed ID: 33104036
[TBL] [Abstract][Full Text] [Related]
10. Serum leptin levels in children and adolescents with spinal muscular atrophy types 2 and 3
Djordjevic S; Milic-Rasic V; Brankovic V; Kosac A; Dejanovic-Djordjevic I; Bijelic M; Dimkic-Tomic T; Markovic-Denic L; Kovacevic S; Petrovic H; Vitorovic S; Dobric Z; Zdravkovic V
Arch Pediatr; 2022 Oct; 29(7):480-483. PubMed ID: 36109285
[TBL] [Abstract][Full Text] [Related]
11. Spinal muscular atrophy: survival pattern and functional status.
Chung BH; Wong VC; Ip P
Pediatrics; 2004 Nov; 114(5):e548-53. PubMed ID: 15492357
[TBL] [Abstract][Full Text] [Related]
12. A qualitative study of perceptions of meaningful change in spinal muscular atrophy.
McGraw S; Qian Y; Henne J; Jarecki J; Hobby K; Yeh WS
BMC Neurol; 2017 Apr; 17(1):68. PubMed ID: 28376816
[TBL] [Abstract][Full Text] [Related]
13. Evaluating Benefit-risk Decision-making in Spinal Muscular Atrophy: A First-ever Study to Assess Risk Tolerance in the SMA Patient Community.
Cruz R; Belter L; Wasnock M; Nazarelli A; Jarecki J
Clin Ther; 2019 May; 41(5):943-960.e4. PubMed ID: 31056304
[TBL] [Abstract][Full Text] [Related]
14. The Spinal Muscular Atrophy Health Index: Italian validation of a disease-specific outcome measure.
Sansone VA; Pirola A; Lizio A; Greco LC; Coratti G; Casiraghi J; Pane M; Pera MC; Italiano C; Messina S; Pozzi S; Sframeli M; D'Amico A; Bertini E; Bruno C; Mauro L; Salmin F; Stancanelli C; Pedemonte M; Albamonte E; Zizzi C; Heatwole C; Mercuri E;
Neuromuscul Disord; 2021 May; 31(5):409-418. PubMed ID: 33773884
[TBL] [Abstract][Full Text] [Related]
15. ACTIVE (Ability Captured Through Interactive Video Evaluation) workspace volume video game to quantify meaningful change in spinal muscular atrophy.
Alfano LN; Miller NF; Iammarino MA; Moore Clingenpeel M; Lowes SL; Dugan ME; Kissel JT; Al Zaidy S; Tsao CY; Lowes LP
Dev Med Child Neurol; 2020 Mar; 62(3):303-309. PubMed ID: 30963554
[TBL] [Abstract][Full Text] [Related]
16. Patient Reported Impact of Symptoms in Spinal Muscular Atrophy (PRISM-SMA).
Mongiovi P; Dilek N; Garland C; Hunter M; Kissel JT; Luebbe E; McDermott MP; Johnson N; Heatwole C
Neurology; 2018 Sep; 91(13):e1206-e1214. PubMed ID: 30143566
[TBL] [Abstract][Full Text] [Related]
17. 'Reading the palm' - A pilot study of grip and finger flexion strength as an outcome measure in 5q spinal muscular atrophy.
Weber C; Müller A; Freigang M; von der Hagen M; Günther R
Brain Dev; 2024 May; 46(5):189-198. PubMed ID: 38331667
[TBL] [Abstract][Full Text] [Related]
18. Impact of contractures on daily functioning in adolescents with spinal muscular atrophy: a qualitative study.
Oude Lansink ILB; Gorter JW; van der Pol WL; Bartels B; Beelen A
Disabil Rehabil; 2024 Jun; 46(12):2593-2599. PubMed ID: 37401093
[TBL] [Abstract][Full Text] [Related]
19. RegistrAME: the Spanish self-reported patient registry of spinal muscular atrophy.
Cattinari MG; de Lemus M; Tizzano E
Orphanet J Rare Dis; 2024 Feb; 19(1):76. PubMed ID: 38373977
[TBL] [Abstract][Full Text] [Related]
20. "Getting ready for the adult world": how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being.
Wan HWY; Carey KA; D'Silva A; Kasparian NA; Farrar MA
Orphanet J Rare Dis; 2019 Apr; 14(1):74. PubMed ID: 30940178
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]