These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.
230 related articles for article (PubMed ID: 36056366)
1. Health insurance literacy and health services access barriers in Niemann-Pick disease: the patient and caregiver voice. Diaz GA; Crowe J; Hopkin J Orphanet J Rare Dis; 2022 Sep; 17(1):332. PubMed ID: 36056366 [TBL] [Abstract][Full Text] [Related]
2. Impact and burden of acid sphingomyelinase deficiency from a patient and caregiver perspective. Pokrzywinski R; Hareendran A; Nalysnyk L; Cowie S; Crowe J; Hopkin J; Joshi D; Pulikottil-Jacob R Sci Rep; 2021 Oct; 11(1):20972. PubMed ID: 34697402 [TBL] [Abstract][Full Text] [Related]
3. Cause of death in patients with chronic visceral and chronic neurovisceral acid sphingomyelinase deficiency (Niemann-Pick disease type B and B variant): Literature review and report of new cases. Cassiman D; Packman S; Bembi B; Turkia HB; Al-Sayed M; Schiff M; Imrie J; Mabe P; Takahashi T; Mengel KE; Giugliani R; Cox GF Mol Genet Metab; 2016 Jul; 118(3):206-213. PubMed ID: 27198631 [TBL] [Abstract][Full Text] [Related]
4. Acid sphingomyelinase deficiency (ASMD): addressing knowledge gaps in unmet needs and patient journey in Italy-a Delphi consensus. Scarpa M; Barbato A; Bisconti A; Burlina A; Concolino D; Deodato F; Di Rocco M; Dionisi-Vici C; Donati MA; Fecarotta S; Fiumara A; Galeone C; Giona F; Giuffrida G; Manna R; Mariani P; Pession A; Scopinaro A; Spada M; Spandonaro F; Trifirò G; Carubbi F; Cappellini MD Intern Emerg Med; 2023 Apr; 18(3):831-842. PubMed ID: 36882619 [TBL] [Abstract][Full Text] [Related]
5. Healthcare Service Use Patterns Among Patients with Acid Sphingomyelinase Deficiency Type B: A Retrospective US Claims Analysis. Pulikottil-Jacob R; Ganz ML; Fournier M; Petruski-Ivleva N Adv Ther; 2023 May; 40(5):2234-2248. PubMed ID: 36897522 [TBL] [Abstract][Full Text] [Related]
6. The Genetic Basis, Lung Involvement, and Therapeutic Options in Niemann-Pick Disease: A Comprehensive Review. Tirelli C; Rondinone O; Italia M; Mira S; Belmonte LA; De Grassi M; Guido G; Maggioni S; Mondoni M; Miozzo MR; Centanni S Biomolecules; 2024 Feb; 14(2):. PubMed ID: 38397448 [TBL] [Abstract][Full Text] [Related]
7. Disease manifestations and burden of illness in patients with acid sphingomyelinase deficiency (ASMD). McGovern MM; Avetisyan R; Sanson BJ; Lidove O Orphanet J Rare Dis; 2017 Feb; 12(1):41. PubMed ID: 28228103 [TBL] [Abstract][Full Text] [Related]
8. Consensus clinical management guidelines for acid sphingomyelinase deficiency (Niemann-Pick disease types A, B and A/B). Geberhiwot T; Wasserstein M; Wanninayake S; Bolton SC; Dardis A; Lehman A; Lidove O; Dawson C; Giugliani R; Imrie J; Hopkin J; Green J; de Vicente Corbeira D; Madathil S; Mengel E; Ezgü F; Pettazzoni M; Sjouke B; Hollak C; Vanier MT; McGovern M; Schuchman E Orphanet J Rare Dis; 2023 Apr; 18(1):85. PubMed ID: 37069638 [TBL] [Abstract][Full Text] [Related]
9. Real-life impacts of olipudase alfa: The experience of patients and families taking an enzyme replacement therapy for acid sphingomyelinase deficiency. Raebel EM; Wiseman S; Donnelly C; Mathieson T; Pountney J; Crowe J; Hopkin J Orphanet J Rare Dis; 2024 Feb; 19(1):36. PubMed ID: 38303068 [TBL] [Abstract][Full Text] [Related]
10. Atherogenic lipid profile in patients with Niemann-Pick disease type B: What treatment strategies? Maines E; Franceschi R; Rizzardi C; Deodato F; Piccoli G; Gragnaniello V; Burlina A; Soffiati M J Clin Lipidol; 2022; 16(2):143-154. PubMed ID: 35181260 [TBL] [Abstract][Full Text] [Related]
11. Prospective study of the natural history of chronic acid sphingomyelinase deficiency in children and adults: eleven years of observation. McGovern MM; Wasserstein MP; Bembi B; Giugliani R; Mengel KE; Vanier MT; Zhang Q; Peterschmitt MJ Orphanet J Rare Dis; 2021 May; 16(1):212. PubMed ID: 33971920 [TBL] [Abstract][Full Text] [Related]
12. Impacts and Burden of Niemann pick Type-C: a patient and caregiver perspective. Mengel E; Patterson MC; Chladek M; Guldberg C; Í Dali C; Symonds T; Lloyd-Price L; Mathieson T; Crowe J; Burbridge C Orphanet J Rare Dis; 2021 Nov; 16(1):493. PubMed ID: 34819124 [TBL] [Abstract][Full Text] [Related]
13. A Rare Case of Niemann-Pick Disease Type-A. Gul F; Begum S; Rasool P; Shah S; Waqar M Cureus; 2024 Apr; 16(4):e59427. PubMed ID: 38826605 [TBL] [Abstract][Full Text] [Related]
15. The experience of living with Niemann-Pick type C: a patient and caregiver perspective. Golden E; van Gool R; Cay M; Goodlett B; Cao A; Al-Hertani W; Upadhyay J Orphanet J Rare Dis; 2023 May; 18(1):120. PubMed ID: 37210540 [TBL] [Abstract][Full Text] [Related]
16. Acid sphingomyelinase (Asm) deficiency patients in The Netherlands and Belgium: disease spectrum and natural course in attenuated patients. Hollak CE; de Sonnaville ES; Cassiman D; Linthorst GE; Groener JE; Morava E; Wevers RA; Mannens M; Aerts JM; Meersseman W; Akkerman E; Niezen-Koning KE; Mulder MF; Visser G; Wijburg FA; Lefeber D; Poorthuis BJ Mol Genet Metab; 2012 Nov; 107(3):526-33. PubMed ID: 22818240 [TBL] [Abstract][Full Text] [Related]
18. Quality of Health Insurance Coverage and Access to Care for Children in Low-Income Families. Kreider AR; French B; Aysola J; Saloner B; Noonan KG; Rubin DM JAMA Pediatr; 2016 Jan; 170(1):43-51. PubMed ID: 26569497 [TBL] [Abstract][Full Text] [Related]
19. Quantitation of plasmatic lysosphingomyelin and lysosphingomyelin-509 for differential screening of Niemann-Pick A/B and C diseases. Kuchar L; Sikora J; Gulinello ME; Poupetova H; Lugowska A; Malinova V; Jahnova H; Asfaw B; Ledvinova J Anal Biochem; 2017 May; 525():73-77. PubMed ID: 28259515 [TBL] [Abstract][Full Text] [Related]
20. Autopsy pathology of infantile neurovisceral ASMD (Niemann-Pick Disease type A): Clinicopathologic correlations of a case report. Thurberg BL Mol Genet Metab Rep; 2020 Sep; 24():100626. PubMed ID: 32714837 [TBL] [Abstract][Full Text] [Related] [Next] [New Search]