BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

164 related articles for article (PubMed ID: 36239769)

  • 1. [Rare diseases, digitization, and the National Action League for People with Rare Diseases (NAMSE)].
    Wessel T; Heuing K; Schlangen M; Schnieders B; Algermissen M
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2022 Nov; 65(11):1119-1125. PubMed ID: 36239769
    [TBL] [Abstract][Full Text] [Related]  

  • 2. [Seven years of the National Action League for People with Rare Diseases : NAMSE - a success story?!].
    Halbach A; Schnieders B; Knufmann-Happe K
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):479-486. PubMed ID: 28337510
    [TBL] [Abstract][Full Text] [Related]  

  • 3. [Measures to improve the health situation of patients with rare diseases in Germany. A comparison with the National Action Plan].
    Frank M; Eidt-Koch D; Aumann I; Reimann A; Wagner TO; Graf von der Schulenburg JM
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2014 Oct; 57(10):1216-23. PubMed ID: 25209683
    [TBL] [Abstract][Full Text] [Related]  

  • 4. Potentials and current shortcomings in the cooperation between German centers for rare diseases and primary care physicians: results from the project TRANSLATE-NAMSE.
    Druschke D; Krause F; Müller G; Scharfe J; Hoffmann GF; Schmitt J;
    Orphanet J Rare Dis; 2021 Nov; 16(1):494. PubMed ID: 34819135
    [TBL] [Abstract][Full Text] [Related]  

  • 5. [Does the healthcare for rare diseases benefit from the legislative reforms?].
    Heyder R
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):487-493. PubMed ID: 28289779
    [TBL] [Abstract][Full Text] [Related]  

  • 6. [Speak up for people with rare diseases: ACHSE : ACHSE, Rare Diseases Germany, and its network].
    Mundlos C
    Internist (Berl); 2018 Dec; 59(12):1327-1334. PubMed ID: 30377713
    [TBL] [Abstract][Full Text] [Related]  

  • 7. [The medical informatics initiative and rare diseases: next-generation routine data for diagnosis, therapy selection and research].
    Schepers J; Fleck J; Schaaf J
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2022 Nov; 65(11):1151-1158. PubMed ID: 36305897
    [TBL] [Abstract][Full Text] [Related]  

  • 8. [Oral Health-Related Quality of Life in Rare Diseases with Oral Manifestations].
    Hanisch M; Jung S; Kleinheinz J
    Gesundheitswesen; 2019 Nov; 81(11):902-906. PubMed ID: 29653453
    [TBL] [Abstract][Full Text] [Related]  

  • 9. State of knowledge about information sources and health care centres for rare diseases among affected people in Germany.
    Hanisch M; Wiemann S; Bohner L; Jung S; Kleinheinz J
    Cent Eur J Public Health; 2020 Mar; 28(1):82-84. PubMed ID: 32228824
    [TBL] [Abstract][Full Text] [Related]  

  • 10. [se-atlas - the health service information platform for people with rare diseases : Supporting research on medical care institutions and support groups].
    Haase J; Wagner TOF; Storf H
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):503-509. PubMed ID: 28275836
    [TBL] [Abstract][Full Text] [Related]  

  • 11. [Practical use of electronic patient records: findings from two care projects in centers for rare diseases].
    Rashid A; Choukair D; Bauer C; Ullrich M; Maisch T
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2022 Nov; 65(11):1143-1150. PubMed ID: 36278976
    [TBL] [Abstract][Full Text] [Related]  

  • 12. [Reliable health information for patients with rare diseases : Quality demands defined by the National Action Plan and how they are put into practice].
    Schaefer C; Brunsmann F; Siegert S
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):510-516. PubMed ID: 28289777
    [TBL] [Abstract][Full Text] [Related]  

  • 13. [European Reference Networks : Consequences for healthcare in Germany].
    Graessner H; Schäfer F; Scarpa M; Wagner TOF
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2017 May; 60(5):537-541. PubMed ID: 28275837
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Rare diseases in Germany - Developments in the status of medical care.
    Schlangen M; Heuing K
    J Health Monit; 2023 Dec; 8(4):7-16. PubMed ID: 38235013
    [TBL] [Abstract][Full Text] [Related]  

  • 15. [Healthcare networks for people with rare diseases: integrating data and expertise].
    Graessner H; Storf H; Schaefer F
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2022 Nov; 65(11):1164-1169. PubMed ID: 36167994
    [TBL] [Abstract][Full Text] [Related]  

  • 16. [Patient registries for rare diseases in Germany: concept paper of the NAMSE strategy group].
    Storf H; Stausberg J; Kindle G; Quadder B; Schlangen M; Walter MC; Ückert F; Wagner TOF;
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2020 Jun; 63(6):761-770. PubMed ID: 32424556
    [TBL] [Abstract][Full Text] [Related]  

  • 17. [Evaluation of a future scenario concerning the use of big data applications to improve the care of people with rare diseases].
    Sedlmayr B; Knapp A; Kümmel M; Bathelt F; Sedlmayr M
    Z Evid Fortbild Qual Gesundhwes; 2020 Dec; 158-159():81-91. PubMed ID: 33250393
    [TBL] [Abstract][Full Text] [Related]  

  • 18. [Interdisciplinary care path and potential IT support for people with rare diseases in Germany].
    Zoch M; Sedlmayr B; Knapp A; Bathelt F; Helfer S; Schmitt J; Sedlmayr M
    Z Evid Fortbild Qual Gesundhwes; 2021 Oct; 165():68-76. PubMed ID: 34483074
    [TBL] [Abstract][Full Text] [Related]  

  • 19. [Uncovering rare diseases in medical data-coding].
    Martin T; Rommel K; Thomas C; Eymann J; Kretschmer T; Berner R; Lee-Kirsch MA; Hebestreit H
    Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz; 2022 Nov; 65(11):1133-1142. PubMed ID: 36239768
    [TBL] [Abstract][Full Text] [Related]  

  • 20. [Healthcare services for people in Lower Saxony (Germany) suffering from a rare disease: Findings from a survey among medical professionals].
    Pauer F; Pflaum U; Lührs V; Frank M; Graf von der Schulenburg JM
    Z Evid Fortbild Qual Gesundhwes; 2016; 113():36-44. PubMed ID: 27480187
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 9.