These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.
142 related articles for article (PubMed ID: 36575949)
1. The experiences of families receiving a diagnosis of 22q11.2 deletion syndrome in Ireland. O'Donoghue E; McAllister M; Rizzo R J Genet Couns; 2023 Jun; 32(3):618-634. PubMed ID: 36575949 [TBL] [Abstract][Full Text] [Related]
2. Development of a 22q11DS psycho-educational programme: exploration of the views, concerns and educational needs of parents caring for children or adolescents with 22q11DS in relation to mental health issues. Alugo T; Malone H; Sheehan A; Coyne I; Lawlor A; McNicholas F Child Care Health Dev; 2017 Jul; 43(4):527-535. PubMed ID: 28370163 [TBL] [Abstract][Full Text] [Related]
3. Parental Communication and Experiences and Knowledge of Adolescent Siblings of Children with 22q11.2 Deletion Syndrome. Okashah R; Schoch K; Hooper SR; Shashi V; Callanan N J Genet Couns; 2015 Oct; 24(5):752-9. PubMed ID: 25540895 [TBL] [Abstract][Full Text] [Related]
4. "You don't know until you get there": The positive and negative "lived" experience of parenting an adult child with 22q11.2 deletion syndrome. Goodwin J; McCormack L; Campbell LE Health Psychol; 2017 Jan; 36(1):45-54. PubMed ID: 27657800 [TBL] [Abstract][Full Text] [Related]
5. Parents' perspectives, experiences, and need for support when communicating with their children about the psychiatric manifestations of 22q11.2 deletion syndrome (22q11DS). Cook CB; Slomp C; Austin J J Community Genet; 2022 Feb; 13(1):91-101. PubMed ID: 34783994 [TBL] [Abstract][Full Text] [Related]
6. Perceived Impact of Healthcare Relationships and Interactions on Parental Experiences of Prenatal Diagnosis and Termination of Pregnancy for Foetal Anomaly on the Island of Ireland. Heaney S; Tomlinson M; Aventin Á Health Expect; 2024 Oct; 27(5):e70068. PubMed ID: 39428704 [TBL] [Abstract][Full Text] [Related]
7. The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review. Mu PF; Lee MY; Sheng CC; Tung PC; Huang LY; Chen YW JBI Database System Rev Implement Rep; 2015 Jun; 13(5):293-329. PubMed ID: 26455612 [TBL] [Abstract][Full Text] [Related]
8. A tale worth telling: the impact of the diagnosis experience on disclosure of genetic disorders. Goodwin J; Schoch K; Shashi V; Hooper SR; Morad O; Zalevsky M; Gothelf D; Campbell LE J Intellect Disabil Res; 2015 May; 59(5):474-86. PubMed ID: 25059276 [TBL] [Abstract][Full Text] [Related]
9. Medical, welfare, and educational challenges and psychological distress in parents caring for an individual with 22q11.2 deletion syndrome: A cross-sectional survey in Japan. Morishima R; Kumakura Y; Usami S; Kanehara A; Tanaka M; Okochi N; Nakajima N; Hamada J; Ogawa T; Ando S; Tamune H; Nakahara M; Jinde S; Kano Y; Tanaka K; Hirata Y; Oka A; Kasai K Am J Med Genet A; 2022 Jan; 188(1):37-45. PubMed ID: 34480405 [TBL] [Abstract][Full Text] [Related]
10. Talking with children and young people with 22q11DS about their mental health, behaviour, learning and communication. Wray J; Abrines Jaume N; Oulton K; Sell D Child Care Health Dev; 2023 Jan; 49(1):90-105. PubMed ID: 35403745 [TBL] [Abstract][Full Text] [Related]
11. Development and evaluation of an educational resource for parents of children with 22q11.2 deletion syndrome about the psychiatric manifestations of the condition. Blankenship K; Chieffo S; Morris E; Slomp C; Batallones R; Prijoles E; Hill-Chapman C; Austin J J Genet Couns; 2024 Aug; 33(4):720-732. PubMed ID: 37658574 [TBL] [Abstract][Full Text] [Related]
12. IMPACT study: measuring the impact of caregiving on families and healthcare professionals of children and adults living with mucopolysaccharidoses in Ireland. Somanadhan S; Bristow H; Crushell E; Pastores G; Nicholson E; Kroll T; Larkin PJ; Brinkley A Ther Adv Rare Dis; 2021; 2():26330040211020764. PubMed ID: 37181103 [TBL] [Abstract][Full Text] [Related]
13. Healthcare professionals' experiences and perceptions of providing support for mental health during the period from pregnancy to two years postpartum. Pope J; Redsell S; Houghton C; Matvienko-Sikar K Midwifery; 2023 Mar; 118():103581. PubMed ID: 36608486 [TBL] [Abstract][Full Text] [Related]
14. The powerless or the empowered? Stakeholders' experiences of diagnosis and treatment for attention-deficit hyperactivity disorder in Ireland. Carr-Fanning K; Mc Guckin C Ir J Psychol Med; 2018 Sep; 35(3):203-212. PubMed ID: 30124187 [TBL] [Abstract][Full Text] [Related]
15. Living with a child at risk for psychotic illness: the experience of parents coping with 22q11 deletion syndrome: an exploratory study. Hercher L; Bruenner G Am J Med Genet A; 2008 Sep; 146A(18):2355-60. PubMed ID: 18698620 [TBL] [Abstract][Full Text] [Related]
16. Malnutrition: A Misunderstood Diagnosis by Primary Care Health Care Professionals and Community-Dwelling Older Adults in Ireland. Geraghty AA; Browne S; Reynolds CME; Kennelly S; Kelly L; McCallum K; McBean L; Clyne B; Bury G; Bradley C; McCullagh L; Bardon LA; Murrin C; Perrotta C; Gibney ER; Castro PD; Corish CA J Acad Nutr Diet; 2021 Dec; 121(12):2443-2453. PubMed ID: 34219047 [TBL] [Abstract][Full Text] [Related]
17. Fathers and the well-child visit. Garfield CF; Isacco A Pediatrics; 2006 Apr; 117(4):e637-45. PubMed ID: 16585280 [TBL] [Abstract][Full Text] [Related]
18. Reflections of parents of children with 22q11.2 Deletion Syndrome on the experience of receiving psychiatric genetic counseling: 'Awareness to Act'. Carrion P; Semaka A; Batallones R; Slomp C; Morris E; Inglis A; Moretti M; Austin J J Genet Couns; 2022 Feb; 31(1):140-152. PubMed ID: 34224608 [TBL] [Abstract][Full Text] [Related]
19. Understanding the lived experiences of healthcare professionals during the COVID-19 pandemic: an interpretative phenomenological analysis. McGlinchey E; Hitch C; Butter S; McCaughey L; Berry E; Armour C Eur J Psychotraumatol; 2021; 12(1):1904700. PubMed ID: 35140877 [No Abstract] [Full Text] [Related]
20. Nonepileptic seizures in the pediatric population: A qualitative study of patient and family experiences. McWilliams A; Reilly C; McFarlane FA; Booker E; Heyman I Epilepsy Behav; 2016 Jun; 59():128-36. PubMed ID: 27131915 [TBL] [Abstract][Full Text] [Related] [Next] [New Search]