BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

91 related articles for article (PubMed ID: 36888536)

  • 1. Epidermolysis Bullosa in Pediatric Palliative Care: A Case Series.
    Ball K; Camilleri S; Kiefel S; Schulz I; Weston L; Sacks B
    J Palliat Med; 2023 Aug; 26(8):1159-1164. PubMed ID: 36888536
    [No Abstract]   [Full Text] [Related]  

  • 2. Pain care for patients with epidermolysis bullosa: best care practice guidelines.
    Goldschneider KR; Good J; Harrop E; Liossi C; Lynch-Jordan A; Martinez AE; Maxwell LG; Stanko-Lopp D;
    BMC Med; 2014 Oct; 12():178. PubMed ID: 25603875
    [TBL] [Abstract][Full Text] [Related]  

  • 3. Consensus-based guidelines for the provision of palliative and end-of-life care for people living with epidermolysis bullosa.
    Popenhagen MP; Genovese P; Blishen M; Rajapakse D; Diem A; King A; Chan J; Pellicer Arasa E; Baird S; Ferreira da Rocha AC; Stitt G; Badger K; Zmazek V; Ambreen F; Mackenzie C; Price H; Roberts T; Moore Z; Patton D; Murphy P; Mayre-Chilton K
    Orphanet J Rare Dis; 2023 Sep; 18(1):268. PubMed ID: 37667330
    [TBL] [Abstract][Full Text] [Related]  

  • 4. The impact, perceptions and needs of parents of children with epidermolysis bullosa.
    Chateau AV; Blackbeard D; Aldous C; Dlova N; Shaw CM
    S Afr Fam Pract (2004); 2024 Jun; 66(1):e1-e13. PubMed ID: 38949448
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Epidermolysis Bullosa in Spain: A Qualitative Analysis of Its Social Impact on Families With Diagnosed Minors.
    Martínez-Ripoll JM; García-Domingo M; de la Fuente Robles YM
    Health Expect; 2024 Aug; 27(4):e14128. PubMed ID: 38943541
    [TBL] [Abstract][Full Text] [Related]  

  • 6. Practical Tips on Epidermolysis Bullosa for Caregivers: Part 2.
    Tabor A; LeQuang JAK; Pergolizzi J
    Cureus; 2024 Mar; 16(3):e55499. PubMed ID: 38571870
    [TBL] [Abstract][Full Text] [Related]  

  • 7. Patients' and parents' experiences during wound care of epidermolysis bullosa from a dyadic perspective: a survey study.
    Mauritz PJ; Bolling M; Duipmans JC; Hagedoorn M
    Orphanet J Rare Dis; 2022 Aug; 17(1):313. PubMed ID: 35964099
    [TBL] [Abstract][Full Text] [Related]  

  • 8. 'It breaks my heart': Healthcare practitioners' caring for families with epidermolysis bullosa.
    Chateau AV; Aldous C; Dlova N; Blackbeard D
    Health SA; 2023; 28():2355. PubMed ID: 37927945
    [TBL] [Abstract][Full Text] [Related]  

  • 9. Navigating the diagnostic journey of epidermolysis bullosa - a qualitative study on the lived experiences and needs of parents and patients.
    Korte EWH; Baardman R; Pool G; Duipmans JC; van den Akker PC; Bolling MC
    Br J Dermatol; 2024 Jun; ():. PubMed ID: 38860499
    [TBL] [Abstract][Full Text] [Related]  

  • 10. The Role of Pediatric Palliative Care Following Nonaccidental Trauma.
    Henderson TG; Graff AH; Thorvilson MJ
    J Palliat Med; 2023 Dec; 26(12):1752-1754. PubMed ID: 37433212
    [TBL] [Abstract][Full Text] [Related]  

  • 11. Facing the complex challenges of people with epidermolysis bullosa in Austria: a mixed methods study on burdens and helpful practices.
    Salamon G; Field-Werners U; Strobl S; Hübl V; Diem A
    Orphanet J Rare Dis; 2024 May; 19(1):211. PubMed ID: 38773622
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Inpatient management of epidermolysis bullosa: Consensus-based hands-on instructions for neonates and postneonates.
    Abreu Molnar B; Levin L; Yun D; Morel K; Wiss K; Wieser J; Ward C; Trice H; Garcia-Romero MT; Stephenson A; Provost A; Price HN; Perman MJ; Moxon M; Moeves B; McCuaig CC; McCarthy C; Lucky AW; Levy ML; Lee M; Lara-Corrales I; Henner N; Halliburton N; Griffith E; Gorell E; Glick S; Eichenfield L; Collins C; Bruckner AL; Boulrice B; Bayliss S; Badger K; Paller AS
    J Am Acad Dermatol; 2024 Apr; ():. PubMed ID: 38604489
    [TBL] [Abstract][Full Text] [Related]  

  • 13. [Growing up with an EBH, an example of pediatric-adult transition in the field of rare diseases].
    Bourrat E
    Soins; 2023 Nov; 68(880):30-32. PubMed ID: 37931994
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Epidemiological Assessment of a Pediatric Palliative Care Clinic at a Brazilian Quaternary Hospital: 20 Years of Experience.
    Spolador GM; Bastos F; Polastrini RTV; Zoboli I; Henrique AC; Vieira Filho JP; da Silveira MRM; Freitas E; do Nascimento AG; de Macedo Barbosa SM
    J Palliat Med; 2024 Apr; 27(4):503-507. PubMed ID: 38387013
    [No Abstract]   [Full Text] [Related]  

  • 15. Palliative Care Needs Assessment for Pediatric Complex Care Providers.
    DiDomizio PG; Millar MM; Olson L; Murphy N; Moore D
    J Pain Symptom Manage; 2023 Feb; 65(2):73-80. PubMed ID: 36384179
    [TBL] [Abstract][Full Text] [Related]  

  • 16. A qualitative study on traditional healers' perceptions and management of epidermolysis bullosa.
    Chateau AV; Gqaleni N; Aldous C; Dlova N; Blackbeard D
    Health SA; 2023; 28():2266. PubMed ID: 37670748
    [TBL] [Abstract][Full Text] [Related]  

  • 17. Perception of Oral Health-Related Quality of Life in Children with Epidermolysis Bullosa: A Quantitative and Qualitative Study.
    Marty M; Chiaverini C; Milon C; Costa-Mendes L; Kémoun P; Mazereeuw-Hautier J; Joseph C
    JDR Clin Trans Res; 2023 Oct; 8(4):349-355. PubMed ID: 35993264
    [TBL] [Abstract][Full Text] [Related]  

  • 18. A call to improve paediatric palliative care quality through research.
    Dombrecht L; Lacerda A; Wolfe J; Snaman J
    BMC Palliat Care; 2023 Sep; 22(1):141. PubMed ID: 37749576
    [TBL] [Abstract][Full Text] [Related]  

  • 19. [EB care by a home care nurse: mission impossible?].
    Ramolino G
    Soins; 2023 Nov; 68(880):27-29. PubMed ID: 37931993
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Paediatric palliative care: why transfuse?
    Robert G; Chappe C; Ferreira A; Mc Ewan E; Calmanti S
    BMJ Support Palliat Care; 2023 Oct; 13(e1):e110-e112. PubMed ID: 33468511
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 5.