BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

257 related articles for article (PubMed ID: 37028149)

  • 1. Emotional experiences of family caregivers of children with Dravet syndrome.
    Domaradzki J; Walkowiak D
    Epilepsy Behav; 2023 May; 142():109193. PubMed ID: 37028149
    [TBL] [Abstract][Full Text] [Related]  

  • 2. Caring for Children with Dravet Syndrome: Exploring the Daily Challenges of Family Caregivers.
    Domaradzki J; Walkowiak D
    Children (Basel); 2023 Aug; 10(8):. PubMed ID: 37628409
    [TBL] [Abstract][Full Text] [Related]  

  • 3. The humanistic and economic burden of Dravet syndrome on caregivers and families: Implications for future research.
    Jensen MP; Brunklaus A; Dorris L; Zuberi SM; Knupp KG; Galer BS; Gammaitoni AR
    Epilepsy Behav; 2017 May; 70(Pt A):104-109. PubMed ID: 28431364
    [TBL] [Abstract][Full Text] [Related]  

  • 4. A quantitative cross-sectional study of the burden of caring for patients with Lennox-Gastaut syndrome, Dravet syndrome, and tuberous sclerosis complex-associated epilepsy in Japan.
    LoPresti M; Igarashi A; Sonohara Y; Bowditch S
    Epilepsy Behav; 2024 May; 154():109741. PubMed ID: 38555725
    [TBL] [Abstract][Full Text] [Related]  

  • 5. Evaluating the challenges and needs of parents caring for children with Williams syndrome: A preliminary study from Poland.
    Domaradzki J; Walkowiak D
    Res Dev Disabil; 2024 Feb; 145():104669. PubMed ID: 38215502
    [TBL] [Abstract][Full Text] [Related]  

  • 6. Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey.
    Campbell JD; Whittington MD; Kim CH; VanderVeen GR; Knupp KG; Gammaitoni A
    Epilepsy Behav; 2018 Mar; 80():152-156. PubMed ID: 29414545
    [TBL] [Abstract][Full Text] [Related]  

  • 7. The direct and indirect costs of Dravet Syndrome.
    Whittington MD; Knupp KG; Vanderveen G; Kim C; Gammaitoni A; Campbell JD
    Epilepsy Behav; 2018 Mar; 80():109-113. PubMed ID: 29414539
    [TBL] [Abstract][Full Text] [Related]  

  • 8. Caregiver perceptions of the impact of Dravet syndrome on the family, current supports and hopes and fears for the future: A qualitative study.
    Soto Jansson J; Bjurulf B; Dellenmark Blom M; Hallböök T; Reilly C
    Epilepsy Behav; 2024 Jul; 156():109790. PubMed ID: 38692022
    [TBL] [Abstract][Full Text] [Related]  

  • 9. The health and well-being of caregivers of children with cerebral palsy.
    Raina P; O'Donnell M; Rosenbaum P; Brehaut J; Walter SD; Russell D; Swinton M; Zhu B; Wood E
    Pediatrics; 2005 Jun; 115(6):e626-36. PubMed ID: 15930188
    [TBL] [Abstract][Full Text] [Related]  

  • 10. Effectiveness of interventions to improve family-staff relationships in the care of people with dementia in residential aged care: a systematic review protocol.
    Nguyen M; Pachana NA; Beattie E; Fielding E; Ramis MA
    JBI Database System Rev Implement Rep; 2015 Nov; 13(11):52-63. PubMed ID: 26657464
    [TBL] [Abstract][Full Text] [Related]  

  • 11. Sleep quality, anxiety, symptoms of depression, and caregiver burden among those caring for patients with Dravet syndrome: a prospective multicenter study in Germany.
    Maltseva M; Schubert-Bast S; Zöllner JP; Bast T; Mayer T; von Spiczak S; Ruf S; Trollmann R; Wolff M; Hornemann F; Klotz KA; Jacobs J; Kurlemann G; Neubauer BA; Polster T; Syrbe S; Bertsche A; Bettendorf U; Kluger G; Flege S; Rosenow F; Kay L; Strzelczyk A
    Orphanet J Rare Dis; 2023 Apr; 18(1):98. PubMed ID: 37120555
    [TBL] [Abstract][Full Text] [Related]  

  • 12. Ultra-rare ultra-care: Assessing the impact of caring for children with ultra rare diseases.
    Domaradzki J; Walkowiak D
    Eur J Paediatr Neurol; 2024 Jan; 48():78-84. PubMed ID: 38071849
    [TBL] [Abstract][Full Text] [Related]  

  • 13. Development and content validation of a preliminary core set of patient- and caregiver-relevant outcomes for inclusion in a potential composite endpoint for Dravet Syndrome.
    Nabbout R; Auvin S; Chiron C; Irwin J; Mistry A; Bonner N; Williamson N; Bennett B
    Epilepsy Behav; 2018 Jan; 78():232-242. PubMed ID: 29108913
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Caregiver impact and health service use in high and low severity Dravet syndrome: A multinational cohort study.
    Lagae L; Irwin J; Gibson E; Battersby A
    Seizure; 2019 Feb; 65():72-79. PubMed ID: 30616222
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Dravet syndrome: Effects on informal caregivers' mental health and quality of life - A systematic review.
    Gonçalves C; Martins S; Fernandes L
    Epilepsy Behav; 2021 Sep; 122():108206. PubMed ID: 34280725
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Comparing adult-child and spousal caregiver burden and potential contributors.
    Fenton ATHR; Keating NL; Ornstein KA; Kent EE; Litzelman K; Rowland JH; Wright AA
    Cancer; 2022 May; 128(10):2015-2024. PubMed ID: 35285946
    [TBL] [Abstract][Full Text] [Related]  

  • 17. Caregivers' experiences in helping individuals with severe and enduring mental health challenges integrate into the community: A qualitative descriptive study in Singapore.
    Goh YS; Ow Yong JQY; Ng CKV; Li Z; Hu Y; Tam WW; Ho SHC
    J Psychiatr Ment Health Nurs; 2024 Jun; ():. PubMed ID: 38899596
    [TBL] [Abstract][Full Text] [Related]  

  • 18. Fenfluramine treatment for Dravet syndrome: Caregiver- and clinician-reported benefits on the quality of life of patients, caregivers, and families living in Germany, Spain, Italy, and the United Kingdom.
    Jensen MP; Gammaitoni AR; Salem R; Wilkie D; Lothe A; Amtmann D
    Epilepsy Res; 2023 Feb; 190():107091. PubMed ID: 36701932
    [TBL] [Abstract][Full Text] [Related]  

  • 19. Impact of childhood Dravet syndrome on care givers of patients with DS, a major impact on mothers.
    Nabbout R; Dirani M; Teng T; Bianic F; Martin M; Holland R; Chemaly N; Coque N
    Epilepsy Behav; 2020 Jul; 108():107094. PubMed ID: 32375095
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Burden in caregivers of adults with epilepsy in Asian families.
    Lai ST; Tan WY; Wo MC; Lim KS; Ahmad SB; Tan CT
    Seizure; 2019 Oct; 71():132-139. PubMed ID: 31325820
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 13.