BIOMARKERS

Molecular Biopsy of Human Tumors

- a resource for Precision Medicine *

159 related articles for article (PubMed ID: 37161573)

  • 1. Towards the international interoperability of clinical research networks for rare diseases: recommendations from the IRDiRC Task Force.
    Nabbout R; Zanello G; Baker D; Black L; Brambilla I; Buske OJ; Conklin LS; Davies EH; Julkowska D; Kim Y; Klopstock T; Nakamura H; Nielsen KG; Pariser AR; Pastor JC; Scarpa M; Smith M; Taruscio D; Groft S
    Orphanet J Rare Dis; 2023 May; 18(1):109. PubMed ID: 37161573
    [TBL] [Abstract][Full Text] [Related]  

  • 2. The future of Cochrane Neonatal.
    Soll RF; Ovelman C; McGuire W
    Early Hum Dev; 2020 Nov; 150():105191. PubMed ID: 33036834
    [TBL] [Abstract][Full Text] [Related]  

  • 3. A Global Approach to Rare Diseases Research and Orphan Products Development: The International Rare Diseases Research Consortium (IRDiRC).
    Cutillo CM; Austin CP; Groft SC
    Adv Exp Med Biol; 2017; 1031():349-369. PubMed ID: 29214582
    [TBL] [Abstract][Full Text] [Related]  

  • 4. Recommendations for the design of small population clinical trials.
    Day S; Jonker AH; Lau LPL; Hilgers RD; Irony I; Larsson K; Roes KC; Stallard N
    Orphanet J Rare Dis; 2018 Nov; 13(1):195. PubMed ID: 30400970
    [TBL] [Abstract][Full Text] [Related]  

  • 5. The IRDiRC Chrysalis Task Force: making rare disease research attractive to companies.
    Beaverson KL; Julkowska D; Letinturier MCV; Aartsma-Rus A; Austin J; Bueren J; Frost S; Hamamura M; Larkindale J; LaRosa G; Magenheim R; Merico A; Pasmooij AMG; Pirard V; Ekow Thomford N; Wada M; Wong-Rieger D; Hartman AL
    Ther Adv Rare Dis; 2023; 4():26330040231188979. PubMed ID: 37529076
    [TBL] [Abstract][Full Text] [Related]  

  • 6. The importance of international collaboration for rare diseases research: a European perspective.
    Julkowska D; Austin CP; Cutillo CM; Gancberg D; Hager C; Halftermeyer J; Jonker AH; Lau LPL; Norstedt I; Rath A; Schuster R; Simelyte E; van Weely S
    Gene Ther; 2017 Sep; 24(9):562-571. PubMed ID: 28440796
    [TBL] [Abstract][Full Text] [Related]  

  • 7. 'IRDiRC Recognized Resources': a new mechanism to support scientists to conduct efficient, high-quality research for rare diseases.
    Lochmüller H; Le Cam Y; Jonker AH; Lau LP; Baynam G; Kaufmann P; Lasko P; Dawkins HJ; Austin CP; Boycott KM
    Eur J Hum Genet; 2017 Feb; 25(2):162-165. PubMed ID: 27782107
    [TBL] [Abstract][Full Text] [Related]  

  • 8. The use or generation of biomedical data and existing medicines to discover and establish new treatments for patients with rare diseases - recommendations of the IRDiRC Data Mining and Repurposing Task Force.
    Southall NT; Natarajan M; Lau LPL; Jonker AH; Deprez B; Guilliams T; Hunter L; Rademaker CM; Hivert V; Ardigò D;
    Orphanet J Rare Dis; 2019 Oct; 14(1):225. PubMed ID: 31615551
    [TBL] [Abstract][Full Text] [Related]  

  • 9. Rare Diseases: Joining Mainstream Research and Treatment Based on Reliable Epidemiological Data.
    Groft SC; Posada de la Paz M
    Adv Exp Med Biol; 2017; 1031():3-21. PubMed ID: 29214563
    [TBL] [Abstract][Full Text] [Related]  

  • 10. Critical Care Network in the State of Qatar.
    Hijjeh M; Al Shaikh L; Alinier G; Selwood D; Malmstrom F; Hassan IF
    Qatar Med J; 2019; 2019(2):2. PubMed ID: 31763205
    [TBL] [Abstract][Full Text] [Related]  

  • 11. A research roadmap for complementary and alternative medicine - what we need to know by 2020.
    Fischer F; Lewith G; Witt CM; Linde K; von Ammon K; Cardini F; Falkenberg T; Fønnebø V; Johannessen H; Reiter B; Uehleke B; Weidenhammer W; Brinkhaus B
    Forsch Komplementmed; 2014; 21(2):e1-16. PubMed ID: 24851850
    [TBL] [Abstract][Full Text] [Related]  

  • 12. The International Rare Diseases Research Consortium: Policies and Guidelines to maximize impact.
    Lochmüller H; Torrent I Farnell J; Le Cam Y; Jonker AH; Lau LP; Baynam G; Kaufmann P; Dawkins HJ; Lasko P; Austin CP; Boycott KM;
    Eur J Hum Genet; 2017 Dec; 25(12):1293-1302. PubMed ID: 29158551
    [TBL] [Abstract][Full Text] [Related]  

  • 13. NIH Roundtable on Opportunities to Advance Research on Neurologic and Psychiatric Emergencies.
    D'Onofrio G; Jauch E; Jagoda A; Allen MH; Anglin D; Barsan WG; Berger RP; Bobrow BJ; Boudreaux ED; Bushnell C; Chan YF; Currier G; Eggly S; Ichord R; Larkin GL; Laskowitz D; Neumar RW; Newman-Toker DE; Quinn J; Shear K; Todd KH; Zatzick D;
    Ann Emerg Med; 2010 Nov; 56(5):551-64. PubMed ID: 21036295
    [TBL] [Abstract][Full Text] [Related]  

  • 14. Global health for rare diseases through primary care.
    Baynam G; Hartman AL; Letinturier MCV; Bolz-Johnson M; Carrion P; Grady AC; Dong X; Dooms M; Dreyer L; Graessner H; Granados A; Groza T; Houwink E; Jamuar SS; Vasquez-Loarte T; Tumiene B; Wiafe SA; Bjornson-Pennell H; Groft S
    Lancet Glob Health; 2024 Jul; 12(7):e1192-e1199. PubMed ID: 38876765
    [TBL] [Abstract][Full Text] [Related]  

  • 15. Implementing efficient and sustainable collaboration between National Immunization Technical Advisory Groups: Report on the 3rd International Technical Meeting, Paris, France, 8-9 December 2014.
    Perronne C; Adjagba A; Duclos P; Floret D; Houweling H; Le Goaster C; Lévy-Brühl D; Meyer F; Senouci K; Wichmann O
    Vaccine; 2016 Mar; 34(11):1325-30. PubMed ID: 26859237
    [TBL] [Abstract][Full Text] [Related]  

  • 16. Progress in Rare Diseases Research 2010-2016: An IRDiRC Perspective.
    Dawkins HJS; Draghia-Akli R; Lasko P; Lau LPL; Jonker AH; Cutillo CM; Rath A; Boycott KM; Baynam G; Lochmüller H; Kaufmann P; Le Cam Y; Hivert V; Austin CP;
    Clin Transl Sci; 2018 Jan; 11(1):11-20. PubMed ID: 28796411
    [No Abstract]   [Full Text] [Related]  

  • 17. The pooling of manpower and resources through the establishment of European reference networks and rare disease patient registries is a necessary area of collaboration for rare renal disorders.
    Parker S
    Nephrol Dial Transplant; 2014 Sep; 29 Suppl 4():iv9-14. PubMed ID: 25165190
    [TBL] [Abstract][Full Text] [Related]  

  • 18. RD-Connect: an integrated platform connecting databases, registries, biobanks and clinical bioinformatics for rare disease research.
    Thompson R; Johnston L; Taruscio D; Monaco L; Béroud C; Gut IG; Hansson MG; 't Hoen PB; Patrinos GP; Dawkins H; Ensini M; Zatloukal K; Koubi D; Heslop E; Paschall JE; Posada M; Robinson PN; Bushby K; Lochmüller H
    J Gen Intern Med; 2014 Aug; 29 Suppl 3(Suppl 3):S780-7. PubMed ID: 25029978
    [TBL] [Abstract][Full Text] [Related]  

  • 19. Model consent clauses for rare disease research.
    Nguyen MT; Goldblatt J; Isasi R; Jagut M; Jonker AH; Kaufmann P; Ouillade L; Molnar-Gabor F; Shabani M; Sid E; Tassé AM; Wong-Rieger D; Knoppers BM;
    BMC Med Ethics; 2019 Aug; 20(1):55. PubMed ID: 31370847
    [TBL] [Abstract][Full Text] [Related]  

  • 20. Share and protect our health data: an evidence based approach to rare disease patients' perspectives on data sharing and data protection - quantitative survey and recommendations.
    Courbier S; Dimond R; Bros-Facer V
    Orphanet J Rare Dis; 2019 Jul; 14(1):175. PubMed ID: 31300010
    [TBL] [Abstract][Full Text] [Related]  

    [Next]    [New Search]
    of 8.