146 related articles for article (PubMed ID: 37591701)
1. The experiences of the families with children diagnosed with osteogenesis imperfecta: A Qualiative study in Turkey.
Uzsen H; Zengin D; Basbakkal Z
J Pediatr Nurs; 2023; 73():e172-e179. PubMed ID: 37591701
[TBL] [Abstract][Full Text] [Related]
2. Family experience with osteogenesis imperfecta type 1: the most distressing situations.
Santos MCD; Pires AF; Soares K; Barros L
Disabil Rehabil; 2018 Sep; 40(19):2281-2287. PubMed ID: 28585474
[TBL] [Abstract][Full Text] [Related]
3. Living with osteogenesis imperfecta: A qualitative study exploring experiences and psychosocial impact from the perspective of patients, parents and professionals.
Hill M; Hammond J; Sharmin M; Lewis C; Heathfield M; Crowe B; Götherström C; Chitty LS; DeVile C
Disabil Health J; 2022 Jan; 15(1):101168. PubMed ID: 34266787
[TBL] [Abstract][Full Text] [Related]
4. The impact of severe osteogenesis imperfecta on the lives of young patients and their parents - a qualitative analysis.
Dogba MJ; Bedos C; Durigova M; Montpetit K; Wong T; Glorieux FH; Rauch F
BMC Pediatr; 2013 Sep; 13():153. PubMed ID: 24074180
[TBL] [Abstract][Full Text] [Related]
5. The experiences of acute non-surgical pain of children who present to a healthcare facility for treatment: a systematic review protocol.
Pope N; Tallon M; McConigley R; Wilson S
JBI Database System Rev Implement Rep; 2015 Oct; 13(10):12-20. PubMed ID: 26571278
[TBL] [Abstract][Full Text] [Related]
6. Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home.
Carnevale FA; Alexander E; Davis M; Rennick J; Troini R
Pediatrics; 2006 Jan; 117(1):e48-60. PubMed ID: 16396848
[TBL] [Abstract][Full Text] [Related]
7. Involving Families with Osteogenesis Imperfecta in Health Service Research: Joint Development of the OI/ECE Questionnaire.
Dogba MJ; Dahan-Oliel N; Snider L; Glorieux FH; Durigova M; Palomo T; Cordey M; Bédard MH; Bedos C; Rauch F
PLoS One; 2016; 11(1):e0147654. PubMed ID: 26799959
[TBL] [Abstract][Full Text] [Related]
8. Family pediatrics: report of the Task Force on the Family.
Schor EL;
Pediatrics; 2003 Jun; 111(6 Pt 2):1541-71. PubMed ID: 12777595
[TBL] [Abstract][Full Text] [Related]
9. Assessment of quality of life of parents of children with osteogenesis imperfecta.
Szczepaniak-Kubat A; Kurnatowska O; Jakubowska-Pietkiewicz E; Chlebna-Sokół D
Adv Clin Exp Med; 2012; 21(1):99-104. PubMed ID: 23214306
[TBL] [Abstract][Full Text] [Related]
10. The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review.
Mu PF; Lee MY; Sheng CC; Tung PC; Huang LY; Chen YW
JBI Database System Rev Implement Rep; 2015 Jun; 13(5):293-329. PubMed ID: 26455612
[TBL] [Abstract][Full Text] [Related]
11. Home experiences of parents of children undergoing hematopoietic stem cell transplantation: A qualitative study.
Bekar P; Altuntaş D; Efe E
J Pediatr Nurs; 2023; 73():e541-e548. PubMed ID: 37923613
[TBL] [Abstract][Full Text] [Related]
12. The psychosocial experience of individuals living with osteogenesis imperfecta: a mixed-methods systematic review.
Tsimicalis A; Denis-Larocque G; Michalovic A; Lepage C; Williams K; Yao TR; Palomo T; Dahan-Oliel N; Le May S; Rauch F
Qual Life Res; 2016 Aug; 25(8):1877-96. PubMed ID: 26894269
[TBL] [Abstract][Full Text] [Related]
13. Living with a rare disease - experiences and needs in pediatric patients and their parents.
Witt S; Schuett K; Wiegand-Grefe S; Boettcher J; Quitmann J
Orphanet J Rare Dis; 2023 Aug; 18(1):242. PubMed ID: 37568186
[TBL] [Abstract][Full Text] [Related]
14. Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study.
Hill CL; Baird WO; Walters SJ
Health Qual Life Outcomes; 2014 Apr; 12():54. PubMed ID: 24742068
[TBL] [Abstract][Full Text] [Related]
15. Shaping and managing the course of a child's disease: parental experiences with osteogenesis imperfecta.
Dogba MJ; Rauch F; Tre G; Glorieux FH; Bedos C
Disabil Health J; 2014 Jul; 7(3):343-9. PubMed ID: 24947576
[TBL] [Abstract][Full Text] [Related]
16. The day-to-day experiences of caring for children with Osteogenesis Imperfecta: A qualitative descriptive study.
Castro AR; Marinello J; Chougui K; Morand M; Bilodeau C; Tsimicalis A
J Clin Nurs; 2020 Aug; 29(15-16):2999-3011. PubMed ID: 32350946
[TBL] [Abstract][Full Text] [Related]
17. Parents' Perceptions of Health-Related Quality of Life of Children Diagnosed with Osteogenesis Imperfecta.
Wiggins S; Kreikemeier R; Struwe L
J Pediatr Nurs; 2020; 55():75-82. PubMed ID: 32653829
[TBL] [Abstract][Full Text] [Related]
18. Parent experiences and psychosocial support needs 6 months following paediatric critical injury: A qualitative study.
Foster K; Mitchell R; Young A; Van C; Curtis K
Injury; 2019 May; 50(5):1082-1088. PubMed ID: 30655002
[TBL] [Abstract][Full Text] [Related]
19. Families' experiences of living with pediatric epilepsy: A qualitative systematic review.
Harden J; Black R; Chin RFM
Epilepsy Behav; 2016 Jul; 60():225-237. PubMed ID: 27240309
[TBL] [Abstract][Full Text] [Related]
20. The process of parenting a child with a disability: normalization through accommodations.
Deatrick JA; Knafl KA; Walsh M
J Adv Nurs; 1988 Jan; 13(1):15-21. PubMed ID: 3372881
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
