200 related articles for article (PubMed ID: 37775189)
21. Data-Sharing Across Otolaryngology: Comparing Journal Policies and Their Adherence to the FAIR Principles.
Johnson AL; Bouvette M; Rangu N; Morley T; Schultz A; Torgerson T; Vassar M
Ann Otol Rhinol Laryngol; 2024 Jan; 133(1):105-110. PubMed ID: 37431814
[TBL] [Abstract][Full Text] [Related]
22. Data sharing and ontology use among agricultural genetics, genomics, and breeding databases and resources of the Agbiodata Consortium.
Clarke JL; Cooper LD; Poelchau MF; Berardini TZ; Elser J; Farmer AD; Ficklin S; Kumari S; Laporte MA; Nelson RT; Sadohara R; Selby P; Thessen AE; Whitehead B; Sen TZ
Database (Oxford); 2023 Nov; 2023():. PubMed ID: 37971715
[TBL] [Abstract][Full Text] [Related]
23. Challenges in mapping European rare disease databases, relevant for ML-based screening technologies in terms of organizational, FAIR and legal principles: scoping review.
Raycheva R; Kostadinov K; Mitova E; Bogoeva N; Iskrov G; Stefanov G; Stefanov R
Front Public Health; 2023; 11():1214766. PubMed ID: 37780450
[TBL] [Abstract][Full Text] [Related]
24. Developing a data sharing community for spinal cord injury research.
Callahan A; Anderson KD; Beattie MS; Bixby JL; Ferguson AR; Fouad K; Jakeman LB; Nielson JL; Popovich PG; Schwab JM; Lemmon VP;
Exp Neurol; 2017 Sep; 295():135-143. PubMed ID: 28576567
[TBL] [Abstract][Full Text] [Related]
25. From Raw Data to FAIR Data: The FAIRification Workflow for Health Research.
Sinaci AA; Núñez-Benjumea FJ; Gencturk M; Jauer ML; Deserno T; Chronaki C; Cangioli G; Cavero-Barca C; Rodríguez-Pérez JM; Pérez-Pérez MM; Laleci Erturkmen GB; Hernández-Pérez T; Méndez-Rodríguez E; Parra-Calderón CL
Methods Inf Med; 2020 Jun; 59(S 01):e21-e32. PubMed ID: 32620019
[TBL] [Abstract][Full Text] [Related]
26. Integration of Patient-Reported Outcome Data Collected Via Web Applications and Mobile Apps Into a Nation-Wide COVID-19 Research Platform Using Fast Healthcare Interoperability Resources: Development Study.
Oehm JB; Riepenhausen SL; Storck M; Dugas M; Pryss R; Varghese J
J Med Internet Res; 2024 Feb; 26():e47846. PubMed ID: 38411999
[TBL] [Abstract][Full Text] [Related]
27. CureSCi Metadata Catalog-Making sickle cell studies findable.
Pan H; Ives C; Mandal M; Qin Y; Hendershot T; Popovic J; Brambilla D; Stratford J; Treadwell M; Wu X; Kroner B
PLoS One; 2022; 17(12):e0256248. PubMed ID: 36508412
[TBL] [Abstract][Full Text] [Related]
28. Sharing of clinical trial data and results reporting practices among large pharmaceutical companies: cross sectional descriptive study and pilot of a tool to improve company practices.
Miller J; Ross JS; Wilenzick M; Mello MM
BMJ; 2019 Jul; 366():l4217. PubMed ID: 31292127
[TBL] [Abstract][Full Text] [Related]
29. The RD-Connect Registry & Biobank Finder: a tool for sharing aggregated data and metadata among rare disease researchers.
Gainotti S; Torreri P; Wang CM; Reihs R; Mueller H; Heslop E; Roos M; Badowska DM; de Paulis F; Kodra Y; Carta C; Martìn EL; Miller VR; Filocamo M; Mora M; Thompson M; Rubinstein Y; Posada de la Paz M; Monaco L; Lochmüller H; Taruscio D
Eur J Hum Genet; 2018 May; 26(5):631-643. PubMed ID: 29396563
[TBL] [Abstract][Full Text] [Related]
30. Landscape analysis of available European data sources amenable for machine learning and recommendations on usability for rare diseases screening.
Raycheva R; Kostadinov K; Mitova E; Iskrov G; Stefanov G; Vakevainen M; Elomaa K; Man YS; Gross E; Zschüntzsch J; Röttger R; Stefanov R
Orphanet J Rare Dis; 2024 Apr; 19(1):147. PubMed ID: 38582900
[TBL] [Abstract][Full Text] [Related]
31. Enabling data sharing and utilization for African population health data using OHDSI tools with an OMOP-common data model.
Kiwuwa-Muyingo S; Todd J; Bhattacharjee T; Taylor A; Greenfield J
Front Public Health; 2023; 11():1116682. PubMed ID: 37361151
[TBL] [Abstract][Full Text] [Related]
32. FAIR and Quality Assured Data - The Use Case of Trueness.
Stausberg J; Harkener S; Jenetzky E; Jersch P; Martin D; Rupp R; Schönthaler M
Stud Health Technol Inform; 2022 Jan; 289():25-28. PubMed ID: 35062083
[TBL] [Abstract][Full Text] [Related]
33. An assessment of the informative value of data sharing statements in clinical trial registries.
Ohmann C; Panagiotopoulou M; Canham S; Felder G; Verde PE
BMC Med Res Methodol; 2024 Mar; 24(1):61. PubMed ID: 38461273
[TBL] [Abstract][Full Text] [Related]
34. Use and Understanding of Anonymization and De-Identification in the Biomedical Literature: Scoping Review.
Chevrier R; Foufi V; Gaudet-Blavignac C; Robert A; Lovis C
J Med Internet Res; 2019 May; 21(5):e13484. PubMed ID: 31152528
[TBL] [Abstract][Full Text] [Related]
35. [A New Paradigm in Health Research: FAIR Data (Findable, Accessible, Interoperable, Reusable)].
Almada M; Midão L; Portela D; Dias I; Núñez-Benjumea FJ; Parra-Calderón CL; Costa E
Acta Med Port; 2020 Dec; 33(12):828-834. PubMed ID: 33496252
[TBL] [Abstract][Full Text] [Related]
36. FAIR in action: Brain-CODE - A neuroscience data sharing platform to accelerate brain research.
Behan B; Jeanson F; Cheema H; Eng D; Khimji F; Vaccarino AL; Gee T; Evans SG; MacPhee FC; Dong F; Shahnazari S; Sparks A; Martens E; Lasalandra B; Arnott SR; Strother SC; Javadi M; Dharsee M; Evans KR; Nylen K; Mikkelsen T
Front Neuroinform; 2023; 17():1158378. PubMed ID: 37274750
[TBL] [Abstract][Full Text] [Related]
37. A multi-omics data analysis workflow packaged as a FAIR Digital Object.
Niehues A; de Visser C; Hagenbeek FA; Kulkarni P; Pool R; Karu N; Kindt ASD; Singh G; Vermeiren RRJM; Boomsma DI; van Dongen J; 't Hoen PAC; van Gool AJ
Gigascience; 2024 Jan; 13():. PubMed ID: 38217405
[TBL] [Abstract][Full Text] [Related]
38. Sharing and reuse of individual participant data from clinical trials: principles and recommendations.
Ohmann C; Banzi R; Canham S; Battaglia S; Matei M; Ariyo C; Becnel L; Bierer B; Bowers S; Clivio L; Dias M; Druml C; Faure H; Fenner M; Galvez J; Ghersi D; Gluud C; Groves T; Houston P; Karam G; Kalra D; Knowles RL; Krleža-Jerić K; Kubiak C; Kuchinke W; Kush R; Lukkarinen A; Marques PS; Newbigging A; O'Callaghan J; Ravaud P; Schlünder I; Shanahan D; Sitter H; Spalding D; Tudur-Smith C; van Reusel P; van Veen EB; Visser GR; Wilson J; Demotes-Mainard J
BMJ Open; 2017 Dec; 7(12):e018647. PubMed ID: 29247106
[TBL] [Abstract][Full Text] [Related]
39. Fast Healthcare Interoperability Resources (FHIR) in a FAIR Metadata Registry for COVID-19 Research.
Klopfenstein SAI; Vorisek CN; Shutsko A; Lehne M; Sass J; Löbe M; Schmidt CO; Thun S
Stud Health Technol Inform; 2021 Nov; 287():73-77. PubMed ID: 34795084
[TBL] [Abstract][Full Text] [Related]
40. Towards FAIRification of sensitive and fragmented rare disease patient data: challenges and solutions in European reference network registries.
Dos Santos Vieira B; Bernabé CH; Zhang S; Abaza H; Benis N; Cámara A; Cornet R; Le Cornec CMA; 't Hoen PAC; Schaefer F; van der Velde KJ; Swertz MA; Wilkinson MD; Jacobsen A; Roos M
Orphanet J Rare Dis; 2022 Dec; 17(1):436. PubMed ID: 36517834
[TBL] [Abstract][Full Text] [Related]
[Previous] [Next] [New Search]
