120 related articles for article (PubMed ID: 37944075)
1. Parent Quality of Life After Disclosure of Pediatric Oncology Germline Sequencing Results.
Howard Sharp KM; Li C; Lu Z; Clark ME; Jurbergs N; Ouma A; Harrison L; Gerhardt E; Taylor L; Hamilton KV; McGee RB; Nuccio R; Hines-Dowell S; Gattuso JS; Pritchard M; Mandrell BN; Tercyak KP; Nichols KE; Johnson LM
JCO Precis Oncol; 2023 Sep; 7():e2300159. PubMed ID: 37944075
[TBL] [Abstract][Full Text] [Related]
2. Parental Understanding of Their Child's Germline Genomic Testing: Intent of Disclosure to Their Child and Family.
Mandrell BN; Blake AK; Sharp KMH; Gattuso JS; McGee RB; Harrison L; Ouma A; Caples M; Johnson LM; Nichols KE
J Pers Med; 2023 Nov; 13(12):. PubMed ID: 38138883
[TBL] [Abstract][Full Text] [Related]
3. What factors influence parents' perception of the quality of life of children and adolescents with neurocardiogenic syncope?
Grimaldi Capitello T; Fiorilli C; Placidi S; Vallone R; Drago F; Gentile S
Health Qual Life Outcomes; 2016 May; 14():79. PubMed ID: 27188269
[TBL] [Abstract][Full Text] [Related]
4. Parents' experiences with large-scale sequencing for genetic predisposition in pediatric renal cancer: A qualitative study.
Bon SBB; Wouters RHP; Hol JA; Jongmans MCJ; van den Heuvel-Eibrink MM; Grootenhuis MA
Psychooncology; 2022 Oct; 31(10):1692-1699. PubMed ID: 35962481
[TBL] [Abstract][Full Text] [Related]
5. Parents' expectations, preferences, and recall of germline findings in a childhood cancer precision medicine trial.
McGill BC; Wakefield CE; Tucker KM; Daly RA; Donoghoe MW; Vetsch J; Warby M; Fuentes-Bolanos NA; Barlow-Stewart K; Kirk J; Courtney E; O'Brien TA; Marshall GM; Pinese M; Cowley MJ; Tyrrell V; Deyell RJ; Ziegler DS; Hetherington K
Cancer; 2023 Nov; 129(22):3620-3632. PubMed ID: 37382186
[TBL] [Abstract][Full Text] [Related]
6. Speaking genomics to parents offered germline testing for cancer predisposition: Use of a 2-visit consent model.
Johnson LM; Sykes AD; Lu Z; Valdez JM; Gattuso J; Gerhardt E; Hamilton KV; Harrison LW; Hines-Dowell SJ; Jurbergs N; McGee RB; Nuccio R; Ouma AA; Pritchard M; Quinn EA; Baker JN; Mandrell BN; Nichols KE
Cancer; 2019 Jul; 125(14):2455-2464. PubMed ID: 30901077
[TBL] [Abstract][Full Text] [Related]
7. Quality of life following allogeneic stem cell transplantation, comparing parents' and children's perspective.
Forinder U; Löf C; Winiarski J
Pediatr Transplant; 2006 Jun; 10(4):491-6. PubMed ID: 16712609
[TBL] [Abstract][Full Text] [Related]
8. After genomic testing results: Parents' long-term views.
Liang NSY; Adam S; Elliott AM; Siemens A; du Souich C; ; ; Friedman JM; Birch P
J Genet Couns; 2022 Feb; 31(1):82-95. PubMed ID: 34165210
[TBL] [Abstract][Full Text] [Related]
9. Children's psychosocial functioning and parents' quality of life in paediatric short stature: The mediating role of caregiving stress.
Silva N; Bullinger M; Sommer R; Rohenkohl A; Witt S; Quitmann J
Clin Psychol Psychother; 2018 Jan; 25(1):e107-e118. PubMed ID: 28960605
[TBL] [Abstract][Full Text] [Related]
10. Quality of life in newly diagnosed children with specific learning disabilities (SpLD) and differences from typically developing children: a study of child and parent reports.
Ginieri-Coccossis M; Rotsika V; Skevington S; Papaevangelou S; Malliori M; Tomaras V; Kokkevi A
Child Care Health Dev; 2013 Jul; 39(4):581-91. PubMed ID: 22372869
[TBL] [Abstract][Full Text] [Related]
11. Psychosocial Effect of Newborn Genomic Sequencing on Families in the BabySeq Project: A Randomized Clinical Trial.
Pereira S; Smith HS; Frankel LA; Christensen KD; Islam R; Robinson JO; Genetti CA; Blout Zawatsky CL; Zettler B; Parad RB; Waisbren SE; Beggs AH; Green RC; Holm IA; McGuire AL;
JAMA Pediatr; 2021 Nov; 175(11):1132-1141. PubMed ID: 34424265
[TBL] [Abstract][Full Text] [Related]
12. [Candid, not monitored children run less risk of becoming delinquent].
Stattin H
Lakartidningen; 2001 Jun; 98(25):3009-13. PubMed ID: 11462873
[TBL] [Abstract][Full Text] [Related]
13. The role of parental health and distress in assessing children's health status.
Kaplan SH; Shaughnessy M; Fortier MA; Vivero-Montemayor M; Masague SG; Hayes D; Stern H; Dai M; Heim L; Kain Z
Qual Life Res; 2022 Dec; 31(12):3403-3412. PubMed ID: 35876948
[TBL] [Abstract][Full Text] [Related]
14. Parent-child communication patterns during the first year after a parent's cancer diagnosis: the effect on parents' functioning.
Gazendam-Donofrio S; Hoekstra H; van der Graaf W; van de Wiel H; Visser A; Huizinga G; Hoekstra-Weebers J
Cancer; 2009 Sep; 115(18):4227-37. PubMed ID: 19626654
[TBL] [Abstract][Full Text] [Related]
15. Psychological Distress Among Parents of Children With Chronic Health Conditions and Its Association With Unmet Supportive Care Needs and Children's Quality of Life.
Thomas S; Ryan NP; Byrne LK; Hendrieckx C; White V
J Pediatr Psychol; 2024 Jan; 49(1):45-55. PubMed ID: 37840456
[TBL] [Abstract][Full Text] [Related]
16. Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.
Hechler T; Blankenburg M; Friedrichsdorf SJ; Garske D; Hübner B; Menke A; Wamsler C; Wolfe J; Zernikow B
Klin Padiatr; 2008; 220(3):166-74. PubMed ID: 18478489
[TBL] [Abstract][Full Text] [Related]
17. Quality of life of children with neurodevelopmental disorders and their parents during the COVID-19 pandemic: a 1-year follow-up study.
Ueda R; Okada T; Kita Y; Ukezono M; Takada M; Ozawa Y; Inoue H; Shioda M; Kono Y; Kono C; Nakamura Y; Amemiya K; Ito A; Sugiura N; Matsuoka Y; Kaiga C; Shiraki Y; Kubota M; Ozawa H
Sci Rep; 2022 Mar; 12(1):4298. PubMed ID: 35279671
[TBL] [Abstract][Full Text] [Related]
18. Responsibility, culpability, and parental views on genomic testing for seriously ill children.
Malek J; Pereira S; Robinson JO; Gutierrez AM; Slashinski MJ; Parsons DW; Plon SE; McGuire AL
Genet Med; 2019 Dec; 21(12):2791-2797. PubMed ID: 31186522
[TBL] [Abstract][Full Text] [Related]
19. Knowledge Is Power: Benefits, Risks, Hopes, and Decision-Making Reported by Parents Consenting to Next-Generation Sequencing for Children and Adolescents with Cancer.
Mandrell BN; Gattuso JS; Pritchard M; Caples M; Howard Sharp KM; Harrison L; Ouma AA; Valdez JM; Johnson LM; Nichols KE
Semin Oncol Nurs; 2021 Jun; 37(3):151167. PubMed ID: 34127338
[TBL] [Abstract][Full Text] [Related]
20. Managing Pandora's Box: Familial Expectations around the Return of (Future) Germline Results.
Johnson LM; Mandrell BN; Li C; Lu Z; Gattuso J; Harrison LW; Mori M; Ouma AA; Pritchard M; Sharp KMH; Nichols KE
AJOB Empir Bioeth; 2022; 13(3):152-165. PubMed ID: 35471132
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
