156 related articles for article (PubMed ID: 37951889)
1. Uncertain futures and unsolicited findings in pediatric genomic sequencing: guidelines for return of results in cases of developmental delay.
Cornelis C; Dondorp W; Bolt I; de Wert G; van Summeren M; Brilstra E; Knoers N; Bredenoord AL
BMC Med Ethics; 2023 Nov; 24(1):98. PubMed ID: 37951889
[TBL] [Abstract][Full Text] [Related]
2. Hope, but never expect? Comparing parents' pre- and post-disclosure attitudes toward return of results from diagnostic exome sequencing for their child.
Cornelis C; Tibben A; Brilstra E; Bolt I; van Summeren M; Knoers N; Bredenoord AL
Mol Genet Genomic Med; 2024 Mar; 12(3):e2341. PubMed ID: 38366804
[TBL] [Abstract][Full Text] [Related]
3. Whole-exome sequencing in pediatrics: parents' considerations toward return of unsolicited findings for their child.
Cornelis C; Tibben A; Dondorp W; van Haelst M; Bredenoord AL; Knoers N; Düwell M; Bolt I; van Summeren M
Eur J Hum Genet; 2016 Dec; 24(12):1681-1687. PubMed ID: 27460421
[TBL] [Abstract][Full Text] [Related]
4. Parents, their children, whole exome sequencing and unsolicited findings: growing towards the child's future autonomy.
Tibben A; Dondorp W; Cornelis C; Knoers N; Brilstra E; van Summeren M; Bolt I
Eur J Hum Genet; 2021 Jun; 29(6):911-919. PubMed ID: 33456055
[TBL] [Abstract][Full Text] [Related]
5. Stakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent.
Levenseller BL; Soucier DJ; Miller VA; Harris D; Conway L; Bernhardt BA
J Genet Couns; 2014 Aug; 23(4):552-65. PubMed ID: 23846343
[TBL] [Abstract][Full Text] [Related]
6. 'We Should View Him as an Individual': The Role of the Child's Future Autonomy in Shared Decision-Making About Unsolicited Findings in Pediatric Exome Sequencing.
Dondorp W; Bolt I; Tibben A; De Wert G; Van Summeren M
Health Care Anal; 2021 Sep; 29(3):249-261. PubMed ID: 33389383
[TBL] [Abstract][Full Text] [Related]
7. Parents perspectives on whole genome sequencing for their children: qualified enthusiasm?
Anderson JA; Meyn MS; Shuman C; Zlotnik Shaul R; Mantella LE; Szego MJ; Bowdin S; Monfared N; Hayeems RZ
J Med Ethics; 2017 Aug; 43(8):535-539. PubMed ID: 27888232
[TBL] [Abstract][Full Text] [Related]
8. Preferences to receive unsolicited findings of germline genome sequencing in a large population of patients with cancer.
Bijlsma R; Wouters R; Wessels H; Sleijfer S; Beerepoot L; Ten Bokkel Huinink D; Cruijsen H; Heijns J; Lolkema MP; Steeghs N; van Voorthuizen T; Vulink A; Witteveen E; Ausems M; Bredenoord A; May AM; Voest E
ESMO Open; 2020 Apr; 5(2):. PubMed ID: 32312756
[TBL] [Abstract][Full Text] [Related]
9. How do consent forms for diagnostic high-throughput sequencing address unsolicited and secondary findings? A content analysis.
Vears DF; Niemiec E; Howard HC; Borry P
Clin Genet; 2018 Oct; 94(3-4):321-329. PubMed ID: 29888485
[TBL] [Abstract][Full Text] [Related]
10. A Prospective Study of Parental Perceptions of Rapid Whole-Genome and -Exome Sequencing among Seriously Ill Infants.
Cakici JA; Dimmock DP; Caylor SA; Gaughran M; Clarke C; Triplett C; Clark MM; Kingsmore SF; Bloss CS
Am J Hum Genet; 2020 Nov; 107(5):953-962. PubMed ID: 33157008
[TBL] [Abstract][Full Text] [Related]
11. Parents of a child with epilepsy: Views and expectations on receiving genetic results from Whole Genome Sequencing.
Jaitovich Groisman I; Hurlimann T; Godard B
Epilepsy Behav; 2019 Jan; 90():178-190. PubMed ID: 30583270
[TBL] [Abstract][Full Text] [Related]
12. Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility.
Beauvais MJS; Thorogood AM; Szego MJ; Sénécal K; Zawati MH; Knoppers BM
Front Genet; 2021; 12():535340. PubMed ID: 33868358
[TBL] [Abstract][Full Text] [Related]
13. Informed consent instead of assent is appropriate in children from the age of twelve: Policy implications of new findings on children's competence to consent to clinical research.
Hein IM; De Vries MC; Troost PW; Meynen G; Van Goudoever JB; Lindauer RJ
BMC Med Ethics; 2015 Nov; 16(1):76. PubMed ID: 26553304
[TBL] [Abstract][Full Text] [Related]
14. Should we respect parents' views about which results to return from genomic sequencing?
Vears DF
Hum Genet; 2022 May; 141(5):1059-1068. PubMed ID: 33987713
[TBL] [Abstract][Full Text] [Related]
15. Offering and Returning Secondary Findings in the Context of Exome Sequencing for Hearing Loss: Clinicians' Views and Experiences.
Notini L; Gaff C; Savulescu J; Vears DF
AJOB Empir Bioeth; 2023; 14(2):74-83. PubMed ID: 36595590
[TBL] [Abstract][Full Text] [Related]
16. Evaluating parents' decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: a randomized controlled trial protocol.
Milko LV; Rini C; Lewis MA; Butterfield RM; Lin FC; Paquin RS; Powell BC; Roche MI; Souris KJ; Bailey DB; Berg JS; Powell CM
Trials; 2018 Jun; 19(1):344. PubMed ID: 29950170
[TBL] [Abstract][Full Text] [Related]
17. Attitudes of stakeholders in psychiatry towards the inclusion of children in genomic research.
Sundby A; Boolsen MW; Burgdorf KS; Ullum H; Hansen TF; Mors O
Hum Genomics; 2018 Mar; 12(1):12. PubMed ID: 29506557
[TBL] [Abstract][Full Text] [Related]
18. Overcoming challenges to meaningful informed consent for whole genome sequencing in pediatric cancer research.
Oberg JA; Glade Bender JL; Cohn EG; Morris M; Ruiz J; Chung WK; Appelbaum PS; Kung AL; Levine JM
Pediatr Blood Cancer; 2015 Aug; 62(8):1374-80. PubMed ID: 25832998
[TBL] [Abstract][Full Text] [Related]
19. Parents' attitudes towards and perceptions of involving minors in medical research from the Japanese perspective.
Fukuda Y; Fukuda K
BMC Med Ethics; 2018 Nov; 19(1):91. PubMed ID: 30463554
[TBL] [Abstract][Full Text] [Related]
20. Lessons learned from unsolicited findings in clinical exome sequencing of 16,482 individuals.
van der Schoot V; Haer-Wigman L; Feenstra I; Tammer F; Oerlemans AJM; van Koolwijk MPA; van Agt F; Arens YHJM; Brunner HG; Vissers LELM; Yntema HG
Eur J Hum Genet; 2022 Feb; 30(2):170-177. PubMed ID: 34697415
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]