174 related articles for article (PubMed ID: 38024462)
1. Barriers to the Diagnosis, Care, and Management of Pediatric Patients With Ehlers-Danlos Syndrome in the United States: A Qualitative Analysis.
Black WR; Black LL; Jones JT
Glob Pediatr Health; 2023; 10():2333794X231212081. PubMed ID: 38024462
[No Abstract] [Full Text] [Related]
2. They've been BITTEN: reports of institutional and provider betrayal and links with Ehlers-Danlos Syndrome patients' current symptoms, unmet needs and healthcare expectations.
Langhinrichsen-Rohling J; Lewis CL; McCabe S; Lathan EC; Agnew GA; Selwyn CN; Gigler ME
Ther Adv Rare Dis; 2021; 2():26330040211022033. PubMed ID: 37181101
[TBL] [Abstract][Full Text] [Related]
3. Pain control methods in use and perceived effectiveness by patients with Ehlers-Danlos syndrome: a descriptive study.
Arthur K; Caldwell K; Forehand S; Davis K
Disabil Rehabil; 2016; 38(11):1063-74. PubMed ID: 26497567
[TBL] [Abstract][Full Text] [Related]
4. The Internet Knows More Than My Physician: Qualitative Interview Study of People With Rare Diseases and How They Use Online Support Groups.
Ashtari S; Taylor AD
J Med Internet Res; 2022 Aug; 24(8):e39172. PubMed ID: 36006679
[TBL] [Abstract][Full Text] [Related]
5. Lack of Diversity in Research on Females with Ehlers-Danlos Syndromes: Recruitment Protocol for a Quantitative Online Survey.
Glayzer JE; Bray BC; Kobak WH; Steffen AD; Schlaeger JM
JMIR Res Protoc; 2024 May; 13():e53646. PubMed ID: 38696252
[TBL] [Abstract][Full Text] [Related]
6. Development of a Multidisciplinary Clinic for Patients with Ehlers Danlos Syndromes: Considerations and Strategies.
Black WR; Jones JT; Rush ET; Malloy Walton L; Harding A
J Multidiscip Healthc; 2023; 16():191-195. PubMed ID: 36714240
[TBL] [Abstract][Full Text] [Related]
7. The Analgesic Mismanagement of a Patient With Ehlers-Danlos Syndrome (Hypermobility Variant): A Case Report.
Gunendran T; Uma Dwarakanath N
Cureus; 2023 Sep; 15(9):e45713. PubMed ID: 37745744
[TBL] [Abstract][Full Text] [Related]
8. Considerations for lactation with Ehlers-Danlos syndrome: a narrative review.
Francis J; Dickton DD
Int Breastfeed J; 2022 Jan; 17(1):4. PubMed ID: 34983567
[TBL] [Abstract][Full Text] [Related]
9. Healthcare utilization among youth with Ehlers-Danlos syndrome hypermobile type.
Williams SE; Tran ST; Lynch-Jordan A; Goldschneider KR; Ting TV; Kashikar-Zuck S; Neilson D
Am J Med Genet A; 2022 Apr; 188(4):1109-1117. PubMed ID: 34989147
[TBL] [Abstract][Full Text] [Related]
10. Patient experience of chronic illness care and complementary integrative health use: a cross-sectional study of patients with hypermobility spectrum disorders (HSD) and Ehlers-Danlos syndromes (EDS).
Guedry SE; Langley BO; Schaefer K; Hanes DA
Disabil Rehabil; 2023 Oct; 45(21):3549-3559. PubMed ID: 36222285
[TBL] [Abstract][Full Text] [Related]
11. Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders.
Yew KS; Kamps-Schmitt KA; Borge R
Am Fam Physician; 2021 Apr; 103(8):481-492. PubMed ID: 33856167
[TBL] [Abstract][Full Text] [Related]
12. Cognitive, emotional, and behavioral considerations for chronic pain management in the Ehlers-Danlos syndrome hypermobility-type: a narrative review.
Baeza-Velasco C; Bulbena A; Polanco-Carrasco R; Jaussaud R
Disabil Rehabil; 2019 May; 41(9):1110-1118. PubMed ID: 29357706
[TBL] [Abstract][Full Text] [Related]
13. Dermatologic manifestations and diagnostic assessments of the Ehlers-Danlos syndromes: A clinical review.
Doolan BJ; Lavallee M; Hausser I; Pope FM; Seneviratne SL; Winship IM; Burrows NP
J Am Acad Dermatol; 2023 Sep; 89(3):551-559. PubMed ID: 36764582
[TBL] [Abstract][Full Text] [Related]
14. Gender dysphoria in adolescents with Ehlers-Danlos syndrome.
Jones JT; Black WR; Moser CN; Rush ET; Malloy Walton L
SAGE Open Med; 2022; 10():20503121221146074. PubMed ID: 36600979
[TBL] [Abstract][Full Text] [Related]
15. Pilot study of an online-delivered mindfulness meditation in Ehlers-Danlos syndrome (hEDS): effect on quality-of-life and participant lived experience.
Lattimore P; Harrison F
Disabil Rehabil; 2023 Nov; 45(23):3833-3840. PubMed ID: 36326346
[TBL] [Abstract][Full Text] [Related]
16. Differential diagnosis and diagnostic flow chart of joint hypermobility syndrome/ehlers-danlos syndrome hypermobility type compared to other heritable connective tissue disorders.
Colombi M; Dordoni C; Chiarelli N; Ritelli M
Am J Med Genet C Semin Med Genet; 2015 Mar; 169C(1):6-22. PubMed ID: 25821090
[TBL] [Abstract][Full Text] [Related]
17. The GoodHope Ehlers Danlos Syndrome Clinic: development and implementation of the first interdisciplinary program for multi-system issues in connective tissue disorders at the Toronto General Hospital.
Mittal N; Mina DS; McGillis L; Weinrib A; Slepian PM; Rachinsky M; Buryk-Iggers S; Laflamme C; Lopez-Hernandez L; Hussey L; Katz J; McLean L; Rozenberg D; Liu L; Tse Y; Parker C; Adler A; Charames G; Bleakney R; Veillette C; Nielson CJ; Tavares S; Varriano S; Guzman J; Faghfoury H; Clarke H
Orphanet J Rare Dis; 2021 Aug; 16(1):357. PubMed ID: 34376220
[TBL] [Abstract][Full Text] [Related]
18. Diagnosed prevalence of Ehlers-Danlos syndrome and hypermobility spectrum disorder in Wales, UK: a national electronic cohort study and case-control comparison.
Demmler JC; Atkinson MD; Reinhold EJ; Choy E; Lyons RA; Brophy ST
BMJ Open; 2019 Nov; 9(11):e031365. PubMed ID: 31685485
[TBL] [Abstract][Full Text] [Related]
19. Pediatric Care in the Nonpediatric Emergency Department: Provider Perspectives.
Jain PN; Choi J; Katyal C
Hosp Pediatr; 2019 Mar; 9(3):216-219. PubMed ID: 30819720
[TBL] [Abstract][Full Text] [Related]
20.
; ; . PubMed ID:
[No Abstract] [Full Text] [Related]
[Next] [New Search]